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Conditions

Cerebral Palsy

Cerebral Palsy

Cerebral palsy is term that covers a set of neurological conditions that affect movement and coordination. The symptoms can vary widely and depend on the type of cerebral palsy. These are:

- spastic cerebral palsy where the muscle stiffens and account for 70% of all cases

- ataxic cerebral palsy where balance and depth perception are affected

- atheloid (dyskinetic) cerebral palsy which affects speech and causes increased and decreased muscle tone and account for around 10% of all cases

- spastic quadriplegia where the child can be left unable to walk, support the neck and with learning difficulties

Around 1 in every 400 children in the UK are affected by the condition with 1,800 babies being diagnosed with cerbral palsy every year.

Cerebral palsy is caused by damage to the brain, normally around birth. Possible causes include infection in early pregnancy, difficult or premature birth, bleeding in the baby’s brain, abnormal brain development, breech births, multiple babies in the womb and a low birth weight. Children with cerebral palsy can also have related existing conditions such as epilepsy, learning difficulties, incontinence, visual impairment, hearing impairment, speech problems, delayed growth and a curved spine.

As the chid gets older, complications with cerebral palsy can arise such as post-impairment syndrome (fatigue, muscle weakness, pain, arthritis, repetitive strain injury), premature ageing of the body’s organs and depression. Contracture can also be a symptom, which is the shortening of the muscle tissure due to severe tightening. This condition can impair bone growth, causes the bones to bend and can result in joint deformaties and dislocation.

This is no cure for cerebral palsy, but it is not a progressive condition so the symptoms will not worsen as the child gets older. Cerebral palsy can put a lot of strain on the body, however, and a range of treatments are available to help the sufferer cope with the phsyical and mental problems related to the condition. These include physiotherapy, speech therapy, occupational therapy and also medicines such as muscle relaxants and orthopaedic surgery to help correct problems with bones and joints.

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I am 27 years old, I suffer from mild CP. The pain is getting progressivley worse in my back, however, it is the metal problems that continue to cause issues. I feel worried about the future ahead and want to know what the long term affects of CP are. If you were to see me on the street, work with on a daily basis you may think, that woman had a limp, but that's all! I am lucky but I am worried about the long term affects?





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I am 44 and i have deformed right foot size 2 and a size 6 left foot. I have operations on the right foot to try and straighten foot and toes but it has not worked. My right leg is very week and thinner than the left. The left leg and foot is my life saver as it keeps me upright and walking. I also have a curved spine! SHOULD I HAVE BEEN DIAGNOSED WITH CP BEFORE NOW?? For the last 2 years my left foot is hurting at the ball of my foot when standing and walking like a stabbing pain and then the foot goes numb and I can't move I became paralysed to a point trying to move the foot leg to the nearest seat. I have been to hospital and they have said I have CP I have never been told this before?? What do I do?? The said I have to get a operation now on the left leg to stretch tendon??





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Hi, I am 27 years old with a mild form of CP and that effects my left side. I am not very educated about my condition.When I was younger I had problems with muscle stiffness and movement. When I explained my condition to my friends by saying one side moves faster than the other. But it wasn't noticed unless I was performing vigorous activities such as running. But now at 27 I'm experiencing muscle cramps and slight numbness. My walking may get off balance and I fall. I know they say progression is not common with age but I think that is what's happening to me. If so any suggestions on what to do from here?





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Hi, I'm 34 and have mild cp which affects my right leg which is shorter and weaker. I've had lots of corrective surgery on the foot which is deformed and tight,plus tendon lengthening. The problem I'm having now is a lot of pain in my foot which is getting worse and I wonder if there's any treatment that may help, except painkillers as I have to have too many of them for my back anyway so they won't really help. I just don't know if it's worth going to the doctors or will it just be a case of put up with it now. Just wondered if anyone else finds the pain getting worse and how do you deal with it! Thankyou.





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My name is dustin. I have CP too. I am 30 years old. My leg pain bothers me a lot. I also drool a lot. This bothers me sometimes. We have to help each other. I feel bad that I don't have much coordination. But I work for a cell center and try to help people with my mind Sometimes i feel guilty that I am not handy and not good with money . I wish i was better at video games. I feel slow sometimes.





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hi, i'm a 28 year old female with CP on my right side and no heel as well, I have really bad muscle spasms/twitching in legs at night when i'm trying to go to sleep. I get the spasms when i've done to much during the day physically or not done enough. Anyone have suggestions on what i can do to improve so i can sleep better? thanks





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I have CP as well. I will take a tizadine and an ambient tot sleep. Also Kolonopin 2 hours before bed helps my muscles relax and takes some pain away. Hope this helps.

I have had athetoid cp since birth. All through education I received very little support. I left school with very little grades or education. The truth is I understand very little and my memory and recall isn't that great. I twitch and pull faces which most people pick up as aggression. I cant have relationship with people because I find it hard to communicate emotions and most people just take the piss when I tell them. Iam clumsy and extremely flexiable. I took up rock climbing and got quite good at it, but my failure to bond with other humans makes it quite difficult with such activities. I am 30 and have no life, no one is ever going to ever hire me, because I cant keep my mouth shut and the stuff what comes out is ether irrelevant or utter crap. I have asked my doctor for help. But as he says hes no magician. I have no life and I can see this is it for me. In the last the few years I have developed agoraphobia and no longer go out and I tend to look at others with paranoia and mistrust. And I think this is the best its going to get.And now I don't sleep. Sometimes it normal to 2 days without sleep. There is no help. If you have child with cp I think social interaction should always come first. Because education can be learnt later in life. Without social skills where just doomed to live with our family's till they pass. The sad thing is I personally cant live in a huge populated areas. but I do and I hate it. Even though I dream of living in the woods and never seeing another living soul again. Then again life isn't about choices its about places. And it best to play the cards where dealt. Sorry for the rant.





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Hey There! I have CP too. I am 30 years old. Maybe we could help each other. Can you reply back to me.

So glad I found this, I too was born at 28 weeks and suffered brain damage etc. parents told I'd never walk I did age 4/5 . Bullied ememsly through school . But never felt down or low or depressed as I've always just thought ignore it and carry on I'm lucky to be alive right. I'm now 25. Have 2 beautiful girls and have 2 jobs although I'm having a lot of time off due to falls and terrible pain and weakness in my legs ( yeah my companies are not supportive what so ever) I'm now some days confined to a wheelchair have terrible for drop causes falls no end . Have spent the last 3 years fighting for Botox to help the muscles as I'm told it's not cost effective to the NHS , also looking into getting a tendon transfer or ankle fusion done to fix the foot drop issues that really are the reason for so many falls. I'm told cp doesn't get worse yet the past 12 months I find myself in more pain, more falls and using a wheelchair and walking stick .... They say it's just my body ageing quick . Where is the help for adults with cp ???





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Hi I'm 26 years old I was born 3 months early and as a result I have cp. I wear afo ( braces) and I have had three operation and Botox. I had my first surgery at 8 years old. I had heal cord lengthening and a muscle transfer in both legs. I was lucky and my parents were able to find Shriners hospital. It is a children's hospital so that really wouldn't be an option as for a treatment but I'm sure that if you were to call them you could get some information.

Hi I am 29 and also have cp which affect my right side.. I also have it mild but suffer withe muscle spasms, and twitching everyday.. I am still falling over a lot and always have pulled muscles. I've noticed that since I turned 20, my body feels a lot older and I can't do half of what I could do when I was younger.. I haven't had any surgeries. When I was a younger I had loads of physiotherapy but that stopped..





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I suffer with mild cp on my leff side i have tremors but i had loads of help when i was younger

Hi, I am a mum of a 7 year old boy (light of my life). I thought I accepted and understood his condition, but recently attended an appointment and have never felt so confused and am hoping so one can help. My son has permanent brain damage and effected his lower body severely he can not walk or stand with equipment, his upper body strength isn't to good, his hands and arm are pretty weak but not to bad. My son is extremely stiff and has pretty bad diatonic movement out consultant from birth and the whole developmental team have said there is no treatment to help him improve with day to day life, and have given us just pain relief to help with the new pain that has just began. 2 days ago we were seen by a team in st Thomas hospital and was shocked to learn that the actual care plan that my son was given by his current consultant is the actual cause of his pain, the new team have suggested seeing a orthopaedic surgeon to have tissue removed from his hamstrings, to help with the muscle shortening that he has. Hope someone can just help me understand things about having this kind of surgery or just any advice





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Hi there. My son has hemiplegic cp he got diagnosed when he was 5 hes now nearly 10. Hes had botox injections also lots of physio and his orthopedic surgeon has put him on waiting list for tendant lengthening surgery which he could have any day now.if you would like a chat anytime about things please email me 😊


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