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Conditions

Arthrogryposis

Arthrogryposis

Arthrogryposis is a descriptive term to describe a congenital condition that causes curved joints in several areas of the body at birth. This is caused when a baby is prevented from normal movement in the womb either from biological or external factors. Over 260 babies are born with arthrogryposis every year in the UK and is normally diagnosed at birth or at an ultrasound examination.

Contrary to popular belief, this condition is not a result of a problem in the formation of the joints, but rather with the development of the connective tissues around them. In arthrogryposis, this tissue fuses a joint in place, severely restricting movement in the areas affected. Other causes of arthrogryposis include lack of space in the uterus, muscle abnormalities, nerve abnormalities, blood circulation problems and maternal illness.

Symptoms of the condition vary from person to person and there are over 200 types of conditions that are covered by the term arthrogryposis. The most common type of arthrogryposis affects the limbs, but it can also affect other parts of the body including the face, spine and hands. Sometimes the central nervous system can be affected and in this instance the survival rate of babies with the condition is sadly very low.

There is no cure for arthrogryposis, but treatment is available to significantly improve movement in the affected areas. Treatment normally begins in childhood with courses of physiotherapy, surgery and orthosis (splints). With this treatment, the majority of children go on to enjoy active lives, but for some the condition remains unimproved. However, the condition is not progressive which means that it will not deteriorate over time.

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Hi all, I am a 45 year old married mother of two. I have Arthrogryposis as well. It affects all my limbs, hips and back. I used to walk with callipers, but I didn't know scoliosis could be a side effect. This stopped me walking about 10 years ago so now I am in a wheelchair. But has it stopped me doing what I want? Hell no! I go out, I'm starting up my own business and I'm writing a book. So please, don't think it is the end of life as you know it. Yes it will be hard going, but believe me when I say, it is all worth it. I love life!





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I'm 24 years old. I was born with clubfoot and diagnosis wiith this same condition , not only this condition but a few others also ( osteoporosis and osteoarthritis ) over the years my condition will have its ups and down. I'm limited mobility due to joints and also have deteriorating bones as I get older.. but I'm blessed to say things the doctor thought I wouldn't be able to do, I do now.. they said I never conceive and I have a handsome 6 year old. They said I never walk nor lift and I'm able to do both ( not for long periods of time or nothing to heavy).. I have complications as I get older but I'm thankful to be alive...





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Articles like these r not completely true. I have this disability as well and no, the joints r not curved they r called contractures.





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hi im mum of lindsay , now aged 53 yrs. she has arthrogrypsis multiplex she is exceptionally gifted with art, painting by mouth, she is glamour puss outgoing and loves life, She is part of a loving family who adore her, and being a bossy Leo keeps us all in order.at present she is painting on glass, not bad for someone who when diagnosed was given six weeks to live,Much heartache but much much happiness.





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hi my name is kathy i have Arthrogrposis iv had it for 54 yrs its my legs arms hands feet i cant walk im marrid and got a lovely son he is 21 and he not got it i was so glad that he not got it





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My name is Brittany And I have arthrogryposis But I have it from head to toe I'll tell you this it's a very hard disease to live with It's hard to constantly to be dependent on someone But luckily I have good friends and good family that will do anything for me I'm extremely grateful and I wouldn't wish this on anyone but it's Who I am I've been living with it for 27 years but the way I see it nobody has an easy life so if there's anyone that need someone to talk to just let me know





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Hi, my name is Kuuipo and my son had Arthrogryposis. He is now 5 weeks and has shown improvement on his hands wrists and shoulders. He also has club feet so he has been in casts since birth. It's amazing how much he has improved. My husband and I do physical therapy on him every day and that has helped a lot. He is such a strong boy and is a fighter. I love him so much and want him to grow up strong. What else can I do for my son to help him? I read to him daily, we have tummy time, I put him under a play mat to catch his interest (he's not too fond of it), I sing, massage and his therapy. Anything else I can do to help my babies development? He does not have a bad case of AMC either and also has a dislocated hip in which will require surgery. Any thoughts?





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Hi everyone! My son was born with Athrogryposis, it effected his lower Extremities hips, knees and feet He has had 5 surgeries. He is now 8yrs old and can walk,run and jump! Maybe a lot slower then the other kids but he does it! Today my son told me he hatesBeing the way he is... It broke my Heart to hear him say this. While Holding back tears I told him he Was blessed and I read him some Of these encouraging stories! :) He felt a lot better...so from me His mom. Thanks for sharing guys :))





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My daughter has AMC. In the womb she was diagnosed with a fatal type of AMC thought to involve her central nervous system but she was a fighter and is now 14 weeks old:-) every day we learn something new about her condition. We are in the early stages of treatment but we are optimistic :-) unfortunately her legs are badly effected and she has structural problems as well as the arthrogryposis and no movement in the lower limbs but we will do what we can to get her walking!





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I was born with Arthrogryposis in 1952 and my arms were rigid but my Mum massaged my arms everyday and eventually found my elbows much to the hospitals surprise. Was told I wouldn't walk or talk but I did although it took me a bit longer. I went to mainstream school and they helped a lot. I did ballet and tap and ballroom dancing, held down a Secretarial job for 10 years then left and had four children so there is a lot of hope for your daughter!

Hi my child is 2 days old i am from Newfoundland Canada he has this arthrogrgposis my hart is broke but the good news is that it's not the nerves it seems to be bone in the knees and feet and wrists I would love for someone with this type of problume to contact me.





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Hi My name is Tom I live in Ireland I also have arthrogroposis . I was born in 1967 like your child my Nerves were fine also , where it did affect me was Feet , Hips Knees and Thumbs . I am now 48 years of age it is never stopped me doing anything I wanted to do , I work full time , I am Married to a great Lady . I tell you all this because I want you to know that all do it does not look great right now I have not a doubt in my mind your child will have a challenging life , but a normal and happy one . My Dad passed away earlier this year and if you knew what he told me about when I was born and how he felt and then went on to say how wrong he was and that he was proud to have me as his son .This is not the end of your world or your child's but only the start , Take care all the best Tom .

Hi,My son was born with Athrogryposis It effected hi lower extremities, Hips,knees and feet. After his surgeries he was up in no time!:) He is now 8yrs old he walks,run and Can jump with the occasional backflip In my bed. :).. I know its hard Right now.. I can't tell u it Will get better soon and it's Going to be a walk in the park No...it's going to be the hardest Thing u will ever have to endure But trust me, in the end it's ALL Worth it. Stay strong for your boy We will need you. :)

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