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Conditions

Pituitary Tumour

Pituitary Tumour

A pituitary gland is a small, pea-sized gland that sits just next to the brain stem. They are normally benign and slow growing, and they rarely spread to other parts of the body. They cause a range of symptoms depending on the hormone affected – including abnormal quantities of oestrogen and testosterone. They are often only diagnosed as a result of having eliminated all other possibilities. Tumours will normally be diagnosed with either a CT scan or an MRI scan to spot the tumour in the brain. After that the tumour must be removed surgically (followed by a course of radiotherapy) or medication must be administered to block the tumour from releasing certain hormones.

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I seem to have all the symptoms of shortens syndrome but have also been told I may have a tumour on my pituitary gland. I went for an MRI but panicked and couldn't go through it. Would a prolactin test help? I have also heard that a drug called cabergoline could reduce the tumour without surgery. Is this correct





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I mean Sjögren's syndrome. Dry mouth, eyes throat difficulty in swallowing, difficulty sleeping. Is this related to macro pituitary tumour

Hi Adam, In 2012 , my prolactin level was 60,000. Today it is 386 but in parallels to reducing my prolactin, I have been working on trying to increase my testosterone levels which have been lower than average. Has anyone also been checking their testosterone levels and can someOne also confirm whether their testosterone levels went back to normal once the prolactin levels went back to normal?





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Hi. I had a level of 706 taken after eating all day at 3pm. I then had another the next day where I fasted and it was done at mid day. This level was 268. About 5 days later I had another at mid day and fasted....result 312. Can I relax now?





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Hi, I'm Rachel and I am 16 years old. I was diagnosed with a macro pituitary tumor (prolactinoma) at 15. Since then, I've been taking cabergoline and it has decreased my tumor size to almost nothing and I just received that my prolactin levels are at 17 (normal). However, I am not at the normal puberty levels as most of the other girls my age. I would rather have surgery once and be over with it, but I don't think that's an option because the medication is working well. Should I mention surgery to my doctor or ask them if they can do anything about the puberty level?





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I have suffered with obesity, low energy levels, no motivation, severe depression, social phobia with panic attacks, extreme gynocomastia and micropenis for almost 40 years now. I cope with my depression by self cutting with a scalpel everyday. I am currently 49. By chance I stumbled upon Human Growth Hormone and self medicated for 18 days whilst on holidays in Thailand. My depression and social phobia went away. I had energy and motivation and even started working for the first time in years. I was sleeping better and I lost 15kg in 18 days. I could not believe I stumbled onto something that made me feel so good after being on over 50 types of antidepressant and antipsychotic medications that did nothing. My Doctor could not believe how different I was and insisted on doing some tests as she thought HGH should not have had such a dramatic effect on me. I was found to have high Prolactin levels and two pituitary tumors. I saw 3 Endocrinologists. 2 Endo's told me that there was nothing they could do to help me because surgery was too dangerous and may not give any improvement and in Australia they are not allowed to prescribe HGH except for children with dwarfism. The 3rd Endo told me that if I ever want to have any quality of life then I should move to Thailand and self medicate. I can not afford to move to Thailand so now Doctors just get annoyed when I keep telling them how bad I feel and they just tell me to continue to self harm to cope with my depression as there is nothing they can do.





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My name is trav I'm a male age 28. I have had white milky looking discharge from both of my chest since I was 17 years old. My doctor always said because I was over weight.. and every doctor after just lol and said your over weight that all. Well almost 2 months ago I told my new doctor and even showed her and it made her very worried she ran a blood test to test prolactin levels and testosterone levels my prolactin was 325mg and my t levels was 2.1mg my a1c is 10.0 she was very worried and sent me to a endo but i just got my mri back and I'm waiting but i looked at the pictures of it n it look bigger than normal.. im really worried about this... are there any other males that have experience this???





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Hi Trav, yes I am a man who has experienced similar symptoms too. Back in 2007 when I was 40 my Prolactin levels were very high too. I had some tiny white spots on the surface of my arms and I had a white secretion from my nipples too. I subsequently had an MRI scan which revealed that I had an enlarged pituitary gland and I was referred to an endocrinologist who prescribed that I took Cabergoline tablets which have worked for me. As a result my Prolactin levels are now back down to normal levels and my symptoms have gone. I appreciate that everyone is different and you might need different treatment to me. Still I hope it helps to know that there are other people who have also had similar symptoms which have been eliminated following successful treatment by the amazing people who work in the NHS.

Pituitary Tumour; at the of day the operation do you need a foley catheter put in to your bladder.im having this operation soon. and im scared can someone help me please





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I had a pituitary tumour removed new years eve at the queen Elizabeth. I didn't have a catheter fitted was out of hospital in 4 days.

I have been diagnosed with high prolactin since July but no further forward to what is going on. Me and my partner are trying for baby but I'm 2 months late with my period but taken pregnacy tests and All are showing negative. Also took ovulation tests and spent a fortune on them none are saying I'm ovulation. Anyone know what I can do any help is deeply appreciated





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Hi ive been dignosed with high prolactin and eastrogen since october 2014 ive been for numerous blood tests which showed the hormone that carries both through the bloodstream is low i still produce a lot of breast milk. The dr said he recons ive had this problem since my youngest was born 3 and a half years ago i have an appointment with the nurse for more blood tests this week and the dr has told me if my results are still the same i will be refferred to an endocronologist, i first thought i might be pregnant again as i hadnt had a period in 7 months and like yourself all pregnancy tests were negative i also suffer from iih, the doctor has stated that all the hormones known as the sex hormones group are affected in my case, it would be well worth your time to ask your doctor to reffer you to an endocronologist especially if you are trying for a baby as it may have something to do with why you havent conceived yet dont know if any of this helps.

Hello guys my name is Adam. My doctor phoned me last night and informed me that my prolactin level has come back as 19,000! Which has left me extremely worried considering I have not read of anyone having such high levels. Has anyone ever known of such high levels before? I am waiting now for the endocrinologist to contact to discuss my options further.





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Hi Adam, I hope you have already had a diagnosis and treatment for your high prolactin levels back in October 2014, as I have only just read your post. I was also diagnosed with high prolactin levels over 12,000 if I remember correctly back in 2007 when I was 40. My prolactin levels are now back down to normal, following the excellent treatment I have received from everyone in the NHS, thanks. At the time I was suffering from problems with my vision and my optician tested my eyes and referred me for an MRI scan. The scan revealed that I had a benign tumour on my pituitary gland. My endocrinologist prescribed that I take Cabergoline tablets to treat my Macroprolactinoma (which was caused by the benign tumour on my pituitary gland). The Cabergoline tablets have subsequently reduced the size of the tumour which has improved my vision. As I said my Prolactin levels have returned back to normal now too. I also experienced other worrying symptoms at the time including small raised white spots on my arms and a white secretion from my nipple. At the time I was very worried about what was happening to my body before I was diagnosed. Fortunately when my Prolactin levels were reduced these other symptoms stopped too. I appreciate that every case is different and the reason for your high Prolactin levels might be different to mine, so you might need different treatment to me. I just hope that my story helps you to get through what might be a worrying time for you. Good luck Adam, I hope that you manage to get your Prolactin levels back down too.

Hi my wife has all the above symptoms , including back pain and mystery bruising after 3 weeks in 2 hospitals she still remains a mystery . They think pituitary gland is enlarged and has stopped adrenal gland working which has caused internal bleeding ( bruising goes kidney to kidney across back ) they said they have never expericiend this , hopefully go for MRI soon to get results , but think it could be outrun try gland causing all symptoms .





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