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Conditions

Lyme Disease

Lyme disease can be passed on to humans by tick bites. Ticks are small parasites, often found in woodland, which feed off the blood of mammals. They are normally red-brown colour, but become paler as they feed. The most common symptom of Lyme disease is a red circular rash that looks like a bull’s eye which develops around the bite mark. Other symptoms include tiredness, fever and blurred vision.

When the infected tick bites it usually releases the bacteria after a period of 36 hours, though, in some cases, transmission can occur prior to 24 hours. Though tick bites are hard to notice because the bite does not cause pain, remove a tick as soon as you spot it to prevent infection. This is relatively easy to do with a pair of tweezers: steadily pull the tick away from the skin avoiding squeezing or twisting the tick. It is best to remove all of the tick, but if the mouth parts remain in the skin, don’t be alarmed. Though this can cause local infection, you are not at risk of Lyme disease when the tick’s body is not attached to the mouth part. For a detailed description of the best method to remove ticks, universally accepted by all disease prevention authorities, visit: BADA-UK. It is important to remove ticks correctly, as incorrect tick-removal techniques can increase the risks of disease transmission at any time by inducing regurgitation of the tick’s saliva and gut contents.

If Lyme disease is diagnosed in its early stages, within the first 30 days, it can be treated successfully with 2 – 3 week course of antibiotics. Diagnosis is made through two blood tests which look for antibodies fighting the bacteria in the blood. If the disease is left untreated for many months it can lead to arthritis, nervous system problems and meningitis. So it is very important to see a GP if you suspect you have been bitten.

The most common symptom of Lyme disease is the Erythema Migrans (Bull’s-eye rash), but not all patients present with this. In fact, of the last available figures for laboratory-confirmed cases, only 32% presented with the rash. As sometimes rashes can be hidden under body hair or hair on the scalp, it is important that anyone who develops flu-like symptoms or sudden ill health following a tick bite should visit their doctor for advice.

You can reduce the risk of being bitten by wearing long sleeved clothing, tucking trousers into socks, and wearing hats during any activity in woodland or heathland areas. Insect repellent can also be used as a deterrent, and make sure to check children thoroughly for any ticks after any countryside activity.

For more information on Lyme disease, visit the following sites:
BADA-UK
Lyme Disease Action
British Lyme Disease Foundation

What the Men in White Coats Say

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Please can anyone help me I am now beyond desperate. I had lymes disease in June 2010, I fortunately had the treatment immediately with antibiotics which seemed to clear it up and after having been very ill and lost about 2 stone in weight i thought id fully recovered. Following this major illness in 2010, I believe I have never been right since- i tire more easily and seem to have a weakened immune system. More concerning is the fact that in the last 1 year from March 2015 (where I have developed eustaian tube disorder in the middle ear which the problems are now ongoing for over a year) through to present (May 2016). I am also getting other illnesses that are odd/unusual and within a close space of each other and at least once a month falls nearly on the same week each month. For example: Labrynthitis for two weeks, then two weeks later flu and deafness/ear disorder flared up, then two weeks later i now have chicken pox. In-between all these more serious illnesses i have had vomiting bugs also but relatively normal type bugs. My GP has put the illnesses down to a change in my environment as i started a new job in september 2015, but i feel it is much more serious than that and others around me in my office are not getting any of the illnesses i am experiencing. I am desperate and at the point of suicide with my health, please can anyone help as my GP is not taking this seriously despite repeated visits and ENT specialist appointments and me telling them my concerns. I am begging for any support, help or advice on how to tackle this :(





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I was bitten by a tick in spring of 2013, I felt a little sharp scratch feeling on my upper left inner thigh and scratched it over my jeans, the next day I was in the bath and saw the tick. I removed it and thought nothing more of it. Last 6 months or so have been having regular headaches, muscle twitches, stabbing sensations under skin and in bones, little rashes popping up, floaty things in my eyes. Had a blood sample taken yesterday by the NHS for Lyme disease, does this sound likely to be Lyme disease to anybody here?





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I am a mother, who's son has lyme disease. It's heartbreaking to watch him struggle each day with constant dizziness, blurry vision, vertigo, extreme headaches, difficulty processing information, tinnitus, and many other symptoms. My son was tested in Germany, and America, and the results show positive for lyme disease, however, the NHS test came back negative, and they refuse to treat him. The NHS need to wake up, and stop relying on their inaccurate tests.





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I live in SW Scotland. I was bitten by a tick over two years ago. I had all the initial symptoms as listed on the NHS website. Bull's eye rash; stiff neck; bones in agony; difficulty concentrating to the extent I could not spell properly and sleeping for days on end; etc. I have had two blood tests for Lyme disease both of which were negative. I suffer from chronic fatigue;painful joints and a feeling of general malaise. Doctors refuse to even contemplate that I may have, or have had Lyme disease. They, I have seen seven GP's in an attempt to be treated, rely entirely on the results of the blood tests and will not discuss Lyme as a possibility. I know of five other people in Dumfries and Galloway in similar situation to myself all of whom have given up on seeing their GP because of the distress it causes them. I can make no sense of this situation.





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Where to go to get help in london





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Hi Keffi, There is a (closed) UK Lyme Discussion Group page on Face Book (FB) with a huge Files section, very experienced & knowledgable support & help. First have a pure (organic) alkalising diet to give your body the best chance. Hope you fully recover.

Hello, I have been looking for a LLMD in the UK for months as I have some positive tests for Lyme done in Germany but no doctor will treat me. I would really appreciate it if you could recommend me any doctors here as my health keep getting worse and I cannot even get my degree. This is so hard. My blessings to all of you. Thank you so much.





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There are only 2 here. One in Winchester and the other in Hemel Hempstead in Hertfordshire. Hope that helps. Wish you well

If you message ILADS.org they will send you a list of LLMD,s in the UK. The Winchester clinic was shut down due to lack of funding but it was headed by Dr Matthew Dryden and Ann Cruickshank. Good Luck

Please does anyone know of a specialist in the north of England. I had a bullseye rash bout 6 years ago, after 3-4 years of pain in joints I pursuaded GP to do a Lymes test that came back negative. However I now have swollen joints, constant tiredness and my hearing is reduced to the point of needing hearing aids, I am 52 years old. I need to go private as the GP won't do anything else





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I am the same my doctor won't do the test I have bad joint pain no strength in my lower body can't see well and can't remember any thing I was bitten with a tic 8years ago and don't now no wot todo about it

I've had Lyme's since April 2008. The tick came from a friends dog who suffered its self from Lymes & unfortunately he died last year of a heart attack!!! I now cannot face another doctor or speak about it to loved ones, so we suffer alone but I am a strong person who keeps telling myself its fake! Not real!!! & I soldier on... My daily medicine is taken from something I found on the net called 'The salt & Vit C Protocol' A Lyme victim himself, he has done a lot of research & it REALLY helps if taken properly! I know because I have given myself breaks from it over the last 7 years & regretted it afterwards !!! The pain I feel now is .....continuous!!! But I get up every morning & work! Because if I sit its unbearable!!! I only use Himalayan pink salt for everything!! Throw away the white table salt. Read the book!!! (Amazon) Its all I have!! Where are these doctors who care for the sick??? We can't all be liars!!!





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In my opinion the best place to go to see a Lyme specialist is the winchester travel clinic. It's not the North of England I know, but Dr Dryden is one of the leading specialists in his field. I'm going there tomorrow to have full Chronic Lyme panel blood test done. In desperation I am paying to travel there and to have the test. It's not cheap but I can't put a price on my health and there has to be a reason why I am becoming slowly debilitated. I simply can't believe that the fact it all started after a tick bite is a coincidence. I have also battled with my local GP who has flatly refused to investigate the possibility of Lymes any further than the one ELISA test that they have done (which came back negative, but its fairly common knowledge how inaccurate that test is). I have also been told that it's 'all in my head' to the point that I am even doubting if taking the test is the right thing to do :( We should not have to resort to expensive private clinics but sadly the NHS is so poorly educated about Lymes (or is it a reluctance to spend NHS cash on more expensive tests?) that it remains the only option to those of us who think we may be Lymes sufferers. Good luck to all of you who are pursuing a diagnosis.

Dear Barbara, I no how you feel iv had lymes 9 years. It went untreated.im now in a wheelchair with shower toilet aids. need help wash hair ext cant lift mug tea arms go limp weak numb as does my legs.iv around 35 syptomscAN YOU LOOK YP DOCTOR COWDEN CPWDENS PLAN ILADS 2012. THIS PLAN HELPS AND CURES LYMES PATIENTS IT KILLES LYMES AND TICK DISEASES 80PERCENT OF PEOPLE VASTY IMPROVES /CURES THERE SYPTOMS YOU COYLD LOOK UP WELLONE CLINIC IN ENGLAND LYMES CLINIC, FOR ANTIBIOTC TREATMENT.THEY GIVE LONFGER COURCES YOU NEED TREATMENT. THE INTERNET IS FULL OF AMERICANS RECOVERIN G ON COWDENS PLAN, ONLY PEOPLE WHO RECOVER IS ONES THAT ACT THE NHS WILL NOT HELP THEY RESFUSE TO TREAT ANY PRIVATE TEST RESULTS IV HAD 4 NHS LYMES POSITVES, BUT IT WAS 4 YEARS BEGFORE MY HIDDEN LAB REPORTS WERE FOUND ARE YOU AWARE TICKS PASS BABASIA/RICKETSIA/ANAPLASMA/EHRLICHIA/BARTONELA/COXIELA/MYCOPLASMA PHEMONIA/AND VIRUSUS? YOU DONT JUST CATCH LYMES BUT SONE OF THE ABOVE COWDENS PLAN GET RID OF PARASITES.LYMES AND ALL DISEAZES IT IS MORE EFFECTIVE SAMENTO AND BANDEROL THAN DOXYCILAN YOU NEED TO KILL THE BACTERIA AND PARASITES AND DETOX AND REPAIR RHE BODYS SYSTEMS PLEASE GO ONLINE LOOK UP DR COWDEN ALSO ILADS WEBSITE take care kind regards elaine ,

Can anybody tell me of a Lyme specialist in the north of england. I was bitten in 2013 and I have become quite ill will full lyme symptoms. I had one neg lyme test after much fuss and shouting and now my GP seems to think he doesn't need to do anything else for me. Help





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Hi Nicola- I too would be interested to know of anyone in the North of England. I have not been diagnosed with Lyme Disease but I suspect I may have it after much reading and having had the bullseye rash on my leg. I am reluctant to approach my GP who I fear will write me off as someone who just googles symptoms!

I've had the same problem. Bitten in 2013 and ended up in hospital after 8 weeks. The special diseases consultant told me I hadn't been to India so I didn't have Lyme and that I'd imagined most of my symptoms. Now I have a secondary rash after two years and the same symptoms. There's a Lyme disease clinic in Winchester but does anyone know of a specialist in the north? I'd love to speak to someone who will actually listen to me.

In my experience you are unlikely to find a Lyme Literate doctor in the UK. Search online and you will find several in the USA. Many offer Skype appointments - that's how I consult mine.

Please note that Erythyma multiform has a very similar appearance with red patches that looks like a bullseye. Need to get to hospital quickly as usually the patient could also have swelling of the tongue and usually treated in hospital with adrenaline. I telephoned the hospital and described the conditions and I drove my mother in the early hours of the morning to hospital and she was rushed in, just lucky i knew what to do and I saved my mothers life due to quick actions. Two weeks later due to immune system run down shingles had appeared and again rushed to hospital for treatment, this is not something you go to a medical centre where there could be pregnant women as it is contagious. Also you need to be aware when immune system is down after such an illness you could get hit with shingles and be aware of the symptoms and again rush to hospital to get anti-viral medications to stop the spread of the infection as shingles can occur anywhere on your body and be mindful of the face especially as it can affect vision so urgency for anti viral is imperative especially regarding a shingles attack.





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Content supplied by NHS Choices

Lyme disease is a bacterial infection that is spread to human by infected ticks. Ticks are small, spider-shaped insects that feed on the blood of mammals, including humans. Read More »

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