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Conditions

Progeria

Hayley, a progeria sufferer

Above: Hayley, who has featured in Embarrassing Bodies, was kind enough to talk to us about living with progeria

Progeria, sometimes called Hutchinson-Gilford Progeria Syndrome (HGPS), is a little-understood and incredibly rare genetic condition. It affects an estimated one in eight million people and its symptoms very closely mimic the ageing process.

The disease exclusively affects young children. A genetic defect prevents sufferers from producing a protein involved in the repair of DNA. Instead, the sufferer’s body produces a defective protein that causes damage at cellular level, leading to problems that are remarkably similar to human ageing, but rapidly accelerated.

Physically, progeria typically causes baldness, a narrowed or shrunken face, stunted growth, a small jaw, skin problems, limited movement and many other problems besides.

Most progeria sufferers die in their teens, while a few survive into their 20s. The nature of the disease means death is usually as a direct result of heart failure, stroke or another condition associated with old age.

You can find our more about groundbreaking research into progeria at the Progeria Research Foundation >

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hayley your the prettiest girl in the world with Progeria





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you are so brave you are like me as well because I have your in less I know what it feels like

You are amazing!!! Xx





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Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


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you are amazing hunny

thanks I have had to go through loads once I had to stay in hospital for 4 months

I was lucky enough to meet hayley a couple of years ago whilst raising money for progeria research, she is an absolute ray of sunshine and one of the loveliest people I have ever met! Much love to hayley from all the girls and guys from KC2 in Southend on sea!!





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Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

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The information provided on this website (including any NHS Choices medical information) is for use as information or for educational purposes only and is not a substitute for professional medical care by a qualified doctor or other qualified healthcare professional. We do not warrant that any information included within this site will meet your health or medical requirements. This Embarrassing Bodies site does not provide any medical or diagnostic services so you should always check with a health professional if you have any concerns about your health.


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