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Conditions

Tourette’s Syndrome

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When most people think of Tourette’s syndrome they most probably think of a person rolling off streams of expletives, so you might be surprised to learn that swearing isn’t a particularly common trait amongst those suffering from tourette’s syndrome. The form of tourette’s that sees the sufferer swear uncontrollably (a complex phonic tic) is actually the rarest form of Tourette’s syndrome known as Coprolalia. More commonly someone with tourette’s will suffer from verbal and physical tics which generally take the shape of head jerks, blinking, teeth grinding, eye rolling, and neck twisting as well as grunts, squeaks, coughs, blowing and screaming. Sufferers tend to find that their symptoms become worse when they are stressed, anxious, ill, tired, nervous or excited and ease off when they are involved and concentrating on an activity such as reading or playing sport. Some people suffering from muscle spasms and tics may often suspect tourette’s when actually a condition called dystonia is to blame. The cause isn’t known but research suggests a link with a group of specialised brain cells called the basal gangalia which are involved with motor function, emotion and learning. Treatments are available to control symptoms, with most sufferers finding a combination of behaviour therapy and medication working best.

For more information about Tourette’s Syndrome:

Tourette’s Syndrome
Patient.co.uk

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Ever since my son died my muscles in my stomach twitch sporadically throughout the day. The pain has gotten so bad that my doctors have thought I had ulscer. But the tests came back and there is nothing physically wrong with me. Other parts of my body will twitch, muscles in my legs, arms, cheeks, and the most annoying my eyelids. sometimes it lasts more then 10 minutes which gets really annoying. Since I am physically okay, should I look into getting tested for tourettes?





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Im only 18 and still in school. I tend to jerk my head a little when Im around alot of people. I dont know why but just being near a person sets it off no one ever notices because Im good at hiding it but it gets worse everyday. Some people notice but tend to lagh behind my back. The only people that dont notice are my friends. Everyday Im forced to be around people which is very hard. Standing still has become a very difficult task. I need help before it gets any worse. Do I even have tourettes or am I just really nervous?





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hi, I am a 15 year old female that has had tics since I was about 2. At first it was just blinking a lot but after i had gotten rheumatic fever about the age of 6 I started getting verbal tics. I started taking medicine and it helped a ton, but once I statrtrd getting better I stopped the medicine. I haven't had any verbal tics ( saying "whoop" out loud without even noticing) since I was about 8. I am now a freshman in highschool and only have small physical tics when I'm stressed and anxious. A few of my tics include: stretching my fingers wide open, closing my left eye really hard then closing both of my eyes really hard, and opening my eyes really big. I guess I wink at people too? Because a lot of people ask me why I just winked at them when I don't even know how to wink on my own. Most people don't believe I have Tourette syndrome because when I feel a twitch or tic coming I tend to hide my face by looking down or away or hiding my fingers under the table or behind my back. anyways, thanks for listening and id be happy to answer any questions!





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Does teeth alignment work for tourettes? When I get my son to hold something in his mouth his tics stop.





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I will would not advice you doing this let the tick out or it will get worse

I have this same thing that you guys all have. I actually thought it was OCD, but then just did some reading, and it is either Tourrette or another similar tic disorder. I have physically hurt myself by having these tics. My head hurts sooooo bad, and the big nerve that goes from head to nasal area. Also bad chest pains from another tic. This sucks!!! To me, it seems like the reason we do this is because the motor tics involve this type of muscle contracting that (to me) feels a little like an orgasm. I think the same neurotransmitter or hormone is being produced every time we do the contraction. This is just my theory. I'm wondering if everyone else is hyper-sexual like me, too.





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Hi my 4yr old has been doing a hard eye blink when watching tv listening to a story sitting in the car ect over a yr ago that stopped then he was making a funny niose for a few weeks then licking his lips till really sore for a few weeks then a sniff for about 3 weeks then a dry mouth sound which he is still doing he has just started primary school and the blinking had started again much more than before we are on day 5 of the blinking now could he have tourettes?





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Hi, Do you get any feedback on this as my son is displaying the exact same symptoms?

Hi my son had been referred to a paediatrician this week his school have also some about adhd so will know more by the end of the week

Thanks for getting back to me. If you don't mind could you let me know what they say? Good luck!

Yes of course i will appointment is in the morning so will post again tomorrow evening

Hi, Do you have an update? Took my little boy to the doctors today and my GP says there is nothing wrong with him and he will grow out of it. Apart from the blinking and the facial movements he's a normal child. Not really convinced am seeking a second opinion.

Hi my son is also showing signs of adhd at all and home so we are now in the system regarding the tics they think they could be related to the adhd but we are going to look into this more in the next appointment. When i went to see the gp to begin with i made videos of him doing his tics so the doc could see they were quite prominent my gp had some experience with tics so I think that helped in getting a referral

Hi im 16 and have tourettes it seems to me alot like tourettes to me becose thats similar to how I started. I would go to your gp and say that I think my 4 year old might have a tick can he/she be referred to see a specialist at your local hospital. This may be helpful when the child starts becomeing a teenager because the thats more likely the time that it is more nostsble. Im sorry a about my spelling and hope this helps

How do people with Tourette's like others to react when ticing or vocalising ? On my way to pick up my 9 year old grandson who has started vocal tics since I last saw him.





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I have Tourettes Syndrome, its sometimes nice for it to be ignored, if it does 'make you look up' then just treat it like a normal action, we would hate it if you kept pointing it out and looking at us for it.

I've got several tics/twitches,from sharps nods of the head,twitching the eyebrows,grinding the teeth and curling the top lip. I'm very aware when I'm doing it and its very embarrassing. I've just became a dad and now the thing I fear most is embarrassing her when she's older. Is there anything I can do to control it?





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Hi Darren. There are many things that can help you control your tics. You may find a combination of medication and talking/behavioral therapies will be helpful in controlling it. Also taking up a hobby such as playing an instrument/singing or a sport may be helpful. Personally I have full-blown tourettes and my first tics started when I was three. I'm now 21 and although I have no children my partner has a little sister. I've found that its best to just be yourself. If you tic, you tic. If they ask questions then answer them honestly whenever they ask. Children will always be inquisitive, its part of growing up but if you are open and honest with your child, and other children, when they ask questions you will find that they will grow up into accepting people with great moral values. Please just be yourself. Lastly: congratulations! (sorry it's a year late: only just found this!)

I think my 4 year old son has tourettes syndrome, ive never even give it a thought before but after watching a programme the other night it was like looking at my son, he has neck twists and eye blinking and hand movements and grunting, sniffing and snorting, we have had his adenoids and tonsils removed because they said he had sleep apneia and he is still doing it, he has glasses but he is still closing one eye and constantly blinking, he has a lot more tics too many to mention and have steadily got worse over the last year and more tics being added all the time, could this be tourettes or is he too young x





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Hi, Racheal, my husband and two of my three children have Tourette Syndrome. Both of our babies exibited some tics very young before a year of age. Most doctors do not want to medicate small children, but usually will medicate if it is causing problems with eating, sleeping, breathing or functioning. TS gets worse in adolescence where the symptoms increase and most people will probably want to see a good Neurologist for treatment. I have found through more than 27 years living with people with this disorder that pediatricians and family doctors know little about it and are NOT the people to treat it. A good Neurologist, preferably at a University teaching hospital, as well as therapy to help the child cope with the illness is recommended. Only a good Neurologist can diagnose and properly treat your child optimally. (I first took our older dd to the Ped and she said my daughter was "nervous" I had to take her to a Neurologist to get her treated properly.) Good luck. You are not alone.

Hello I am an 18year old male from Maine and I was first diagnosed at the age of 7. It became severe around the age of 12 up to still now, but it is dwindling. My tics involve verbal racial slurs, my left arm flailing, grunting, spitting, and my hand bones grinding together. There are medications for this and I reccomend consulting a doctor as I would strongly support the arguement that you have it. The medicine I am on is Haldol(tranqulizer pill) and marinol(thc pill)

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My lip be soar And hair leg I test stew 1week not work





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Content supplied by NHS Choices

Tourette’s syndrome is a neurological condition (a condition that affects the nervous system). It causes both physical and verbal tics, which are involuntary repetitive movements or sounds. Read More »

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