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Conditions

Premenstrual Dysphoric Disorder

Premenstrual Dysphoric Disorder Injection

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Premenstrual syndrome (PMS) is something that many women are all too familiar with, but 1 in 20 women experience symptoms so severe that it affects their everyday lives. This is known as premenstrual dysphoric disorder (PMDD). Women with PMDD experience the same symptoms as PMS but at a much higher intensity along with feelings of hopelessness, depression, anger, anxiety, low self-esteem and tension. PMDD can also decrease interest in everyday actives and affect sleeping patterns.

PMDD can be particularly hard to deal with as it often not only affects the sufferer, but also those people around them who have to deal with these extreme mood swings every month. Therefore it is important for the sufferer to talk to her family and friends so that they understand the condition.

There is treatment available for PMDD but it is not the case that one size fits all. Often a sufferer will have to try several treatments before finding the one that works best for them. These treatments include anti-inflammatory drugs, oral contraceptives and hormone treatment. In very extreme circumstances a hysterectomy may be advised, but this is only necessary when PMDD is very severe and when all other treatments have failed.

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Hey ladies, gosh I was just checking my hotmail account and the reply to my comment on pmmd from a lady called Mary. For some reason I thought her reply,as well as my comment on this page was only a few months ago. Would you believe reply dated 25 April 2015, yes almost 1 year ago. Where has this year been. Im still undiagnosed due to moving around, having some mental health illnesses I needed to stabilise first and I have to say I have. I definitely have PMDD but I am so scared of finally getting a diagnosis. Does this sound mad? I guess, just thinking out loud now, Im really scared Nick Panay or Professor Studd, whoever I go and see, wont diagnose me because for over 20years, no one has listened to me when Ive told them ie professionals, mental health professionals there's something really wrong with me, other than mentally. I just dont "feel right". Since finding out about PMDD , after thinking I had Bipolar, even giving my blood for research to Cardiff University, Professor Craddock, Bipolar research whom after filling a Bipolar length questionnaire out, said I had Bipolar, Psychiatrists looking at my paperwork said no, I was a "complex" patient and didnt know where to start. Well I did, finally, PMDD. Ive, now, almost 5yrs of paperwork, research on myself which clearly shows Im suffering from pmdd. However, Im going to be very honest here, Ive also been using cocaine for 25years. As said Ive some mental health illnesses from PTSD, self harming, anxiety disorder, now Drug Psychosis (Nov 2014) which I do believe is also slightly menstrual psychosis which Ive now read about but I emailed the professor, Ian Brockington from Action for Menstrual Psychosis who said after reading my paperwork I sent him in November 2015, he didnt think I had any form of menstrual psychosis but it definitely looked like "severe pms". However, he didnt clarify "severe pms" IS PMDD!! Anyhow, Ive his email stating this whihc I guess will help me gve to a new GP. My experience of GPs is bad, the last one, being my Dad's GP surgery, after I moved back home from sheffield to kingston, surrey after 15yrs in 2014. My, then new GP, after purely only asking for a new Mental Health referral from Sheffield Mental Health Team I was under to a new one, asI needed to get on a Psychiatrist waiting list to get diagnoised officially, as had been on a waiting list in Sheffield for over a year before moving and to get a referral to a Gynceologist. Would you believe his reply was.. and that day I was severely pms/pmdd'ing as well as had been self harming, which I showed him. His reply to my requests. Why did I want to see a Psychiatrist, just to be labelled and he said he could not do the two things I asked as he was only allowed to do 1 referral at a time. REALLY??! On that breath, I took a deep one, like my wonderful Sheffield Mental Health CPN and wonderfful Sheffield Mindfulness Kundalini Yoga Therapy teacher had taught me, I breasthed in, counted to 10 and walked out or god help him, my anger issues I had bad then, I would have thumbed him one. Not long after, I endedup in A&E and diagnosed with Drug Psychosis as had a very bad episode, myself actually calling the ambulance ! Anyway over a year on, Im doing real good but as said living here and there as Ive had to detach myself from my Father (another long story - adopted father may I add !) and Im settled now and ready to register with a new Gp in Kent. I live with a good friend whose Bipolar I and anger outbursts and recently now Osteoporosis. She said her mental healt team are wonderful and her GP so.. its time but also is it time to sort the cocaine issue but my sheffield CPN agreed with me I dont have a serious problem. I actualy have been using cocaine mainly on my ovulation days and pms days as it did/does control my mood and some physicaly symptoms. Sorry for the long waffle but any thoughts, anyone? I so need to get diagnosed but am scarred and scarred all a GP will see is the cocaine. Im going to startattending CA as there is one local.





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I too have severe PMS and it is also destroying my life. On my ovulation days I feel so tired and depressed it's like I am a complete and utter depressive. This lasts for at least 4 days, I then have at least 7-10 days prior to my period that I am not myself. On my normal days I am such a happy and positive person, but on my bad days, family dont want to be anywhere near me. I hate myself so much and want to end my life. What grabbed me about your story was your use of cocaine, on my bad days, I actually think that cocaine would benefit me, give me energy make me feel normal. How sad is it that we have to put up with this? Why cant doctors help us with this condition? Ive spent fortunes on all sorts of treatments, none of which have worked :(

I have been suffering from PMDD for over five years now, and all my symptoms are consistent, but the time scale of when my symptoms occur varies a lot. I started menstruating at age 12, and my symptoms where more physical rather than emotional/psychological. I'd suffer very rarely with cramping and body aches. My symptoms escalated when I became sexually active at age 16. My mood swings were that bad that my parents put me through counselling, anger management, and finally I was advised to use contraception. At first my doctor prescribed me a form of oral contraception, but all that did was regulate my periods, they did nothing for my mood and mental state. Eventually I tried the implant which seemed to work best for me, but it worked the opposite way. It helped my mood and mental state, but my periods were always irregular, varying from 6-8 weeks apart. I had the implant for just under three years, with little to no symptoms of PMS or PMDD. It was absolute bliss! I have recently in the last month had my implant removed due to attempting to start a family, and I was fine for the first week after having it removed, but soon after my mood and enjoyment of life seemed to have plummeted dramatically. I have virtually no sex drive, which is making trying for a baby extremely difficult. I don't want anyone not even my partner anywhere near me as I just start to feel really angry and frustrated to the point where I just snap. I find it difficult to concentrate on what I'm doing/saying, and all the things I enjoy doing, I've lost complete interest in. I'm very clumsy, and constantly feel fatigued no matter how much sleep I get. I felt like this for over a week and then came on my period, which made it clear to me that this wasn't symptoms of depression. I felt fine and happy for a couple days and now I've reverted back to how I felt before my period started. I feel the symptoms of PMDD constantly no matter where I am in my cycle. And it is an on/off pattern throughout, it is never consistent. I have suffered with this condition for quite a while now and age has had no affect on my symptoms. I am now twenty and continuously suffer on a day to day basis, taking certain herbal remedies and vitamins to try and ease the symptoms, as the doctors cannot prescribe me any form of medication due to me trying for a baby. It is rare for someone so young to develop PMDD, but in my family it is hereditary and symptoms and severity vary between each person. I hope my experience of PMDD will help other sufferers understand the condition a little bit better, and that it isn't as rare as most health professionals make it out to be, and it isn't always down to a hormone imbalance either. If you do think you are suffering from PMDD, please rule out any other factors that may contribute or cause similar effects such as, depression, any form of medication you may be taking, and assess what events are occurring in your life that may cause stress or anxiety. I do recommend though, that true suffers of PMDD try out various forms of contraception as I found that this helped me a lot! But not everyone is the same, so this may not work for every sufferer. Good luck ladies x





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WOULD YOU BE PREPARED TO SHARE YOUR PMDD STORY? I have a great deal of empathy with many of these stories. For most of my 20's I thought I was bi-polar. In my mid-30s I was finally diagnosed with PMDD. I'm in the process of writing about my experiences in the hope I can help other women in similar situations. I'm keen to collect as many case studies as possible. I wonder if anyone might like to share their story? Thanks and warm wishes x





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Hi Rebecca, Becky and everyone. As I mentioned in my last post, I've had PMDD for most of my adult life. It got markedly worse as I headed towards my mid thirties. I'm really happy to share some of the things that have helped me manage my symptoms, although each of us has a unique physiology - what works for me may not work for you. But then again, it might... 1. Cerazette (progesterone pill) and Estradiol (estrogen gel). Repeatedly GPs would try and put me on Prozac, but I refused. Eventually I went to see a private specialist who suggested the combination above. Like many women, I'm sensitive to progesterone so the pill alone was no good. The estrogen gel helped dampen the symptoms caused by the pill. In combination, this was really effective. No more ovulation, no more PMDD. I followed routine for over a year and then, for many reasons, decided to take a break from plying my body with hormones. Sure enough, PMDD returned. So I set about managing my symptoms in other ways: 2. Diet. There's no getting away from it - this is key. I'm a selective omnivore! Meaning I do eat meat if it's local and organic. Sadly, animals that are raised non-organically are often pumped full of antibiotics and hormones to increase meat and milk production. It's not a great leap to suggest that consuming them may interfere with our own hormone production. It's expensive, so I eat this twice or 3 times a month on the week of my period and the one after, to regenerate iron levels. I've also cut down on dairy and again, buy organic when I can. For the two weeks before my period, I'm practically vegan, an idea that even a year ago seemed completely unpalatable! But the difference it's made to my PMDD is significant, so I'm sticking with it. 3. Vitamins and minerals. The 'danger days' i.e. the 10 day run up to my period, I take daily supplements of vitamin B complex plus an iron supplement called Floradex. Magnesium deficiency is more common that we think on our society. It has a multitude of roles in the body including nerve and muscle function. It's important to get enough, especially if you suffer from period cramps. I use a magnesiums spray to keep levels topped up. 4. Cutting out Caffeine. This was far and away the biggest lifestyle change for me. I LOVE coffee. I would have a latte every morning without fail - it was almost an addiction. Caffeine has loads of physiological effects on the body and is especially disruptive to neurotransmitters and hormones. It's quite complex - I don't have the brain power to explain them all here, but you can easily google them. Of all the lifestyle changes I've made, cutting out caffeine has resulted in the biggest improvement of my PMDD symptoms. There are so many more things I could write about! But I hope these few things provide food for thought. Above all I would say, don't give up. It's a long road to finding something that works for you. My symptoms have reduced a huge amount and I feel back in control of my life. Yes, some there have been some considerable lifestyle changes along the way, but it's definitely worth it :) Warm wishes to you all, Becks

I have PMDD and its taking over my life. I really cant cope with it much longer. I really want a hysterectomy. Rebecca, Wiltshire

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Hi. I am so happy that I found this thread. I suffered from depression couple of years ago and just got back to a healthy balanced life this last year. However, still there are days during the months that I still just feel so hopeless, anxious, angry. It feels like it is all back again. My symptoms are only severe for around 3 days although the depressions for longer. Could it still be diagnosed as PMDD? Does anyone else wxperience the same?





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I could have written this! I had PND after having my first child 4 years ago and although I have recovered and am no longer on anti depressants When my period is due it feels like it all comes back again. I have only just starting thinking that this may be PMDD. I've always had some PMS but this is NOT the same!

Hi everyone, my name is Rachel and I turn 25 in a few weeks. I've been taking contraceptive pills for the past 9 years. I've always been on microgynon until recently when I was changed to a cheaper version (I can't remember the name as I wasn't on it for more than 2 weeks) I was already dubious as my sister was changed to a cheaper brand and started having horrendous side effects and she soon discovered she had endometriosis and needed surgery and now she is worried sick about her fertility. As soon as I started taking this other brand my migraines (which have caused me little to no problems since I stopped eating chocolate a couple of years ago) came back and I was suffering with them on a daily basis. At firsl I thought it may have been my eyes needing testing and so I went opticians and got my prescription updated, but the migraines continued. I then turned to Google to see what else could have been causing them and discovered I shouldn't be taking a combined pill because I suffer migraines with "aura" (numbness in my face and hands, vision problems, sensitivity to light and my brain even goes funny and I can't seem to speak or even remember words) so I booked an appointment at the doctors right away. The nurse told me right away to stop taking the combined pill and wanted me to have the copper coil due to it not affecting hormones as much. So on I went to the family planning to book in and the nurse there then talked me out of this and advised me to try the mini pill instead. I have now been taking zelleta for 3 weeks and I hate it. Within a couple of days I started a period and it hasn't stopped yet. I've never had a period like it, my bleeding is really heavy and non stop and the pain is agonising. The other side effect that is really scaring me is how depressed I've been feeling, every little thing sets me off and I've been breaking down in tears and having panic attacks and considering either running away from my life or ending it altogether. Other side effects are being constantly tired, having no motivation, not wanting to be near any other human being apart from my boyfriend and every time I touch my hair I have big clumps coming away. The only good thing is that my migraines have stopped. I'm worried about going back to the doctors as I wouldn't want them to jump to conclusions and put me on antidepressants, I don't want a coil as I don't want to be poked and prodded and wouldn't want such a long term option at my age, but it seems that there aren't any other options due to my migraines. Does anyone have any recommendations or should I just give up entirely with contraceptions and just stick to condoms?





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Hi Rachel, Like you, I can't take a combined pill due to migraines. I was prescribed the mini pill Cerazette which I found worked brilliantly. My periods stopped altogether (a blessing as I was on heavily every 3 weeks with severe cramps) and I felt more content generally with no further PMS symptoms. Only issue with this pill is that it's one of the most expensive so doctors are reluctant to prescribe it - mine keeps trying to change me to a different version (cheaper brand!) but I put my foot down and refused. It's your right to receive whatever contraceptive you want so be firm with them. Also, whilst microgynon was a nightmare for me, if it worked for you despite the migraines, is it worth going back on it? Whatever you decide, make sure it's just that - what YOU decide. Don't be bullied into receiving treatment that doesn't work for you just to save costs. Hope this is helpful, good luck!

Rachel - Melanie here, I'm 23 and I just read what you've been going through/ your symptoms and it struck a chord with me!! I had been on Micronor (I think it's the same as Microgynon, just the Canadian version - it's a progesterone only pill) for about 6 years, and I moved to the UK at the end of August and right about that time I went to the hospital for a checkup. I also asked if I could get some more birthcontrol since I had ran out - the doctor gave me Zelleta instead as he said it was the exact same as Micronor only cheaper. I'm about 3 months in, and the last 3 months have honestly been an emotional rollercoaster and not in the good way. At first I thought my high's and lows were the result of moving to a new city and adjusting etc, and I've never really been good at keeping track of how my mood changes in accordance with my period etc, but I go through fazes of literally loosing it and bursting into tears for no reason! My motivation is completely lacking as well.... I have such awful anxiety, what I feel like are mini panic attacks... just these boughts that are truly hell, and then a few hours later I'll feel balanced again. It never occurred to me it could be because of the mini pill as I thought they were essentially hormone free and weren't supposed to mess with your mood etc?! I'm seeing my doctor back in Canada soon, however for the meantime I've just decided to get off the pill altogether and stick to condoms. If the mood thing balances out, I will see about getting on micronor again in the future. Just glad to know someone else has been having similar issues and I'm not literally going crazy.

Reading the stories here was a light bulb moment for me, I really thought I was losing marbles. However I have a slightly different situation. I also felt like I was losing it a week before my period, but as soon as my period started it was like someone burst the balloon and all went back to normal. Earlier this year I was diagnosed with hypothyroidism and am now on thyroxine. The last few months my pms has been creeping into my period, I still feel like im losing 2-3 days into my period. I am not sure if the thyroxine has something to do with it. I have an appointment with my doctor in 2 months time but I really feel like I can not go on like this, it is affecting every part of my life.





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Please, none of you must give up in your searches for help. I am 52 and had no idea that PMDD existed and battled with it for the past 40 years and that makes me so sad. I would have two week cycles of bi-polar like moods; so, so low followed by massive highs and have only recently recognised that the Bulimia I have suffered for all these years was only present in the days before my period. My straight laced family just smiled and tolerated me as the highly strung daughter. Four years ago I'd had enough as I realised my marriage could only take so much and I changed to a brilliant female Doctor who actually experienced some of my symptoms herself so we set about cracking this. I have a great diet anyway, I'm a Gardener so I have a good amount of vitamin D, I run - what more could I do ? I sound so perfect already!!!! The thing that has WORKED for me is Fluoxetine (Prozac), twenty mg a day for the past four years and these are the only for years I have felt "normal" since the age of 12. Only now do I understand how wrong those crashing lows and screaming moods were and I honestly believe this has saved my marriage. My children recognise the time when Mum turned from intolerant to human. I have two daughters, one suffers too and the other fortunately does not. I currently trying to get her to recognise what is going on. All I can say to all you ladies is NEVER give up, there is hope and your best friend is a sympathetic Doctor x





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I have just realised in the last few days that it could be my hormones I had a baby 2 years ago and have not slept much plus a poorly baby and heaps of other things. I am exhausted and very upset my anger turns into uncontrollable rage and outbursts and I feel so utterly ashamed and embarrassed but as you say I didn't know and felt it was my fault and that I should be able to control it as i know I'm behaving totally unacceptable to my own values. With all the reason and promises I still fail to change my behaviour when it's rife. I've just stopped my pill yesterday as the doctor suggested to see if it will help and to shed a light on the pattern but since reading about pmdd I feel it is that for sure. I'm glad you've become human again and a mother and wife. It's sad that you've lost so much of your life to this ... I feel I have hurt my little girl by my antics and hope I can change my ways so she doesn't grow up knowing me as that intolerant and off the wall person .. Blessings to you and your family

I can really relate to everything you say! I am just tolerated as the highly strung daughter/sister - I am trying to understand how this effects my family but I can barely understand myself, let alone take into account others that don't try to understand me. My husband and kids go through everything with me and love me unconditionally though so I am very blessed in that regard. My doctor really has done very little apart from refer me onto a chronic disease course that is supposed to help you think better. The nurse prescribed the combined pill which hasn't made any difference apart from messing with my cycle. I would really like to try fluxotine, I have an appointment on the 7th of December and I am not going to pussy-foot around any more - I need treatment, my life is hell. I will have came on my period by then though so I my head will be clearer, again she will have missed me on my 'mad time'. It makes me feel like I am going crazy, know one knows or understands PMDD! I suffer with anxiety at this time of the month and have withdrawn from my extended family and social medias, I did it every month without realising, subconsciously and now I am understanding and recognising my pmdd more it actually is apparent that it is my defense mechanism to protect myself because of the anxiety. I would love to be normal all month! I love who I am when I get my period and for a couple of weeks after!

i'm 24 and have a few different problems, I've grown up with only my nan and granddad which I call them mum and dad. I always did activities including dance, drama, and done so much with it but ive never had friends ive always been in relationships since I was 14 and lived with the guys, some bad ones. I have had a really big problem with getting so dependent and attached that I cant go anywhere or do anything on my own without them and always want to be with with 24/7 wherever they go. im scared of going out alone and id rather sit in and sleep if they not there I now don't work or have any activities to go to. I get really paranoid and jealous and cry most day and times I feel emotion to the extreme. I don't live a normal life, ive always suffered from depression but I truly think its much deeper. ive have tried to take my own life and self harmed doctors just keep prescribing anti depressents which all medication havnt worked I have moments and goals where I want to achieve and go shopping and look good but then I cant with my partner being there. when every little thing gets to me on often 4/5 times daily I feel like im being bullied and still feel alone then cry and because my partner as got to the point where hes had enough of me crying it turn into anger and arguments to the next scale and always calls me mental but all I ever do is try and make me people happy stand by people and let myself to be used everytime I get paid im hopelessly giving it to my partner if I don't he kicks of then I have nothing. I feel so alone and good for nothing everyday living is hard. what is wrong with me everytime I go out with my partner everyone stares and passed comments about me being a model but I always think im ugly and fat I stop eating and started drinking everynight there must be something else someone could treat me with apart from councillors and medication.





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Hello. I don't have any diagnosis, not even for the hemiplegic type (severe) migraines I have randomly once a month. There is a cycle of health events on a regular basis. The symptoms change. I recall Migraines as a child but they returned in a bad way when I was a teenager. Now I am 31. I have a heart Murmur. When I am about to get my period I go through a list of shocking symptoms sometimes way out of control. I have lost jobs due to anxiety, sporadic insomnia burning feet, really tired sore swollen ankles, Breast size increases swollen sore breasts, irregular severe heart palpitations especially in the heat. Random painful ass and abdomen cramping, swollen painful tubes, extremely overactive sex drive, extreme weight loss, low red blood cell count, anemia, constant fatigue, random bouts of chronic gastro there is more Bruising in strange places. I had a finger print bruise on my thigh two days ago that was a really weird color. Raised veins, on upper chest. Rash and skin issues on face, patches of flaking rough skin (I moisturize obsessively to stop the skin problems) Dry thinning hair and dermatitis Extreme cold and hot sweats just under the armpits Terrible dehydration and stomach pain in the mornings Muscle stiffness, sorness Daily Malaise, inability to eat frequently, strong aversions to food to the point of illness A hell of a lot of weight loss and vomiting, periodic sore weak stiff neck, stomach bloating. I have had my teeth corrected, I have tried so many of the wrong kind of medications and been to countless Drs. The problem has eventually crippled my life, and to throw more of a spanner in the works; I was hospitalized for 5 days when I was 16. I got my period very late and was very insecure about it. It was out of control in terms of pain, and I was having very heavy menstruation which made school a nightmare. The Drs thought it might have been a problem with my Ovaries, but I was never given conclusive answers, just antibiotics. I have manic episodes of depression and euphoria surrounding my mensuration cycle. days before my period hits I am likely to be hiding under the bed. Sometimes one side of my sternum sticks outwards, it is really painful to breathe and move. I have been through countless G.Ps and cop a lot of harassment due to my delayed physical frame from other woman my age. I am always so tired. have difficulty focusing. I need a kiss of life so I can keep challenging this thing. So so tired.





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Ok so I forgo to mention, I have looked into Lyme desease also. There is a lot of political debate about if it exists or not where I live so I am worried mostly about what I am going to say, "It's hormonal, menstration cycle related" Concluded at leas %50 of he G.Ps I have seen regarding the severe individual symptoms. After I recognized there were patterns in 2013, 1 Dr though adrenal issues. - My mother just caught Ovarian cancer in time in 2012. I have crazy violent dreams, I have always had them. You would not believe the things I have witnessed while asleep. I self medicate with weed to block them out, because Anti-depressants trigger severe migraines and I was allergic to some Anti-psychotics I tried. I have been to multiple psychiatrists who seem to think I am a normal thinking human being. No answers. But worst of all, I woke up one day when I was about 16 or 17 with a huge raised ulcer on the back of my leg. It was extremely painful, my muscles were weak and i had to drag my leg around with a bandage over the site for a couple of days. It was a perfect circle, felt hot to touch. Like a perfectly circular sunburn. really painful to touch the inflamed part but there was a weird boil like thing in the middle. It is highly possible I could have scratched off a tick.

Sounds like you have PMDD and PMS related symptoms.

I'm a 44 year old and I've been diagnosed with pmdd by my physchistrist who I've been seeing since I tried to commit suicide after years of explaining to my Dr about how bad my moods were around my period but it just seem to get swept under the carpet Nd I felt a failure. I even started to drink every month to relieve the symptoms but it just made it worse I knew I wasn't a alcoholic as the rest of the month I didn't drink at all just a week before my period was due.I thought I was mentally ill after all these years and now I know for 7-8 days out of the month I'm not me I don't want to be with anyone just stay home alone and sleep my energy levels drop dramatically I can't hold down a job cause of the days I have off poorly when I can't face the world a little thing turns into a massive prole m and when I was finally diagnosed I cud have kissed the Dr I know try and deal with it but it's soooooo damn hard I'm like jeckle n Hyde. So anyone out there who thinks it's normal to feel so low it's not.





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Hi, my name's Paula, I'm 31 and I have always had PMS but since September 2014 I have noticed that around my period I started having all those symptoms you have described...once my behaviour was affecting my marriage and my friendships I realised something was not right at all. Ever since, I have been to numerous doctors, here in London and in Brazil (where I come from). Here they act as though it's nothing. In Brazil the Gynaecologist referred me to a Psychiatrist and he put me on a medicine for epilepsy treatment, he said it acts in the dysphoria (the medicine reduced the intensity but I am having it anyway). However, when I came back to the UK my GP did not want to prescribe the same medicine to me, the Psychiatrist does not want to see me and they referred me to a Gynaecologist (which I will se in 3 months time). I am also waiting to start a CBT Group sessions (counselling). They never wanted to do a hormone count or any investigation....but I am the one suffering for about 8 days every month feeling miserable and totally out of control. It is so frustrating....It is comforting to know I'm not alone on this...


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