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Conditions

Cystic Fibrosis

Cystic Fibrosis is a chronic, life threatening disease that sees the internal organs (particularly the lungs) become clogged with mucus. Whilst an unaffected body produces a constant flow of mucus to trap bacteria in CF sufferers this mucus is gloopy and too thick which is what causes problems. Other symptoms associated with CF include osteoporosis, clubbed toes/fingers, recurrent chest infections, poor growth, constipation, fertility problems and sometimes liver disease and diabetes. Cystic Fibrosis is genetic and the 8000 sufferers in the UK make it the most common inherited disease in this country. Some people may be carries of the CF gene without knowing it but tests are available for those with a family history of CF and can be useful when considering making plans to have a family. For a newborn to develop CF both of their parents must carry the CF gene which means there is a one in four chance of their child having CF. The life expectancy for a sufferer is about 35 years. Whilst there is no cure for cystic fibrosis there are treatments available to keep sufferers as healthy as possible. Treatments typically involve a combination of frequent medication and physiotherapy which should allow a CF sufferer to live as long, happy and unaffected life as possible.

For more information:

Cystic Fibrosis Trust
Cystic Fibrosis at Patient.co.uk
Cystic Fibrosis Foundation

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hi my friend has had 2 lung washes he has a mucas in his lungs hes also had thrush in his lungs and also the mould you have growing in the corner of a room growing in his lungs have you had anything like that or any ideas were he could go hes been being treated but they said he needs a biopsey but they wont give him one he needs second apineon any ideas or places to go hes been working in a place were they clean dental machines hes not sure if contracted something thorugh cleanining the machines through breathing in just wants a place to go as struggling to breath





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I have been diagnosed with asthma but all my symptoms match up with cystic fibrosis. Things like having frequent chest infections and mucus in my stools. Should I ask my doctor to let me have a sweat test next time I have to go?





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I was diagnosed with asthma age 7, I've always had a very persistent cough since I'm now 17. I'm always taking time off work for have cheat infections and colds, the longest I've been with out being slightly ill is a week, no exaggeration. My skin has a salty taste. I am always producing a lot mucus, it often comes out when I'm coughing or being sick. I'm in constant agony from coughing I've torn muscles in my chest and my back aches a lot of the time. I'm in hospital at least every 6 months, could I have been wrongly diagnosed with asthma?





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Hi I was diagnosed with asthma last year and have a lot of nasal problems and cough it up I t could be the case for both of us for the wrong digonosis

Hi i've had this problem for years and feel its time i dealt with it i produce a lot of Mucus and i find myself continuously spitting as i do not want to swallow it could you be so kind as to tell me what this problem could be ,i don't get chest infections and im sure its not C.F id really like to resolve this problem as i think it's well overdue thank you .





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Yeah I know how u feel doctors diagnosed me with asthma but I think it might be cf coz of mucus build up and very bad digestive problems and nasal problems

I I 20 years old and was officially diagnosed when I was 6 months old Really don't understand how some people get diagnosis later on in life as far as im concerned you are born with it and have symptoms straight away





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I'm 13 years old. Growing up, I always had a cough, and I was always sick. My parents took me to the doctor, and they said that I just had "a little bit" of asthma. When I was in 1st grade, (6 or 7) I asked my teacher to go to the nurse because I didn't feel well. The nurse checked my oxygen level, and it was 67. She told my parents to take me to the doctor as soon as possible. After the appointment, they hospitalized me. I had pneumonia. My doctors decided to do a sweat test on me, just to check if I had CF. The test came back positive. Sorry that this is so long o.o So, yes, everyone that has CF is born with it, but some people are diagnosed later because they might have a milder case (like me) or they just had crappy doctors that misdiagnosed the child with asthma or any other lung related issue (like me)Please don't take this the wrong way and think that I'm being a know-it-all. lol. :)

I'm only 18. I'm pregnant too. Just got a phone call saying im positive for Cystic Fibrosis. I'm so confused & No one is telling me anything. I have thousands of questions. I don't know who to call back. This is scarying me, I need Info.





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They may mean your positive for the gene mutation that causes cf. both parents have to have the faulty gene to pass it on to the child, even then I think it's a 1 in 4 chance. Having one copy of the faulty gene won't affect you.

If u have a mild case den ur expected to Have a normal life expectancy as everyone but having symptoms Start after birth will mean the disease is progressing rapidly

Hi I'm 32 and I have just been told I have cf. I have had chest infections for along time and was losing lots of weight when I had a chest infection. Had a chest infection for 7 weeks before... :( I'm on lots of meds now I take creon pill every time I eat. And on milkshake to help me keep my wieght on.





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My daughter carries the faulty gene r117h she's has recurring chest infections at present she has a growth of Kebsiella oxytoca she has had so many bacterias growths in the last 3yrs. She has had sweat tests 1 slightly high reading 63 border line and 1 inclusive. She had 29 antibiotics in the 3yrs and 1 she has been on 4 a year and a half everyday.the doctors can not tell me why she has all these growths.they tell me she's fascinating.I have got all her reports and names of all the bacteria she has growing.can anyone help and made tell me why my 9 yr daughter has these nasty bugs.





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My little sister is 21 and has cf. She is on the lung transplant list at the moment. As her big brother of 23 is there anyway of me swapping one of my lungs for one of hers ?. I love her to bits and have seen her been such a happy and lively girl when she was young, now she is always on oxygen. she has as well as cf, diabetes, asthma, bones are thin and so much more, but stills smiles.





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I have sf I am 26yrs looking to get married in 6months I would like to start laser hair removal treatment would this be a problem for me . Will it be a contra indication for this treatment and will my hair growth be reduce . Dose it depend on my medication I am taking ?





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Content supplied by NHS Choices

Cystic fibrosis is a common inherited condition that affects over 8,000 children and young adults in the UK. Five babies are born with the condition every week. Cystic fibrosis is a genetic disorder in which internal bodily secretions become thick and sticky, and hinder the function of certain organs, such as the lungs and digestive system. Read More »

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