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Conditions

Endometriosis

Endometriosis

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Around 2 million women in the UK suffer from endometriosis, and although usually diagnosed between the ages of 25 and 40, teenagers can suffer as well. Endometriosis is when cells from the lining of the womb end up elsewhere in the reproductive or digestive system. These cells thicken and bleed just like in the vagina, and on a similar cycle! However, the key problem lies with these cells having no way of leaving the body, therefore causing pain and swelling. Although there is no cure, symptoms can be managed, but if left unchecked there may be difficulty in getting pregnant, and in extreme cases it can lead to organs fusing together. Not nice…

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I had a severe case of endometriosis when I was 29yrs,resulted in having an emergency full hysterectomy. Following repair for many years of adhesions from the operation and endometriosis scarring. I'm 52yrs now and after recently having my gallbladder removed the surgeon found inflamed adhesions yet again which are the culprit of my secondary pain. I visited my GP yesterday and he is keeping me on Morphine tablets and orimorph. He isn't sure whether surgery will correct this or make it worse. Possibly referring me back to gyne again. Would be grateful for any suggestions please.





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I was diagnosed with pcos at around 20 after 5 years of being told I was playing on it and it was in my head or IBS. 2 year ago i was in so much pain I got admitted twice into hospital but toldn was in my head and discharged with pain releif. This did not help and kept going back to the doctors who sent me for a laparoscopy which revealed I also had endotrimosis (however its spelt) which was minor next to my colon!!! Since I have uncontrolled bowel movements and pains no periods for over 5 years naturally I have to have northerine 4 times a year. Had recent colonscopy and now being told that it's IBS caising this!!! Why do I feel like I'm getting no where! I want to be able to have children and all get told is lose weight that will help! I havenlost weight but still no periods and no further update. What can I do next need some sort of help and get things in control and treatment without the contraception pill





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I am 19 and I have really bad period pains everyday even when I'm not on. I have fits with them pass out burn my belly off hot water bottles, can be sick can't stand with them I also take co codamol everyday because of them. It's really getting me down and also scared because of the fits I have with them. Iv had the pain for about 5 years now and it's only got worse. I'v tired everything to help but I am on a waiting list for a scan but can take up to 6 months and don't think I can deal with this pain for another 6 months. Would love to know if anyone as got any other options for me to deal with the pains as I want to stop the co codamol, iv told the doctor and they just keep prescribing me with them. Iv got to the point where I would have a operation to take my whole womb away but as I'm only 19 that can't be done and that would mean I wouldn't be able to have children. It's really getting me down and would love some advise.





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Hello , I have had serve abdo pain around my womb area as well as in my pelvis and back for over a month, my stomach has been distended and I am contenstly needing to empty my bladder. My period have always been heavy but this month was particularly bad with larger clots. I have seen my gp a few times I have had pregnany text , urine dip, blood test and uss all normal. I returned to my gp had a smear (waiting results)and sti check again normal. I asked about endometrious and he just shrugged it off and told me its just unspecific pain and it may go away in a couple of weeks. do i go back and press for another gynae appointment ? I just feel I have been left to get on with unexplained pain and feeling so uncomfortable am I right to think it maybe this condition ?





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You should get a second opinion. I've had endometriosis since I was 15 (now 30) and I ended up in the hospital because my pain was so bad that I could barley walk.... they removed my apendix when I went home after surgery I was still in soooooo much pain I knew something was not right I went back to the ER only thing they would give me was more pain meds, finally went to a different hospital got refereed to a specialist and started getting treated. I've had so many surgeries to remove scaring to releave pain from time to time but they have also helped me concive.

Definitely go back and push on gynae, it was a nightmare for me. I have had this since I was 15 also and was only diagnosed when I was 24. I had to have a diagnostic laparoscopy which they went in and lazered what they could away. I was informed there was high risk I may not be able to get pregnant and then 3 years down the line I had my son, but since birth for the past 7 months now all I have done is bleed and its just getting worse so looks like it's back to gynae for me. I really hope you get it sorted and they Stop fobbing you off hun, it is so painful. My endo gets so bad I sweat feel like I'm about to pass out and cant stand or move. People who are uneducated about this disease look at us gone out like we are over dramatising the situation we are on!!! Makes me so frustrated and mad, especially when it is the doctors u seek medical attention from! GO BACK AND DEMAND :)

I have pain very low down on my right side of my lower tummy and started bleeding again after 10 days. I had two lots of antibiotics back in Dec and noticed a strong odour from my vagina after I took STI tests and they have come back clear and started a course of canes balance and the odour has gone but I have now started bleeding again and have a pain low down and I don't feel normal inside feels like there is something on my right side. Any suggestions?





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I am 44 years old lady. I was diagnosed having endometriosis disease only in 2012 after struggling with my periods since I started when I was 14 years old. I am blessed and fortunate that I have been blessed with 3 kids age range 21 16 & 11. Doctors have asking me how did I get that correct but I am not certain since I never used any form of contraception then till to date. I have banked school every month with this torture without medical explanation until the year of fate in 2012. I have been on Zoledax drug for six months and after a year not seeing any difference I went for ablation in 2013. The flow of the periods have reduced until recently in June 2015 when I started experiencing severe pains during the ovulation and periods pains. 3 days ago I have been put on Visanne tablets but now I am starting to experience sleepless nights as I am writing this communication and I am not certain how are this tablets going to assist. I am hoping and praying as my last option it would be histrectomy with the removal of ovaries which I am scared to do. But if that is the only option to completely heal and free me I will gladly succumb to it. I salute andrrespect all the womenwho endure this pains on a monthly basis and women and doctors who are going extra mile to teach others about the disease. In Africa it is still taboo to talk about such and when I talk about the disease with my African women the majority of them they have sarcastic comments or one could tell that I am boring them with my sob story. All I can say its never easy as on a monthly basis I am awol from work due to pains





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Can someone please answer a question for me. I have been suffering for years with excruciating pain in my womb area and left side for years. After a lot of insisting I have seen a gynae for a laparoscopy in Nov last year. I have since been told it is endometriosis and am currently having hormone injections in my stomach to turn my ovaries off and no period, great! They have done this to see if it is endometriosis or not, even though they have seen the evidence during the laparoscopy. Saw a different gynae last wk and he told me because I'mstill getting some pain it's actually IBS???? I know the pains I had before the injections were not IBS and he's basically brushed me away and that's that. Is anyone else having lupron injections and experiencing pain still? I am at a loss what to do other than pay to see a private gynae, as I feel so let down and deflated. Cheers NHS!





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I was the exact same and I got laser treatment done about a year ago and it's the best thing ever I felt normal and wasn't dreading my period I would maby speak to your doctor to see if you could get it done I would recommend it x

I am 23 and started my period when i was 11 the pain just seems to be getting worse to the point it wakes me up im being sick i cant go to the toilet and it hurts to have sex anf i often have to take time out of work as i cant move ive have been to the doctors about it plenty of times and they keep putting me back on mafanimic acid and not doing anything else about it i dont know what else i can do





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Hi I have been diagnosed with polycystic ovaries syndrome in the last week and my doctor is concerned I have endometriosis to as my mother had it really bad. I started my periods at age 7 as my mother did and have really bad and irregular periods. Does anyone know if you can have both? and if so what happens next after diagnosis? I am 20 years old and wanting a family and worried that with both conditions I will not be able to have a baby.





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Can someone please give me more information on cervical endometriosis and rectovaginal endometriosis,I have been diagnosed with both and im currently having hormones injections to help with this but I'm still in alot of pain on a day to bases, no one seems to know much about these types of endometriosis so I'm sort of left thinking all sorts of things please help me. Thank you Rachael





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Content supplied by NHS Choices

Endometriosis is a common condition in which small pieces of the womb lining (the endometrium) are found outside the womb. This could be in the fallopian tubes, ovaries, bladder, bowel, vagina or rectum. Read More »

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