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Conditions

Poland's Syndrome

Anyone remember Jeremy Beadle’s unusually small right hand? Well that was a result of the rare birth defect known as Poland’s syndrome. Poland’s syndrome is a rare malformation, present from birth that only affects one side of the body, more commonly the right side. The extent to which, and the way in which, Poland’s syndrome manifests itself can vary greatly but its main symptom is the lack of, or underdevelopment of, a chest muscle. Furthermore the hand on the affected side of the body will often be webbed, may be smaller than average and in some cases missing some fingers entirely. The exact cause isn’t known, but it’s thought to be to do with a change in blood flow at around week 7 during pregnancy. Whilst some of the problems, such as the webbed hand, are sorted out in the first few years of childhood, further adjustments are left until after puberty to allow natural growth to finish. Bioengineered cartilage is sometimes fitted to give the chest a more normal appearance and breast reconstruction may be considered in girls after all natural development has occurred. Poland’s syndrome correction can be a long and gruelling process but those afflicted can lead completely normal, healthy lives without corrective surgery.

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Just in case it might help anyone....x http://pip-uk.org/





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I think my 3yr old daughter might have PS on her right upper chest. I noticed that something wasn't symmetrical in January so went and saw a paediatric consultant who said that her pectoral major muscle was absent and wanted to refer her to a consultant surgeon so a full diagnosis hasn't been given. Understandably my wife and I are upset and apprehensive what the future holds for her both physically and psychologically. So I'm trying to find out as much as possible to help her and us cope with what will be an emotional journey. Any help will be gratefully received.





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At 32 I have Poland Syndrome and am grateful for it. It could always have been worse and I'm sure there are far worse cases of many different deformities and abnormalities. Like anything it is not always easy and the prejudice perception of other's is where the challenge lies, at times when I'm down or stressed I have been guilty of letting it affect myself esteem and for that I am sorry but not for having Poland Syndrome. Everyone has a gift for you and it will present in one way or another as every living thing has the same right to be here as the rest of us. It is your choice to surround yourself with those who are supportive of your weakness and encourage your strengths. Ask any successful person and they will tell you that they achieved so much by forgetting about their weaknesses and focusing on their strengths. Love, love, love you, love me, love you...





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Nice one, Simon...

Can someone please help me find out how to get help in paying for reconstruction? 2 seperate insurances have denied me, and i cant afford it on my own. I'm tired of living with this.





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I'm 14 and I have PS how old does he have to be to get plastic surgery.





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I was told when I had finished growing so I was 19 yrs old.... I only have left breast and rib affected.... they used a silicone breast implant

Hi, I am 13 and I have been going for annual checkups about my PS. Generally, the surgeons try to wait as long as possible for surgery but they insert a saline solution in a bag at first to they can get the right shape and size of the breast. After a couple of years they will do another operation to implant a silicone breast of which is as accurate as it can be to your other breast. Hope this helps x

My daughter was diagnosed when she was about 4 years old. She was rushed to the hospital due to a fall and the doctor treating her noticed that the left side of her chest was slightly caved in. After the x-ray results came back due to her fall, the doctor told us that the muscle on her left side was not fully developed. Therefore, it was PS he told us that she could possibly live a normal life but not to allow her to join any physical sport. He also stated that through her growing years until she reached adulthood, she would have to go through at least 3 surgeries. She is now 32 has led a normal life with no problems and has 4 children. The doctor told us that if we saw that she needed surgeries to have her treated otherwise, let her live a normal life.





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Hi, I'm the mother of an 8 year old son who has PS. He has his pectoral muscle and a few ribs missing but his arm and hand seem to be fine.He is being seen by a pediatrician who said that his chest/ upper body shape might worsen drastically during puberty years. He is being monitored for possible future corrective surgery. Although we go to hospital visits a couple of times a year, my son seems he is blissfully unaware of his condition. I feel I'm not prepared for the changes that will probably happen during puberty. Should I discuss his condition now or wait a bit until he is older? I don't want him to feel different about himself but at the same time I don't want him to be caught unawares when some kid makes a cruel remark about him. What are your experiences/ changes you noticed during puberty? What should we expect? Did the condition actually restrict your activities/ sports? Did anyone go through with corrective surgery...how did it go?Looking back, do you wish your parents behaved/ made different decisions regarding your condition/ surgery/ to support you? I'd appreciate your opinions/perspectives. I don't know anyone else with Poland Syndrome , and I'm a divorced mum with no support from my ex so I'm pretty much making decisions on my own based only on the doctors perspectives( and they don't always agree either).





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Hi I am 18 I have PS without the hand/ feet webbing, I never got the surgery and I don't regret it I have grown up and nothing has happened to me to diminish my sporting endeavours

You definitely should explain to him what's this all about. I grew up with PS (absence of pectoral muscles on right side plus absence of some ribs and right shoulder atrophy). Could never go to a pool, totally uncomfortable on the beach. I found that if my parents had faced the problem, talked about this i could have had a normal life. What you're saying is exactly what happened to me, as I entered puberty I didn't knew what was wrong with me, why my to sides where different, but I knew something was wrong.

My son is 11 and has just been diagnosed with ps in his right chest





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My 4 year old son was diagnosed with PS. He is missing all or part of his right pectoral muscle and we've recently noticed some lack of strength in his upper body. Has anyone else experienced this lack of strength? Does Physical therapy help with this?





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Hi my son is 14 months old and we are currently waiting to find out if he has PS. Was this something quickly diagnosed for your son. Thanks x

Yes, the diagnosis was pretty quick. We originally only noticed the small hand size (on the right side only) and some webbing between his fingers so the doctor first called it something else. When he was 18 months and went back for another check up, we had also noticed the difference in his chest on the right side. These symptoms were really all he needed to make the diagnosis. He said he could tell by looking at him that his pectoral muscle was missing. We haven't had any sort of scan to see which muscles are there or aren't there...but wondering if it'd be helpful to find that out? Hope you get some answers soon! What tests are they doing that are taking a while?

He only has the missing muscle that I have noticed so far his nipple is very underdeveloped and you can feel there is no muscle across the left side of his chest. I took him back to the doctors yesterday and she sent me home to wait as she needs to speak to a pediatrician as she has never seen anything like this before! It's all a bit in the air at the moment! Thanks so much for getting back to me! I am glad there isn't anything to invasive needed I hate the idea of him having to have all tests x

I am 21 and I haven't worn a swim suit since I hit puberty at 11. I am completely flat on my right side and my mom did mention that I had slightly webbed fingers as a child. I haven't brought this up to my doctor but I'm really thinking about it because this has had such a profound impact on my self esteem.





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Don't let this condition define who you are. Show off your good assets and work round the other bits. I'm not comfortable in a swim suit but I have adapted so as not to miss out in life by buying a halterneck tank top type which I added extra padding in. Do sew the padding in as I found out it moves in the water and you end up with a wonky looking boob (awkward). I now look at myself as special, not different and I remind my husband how lucky he is to have such a special person in his life (me).

go to the gym and dont get an implant. I have ps in my left chest. I just made up for the difference by focusing on my back and shoulders. if you dont think about it, it isnt an issue. the strength training made me feel about better about myself. implant is not worth the risk


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