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Conditions

Spina Bifida

Spina Bifida

Spina Bifida is a term used to describe a series of birth defects that affect the central nervous system and the spine. The most common type is called spina bifida myelomeningocele, and it involves a baby being born with several vertebrae of their spine exposed, opening up the body’s nervous system to infection. Symptoms vary in severity, but partial or total paralysis of the lower limbs is common, as is a build up of cerebral fluid in the brain, that must be drained regularly to avoid placing the brain under undue pressure. Fortunately, advancements in surgery have meant that children born with the condition with survive into adulthood and lead independent lives. The causes are not totally understood, but are there is a genetic factor, as well as a lack of folic acid during pregnancy.

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Can you get spina bifida from a knock on the back or on the spine ? as my son had an accident on his bike what lead to him having his spleen removed when he was 14 . He is now 18 and has just found out he has spina bifida . Can someone shed some light how this could have happened please





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I am 28 I didn't know I had spina bifida occulta I had X-ray and doctor told me I was born with this problem in the past year I have had really bad pain in my legs does anyone know if my legs will get better as I am in pain every day





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I am 33 years old. I have 3 children.all three births we're natural. I have been training to be a Zumba instructor. And hurt my back pretty bad went to the doctor found out that I have spina bifida doctor acted like it wasn't a big deal. I have been only able to work 4 hours a day and I cannot exercise at all not even walking. If I do any of that my pain level shoots up the pain is all around my lower back my hip and it goes up my back. I don't really know what I need to do at this point the doctors says it's not a big deal but why am I hurting all of a sudden like this and I know I'm not working out and I'm still hurting I'm really kind of scared about the whole situation also I have noticed that I have had some issues with bladder and bowel not incontinent though just a lot of pressure all the time





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I am 51 years old, I found out I have spinal bifida occulta when I was 32 years old. I have always been embarrassed by the patch of hair on my back. As I look back on my life, I can pinpoint certain events that happened to me as a child and young adult that are directly related to my back. I could never bend my body backwards so in dance class I was teased. I played basketball, volleyball and track. And I was all state in both volleyball and basketball. You can do anything you want with this spinal problem. Just know your limits. Don't worries about what everyone else thinks. I have 3 children, all had to be born c-section because I wouldn't dilate past a 4. I could go on and on. My advice to any parent is don't make too much of it. Don't tell your children they have a disability. Let them run hard and learn their own limits. I am thankful I did not know about this in early life. I probably would not have tried to succeed so much. If your child can be active let them. I know if I stay active hiking, and walking I feel much better. If I do nothing my body stiffens up and my pain is much worse. STAY POSITIVE





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Im 27 years old and I have been diagnosed with spinal bifida occulta and I have incontinence and leg weakness and bowel incontinence to I have a fatty lipoma and scoliosis to and I have been told that I could loose the use of my legs in approximately 6 months to a year from now and the doctor won't do anything about it

My father has the worse type of spina bifida and my parents made sure that I was screened as a child for spina bifida. I was cleared as a child from having this. I have recently been diagnosised with spina bifida ocultta. Is it possible that a back injury has mimiced what spina bifida looks like?





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Hi. I am 27 years old and have always had minor back pain but nothing that truly bothered me. The past two years the pain has gotten worse and when I hold my son for a prolonged time (5-10 mins)y left leg goes numb. Assumed a pinched nerve. Just had a physical today and was told I have spins bifida occulta. Could these symptoms have anything to do with this? If so, can I expect it to progressively get worse? Thanks!





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Hi I find out that I had spina bifida occultlc when I was 23 that was 23 years ago , I had always had pain in my back and legs , bladder problems , bowled problems . I find out when I had an X-ray as I fall due in a fit . When I told my mum she said the doctor was wrong . My legs give way under me I am on a strong pain killer and now in a wheelchair as with my legs giving way and the pain I find walking makes life hard .





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Hi l would like to know if l have got spina bifida lm 55 years old had lower back problems for a long time and l ve got a lot off hair on my lower spin and a hole above my anus hole l ve had an X rey that showed spondlois





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I was born in 1942 with SB Occulta, the reason given was lack of green Veg's during UK war time, (foliate). For most of my life, I have kept a work-active life and managed my pain and kept away from any treatment-not that there is much. Now, at 72, it's more difficult walking and pain has gradually increased to become a real disability. During my youth, I was told to expect to be in a wheelchair before 40. I've had a good run. I'm a writer and regular columnist now. I may sit a lot more, but the old brain continues to work for me. For those of you facing what may be a bleak, life-challenging future, learn to know your limits, develop skills to make yourself independent; find love and the world will be yours. Cheers.





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My 17 year old son has just had surgery to un teather spinal cord he was born with spina bifida but missed by the paediatrician who said the dimple in his back was fine but obviously wasn't, now after surgery my son is in more pain and has lost the feeling for his bladder and bowels ,will the feeling return, we are devastated





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Has your son recovered from the surgery? I think my daughter may have this and it has been missed, she is now 6. What would you recommend to do? Our second daughter was also born with a tuft of hair, a dimple and a strange line at the base of her back. Neither of these were spotted by the doctors but I just came across this today and I'm not sure wether we should investigate further? Or could it just cause more problems? Thank you


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