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Conditions

Albinism

Albinism

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Albinism is a rare condition where the body doesn’t produce a normal level of melanin (skin pigment). This normally results in very pale skin, hair and eyes, though the symptoms can vary from person to person. Other symptoms include a sensitivity to light, poor eyesight and an involuntary sideways movement of the eyeballs, called nystagmus. The condition is caused by a recessive gene, that if carried by both parents can result in albinism. The condition does not get worse, and whilst sufferers are at higher risk of suffering from conditions such as skin cancer, they should otherwise have a normal life expectancy. Treatment options are limited to improving the individual symptoms, such as glasses and contacts lenses to correct some of the vision problems, and high quantities of sun block to help protect the skin.

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I am albino and I am 14 years old and i have more of a yellow white hair color and y lips have a very dark pigment and my eyes are blue and mine a lot but both of my parents are white and we don't know where the gene came from and I don't get it but everyone loves my hair and always says it's beautiful and I know tht it is but I don't know where the gene came from both of my parents are honkey white and idk





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hello i have my brother living in Africa all the sun cream that i have sent it not helping him what is the good cream for him is albino





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I am albino some people do not understand how I have blue eyes when they expect me to have red or pink but I know quite a few people who are just like me by having albinism and being visually impaired and they mostly have blue eyes only 2 of them don't I just wish that more people knew about this rather than asking you questions all the time I don't mind answering questions but it can get slightly irritating after a bit. Also when I was born I was born Ginger but once my hair grew it was White my mum had to cut off all my Ginger curls is this just me or are other peoples hair absorb colour the same happens to me when I was younger because I am 19 now when we used one of those colour sticks for kids where u can do different coloured streaks in your hair.





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I am female, 55 and have the above condition. However. i have blue eyes snd my eylashes and eyebrows and hair are very blonde. Being very fair i have to use 50 sunscreen when out in the sun especially on holiday. i used to fo to moorfields when i was younger as to be honest i think they treat u as a guinea pig most of the time, i was prescribed specs but they dont really improve yr sight and do not help u see further or correct sight to an acceptable level as anyone else would have in normal circumstnces. i now need reading glasses as many people of my age do which is nothing unusual. But it is just the involuntary movement of the eyes that i find the hardest to deal with, when wearing sunglassses in the summer i feel normal. When i am nervous or worried it seems to become worse and more noticeable and i am very self concious of it. I was teased a lot at school because of it and long very blonde hair didnt help either they thought my mum died it for me !!! kids can be very cruel. But as i grew up i had to learn to accept this is what i am . being female we can use mascara and fake tan if we want too and make up also i have 2 boys both grown up nowand no problems at all my husband has brown hair and goes brown very easily i am so jealous i would love that, on the plus side i have hardly any wrinkles and keep my skin well moisturied. I dont really know what causes this condition but only know it is congenital and u r born with it both my parents had brown hair and so did my brother.





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I suffer from this condition, but my parents are both white and there are no traces in my family or black skinned people, they think that it may be a twisted gene somewhere along the line but i am awaiting to apply for a genetic testing to find out which type of albinism i have! so im quite excited for that :)! I've been for various tests at Great Ormand Street Hospital in London but they still cant confirm anything so i have to wait until i turn 16 (this year!!) until i can find out more! but getting back to my point, i know exactly what you mean by going in the sun, i actually have to wear prescribed suncream from the doctors that you cant get off the shelf! and involving the eyes, it makes me feel very self conscious because i dont know when im doing it and i just fear that they think im rolling my eyes at them of some sort! and then recently ive been warned that it could effect my driving ability when i turn 17!, but hopefully i will be able to do that! so i relate to you in alot of ways via the fact your parents are origin on black!





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My father was an albino as were one brother and one sister, the other 4 children were dark haired. My father had very bad eyesite and hearing but always worked from the age of 14 and was still working the day he had his stroke from which he passed away. My brother and I didn't inherit the albinism but my eye lashes are almost invisible as are my eyebrows. My daughters are aware of this in the family one has three children the other two but none are albino.

I have albinism there is no history of it in my family. I'm 19 now and when I was born my parents were only young themselves so didn't know anything about it. I would use the word 'suffer' to describe it though it's not what you asked for but you have so just have to deal with it because whatever happens there is no changing who you are. After all everybody is fealty things in life that they don't want but albinism is with you for the duration so might as well embrace it :)

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