WARNING: The Embarrassing Bodies website contains images of an explicit medical nature and nudity in a medical context.

Search Results

  • Conditions
  • Questions
  • Comments
  • Blindness

    Blindness

    Blindness, or visual impairment, is comparatively rare in the developed world, and is very different to common sight problems such as short or long sightedness. Read more →

    Hi I am 14 and I have my first cold sore (and I have never kissed anyone!) so I have no idea how i got it and i hear that if the cold sores spread into the eyes it can cause blindness. Is there anyway to stop it spreading and a quick way to get rid of it?





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


    Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

    Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

    By posting on this website you are agreeing to abide by our community guidelines

    ello everyone, Can someone tell me if there is anyone who has eyes issues resulting from BD or one that actually resulted in blindness like mine.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Hi im 20 years old and was diagnosed with behcets 6 months ago after getting uveitus in my left eye, for about 6 months before this i would get mouth ulcers genital ulcers painful red nodules and constant severe joint pain.3 months ago the uveitus spread to the back of my eye, i currently have 15% vision due to a blockage in my eye. my mom suffered with these symptoms since she was 20 minus the eye problems, there is no cure of the disease only treatment for the symptoms. there is no actual way to diagnose it either blood tests dont always show up.

    I think i may have this disease. I thought the lump in my armpit was a bug bite, except it frequently returns. I found a lump in my groin area months ago that would return and I would just ignore it. now it has gotten bigger. It is sooo unfair that there is no cure! its very heart breaking. I'm scared my fiance will not want to stay with me as I also have HPV and impending blindness.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Hi Nala I'm 18weeks pregnant and have had clamydia 3times but they have given me the normal treatment of tablets and seems to have worked but what they have said is that at the worse case if you have a vaginal delivery the baby can catch it when passing through the birth canal which can cause blindness and or deafness but as I said u can still have the treatment done now while pregnant and consult ur midwife so she can go through this with u.Hope this has helped u a little.

    my son mark isc 26 years old he suffers from adhd and is on ritalin he was diagnosed at the age of 13 he was at diffrent primary school then was referd to craighead in hamilton then ridge park in lanark he suffers from hyperactiveness colour blindness dislexia low consentration span swears very imature for his age nothing holds his attention for long and loses it it easily

    Hi, i was diagnosed with behcets when i was 18 i had similar symptoms to your son from the age of about 12 but they severly exacerbated as i became older, i urge you to get a refferal to a consultant as behcets can be a very deabilitating illness! I ended up developing chronic uveitis of the eye which led to partial blindness in my right eye and a blood clot in my left calf (17) and (18) the drs at my local hospital were USELESS and if i had been to a qualified dr from the start id still have my full sight! I believe in england the best consultant is at Addenbrookes in cambridge

    My mom has just been diagnosed with this condition. She had a hemmoragic (?) stroke 10 years ago and I'm thinking that it may have something to do with her newly diagnosed condition. I've read about treatment and she will be starting the botox injections. My questions are these: What can she expect after the injections? and if they don't or do work, is there a time frame from diagnosis to functional blindness? Thank you to anyone that can help me get a better handle on this so that I can help my mom. I don't think the doctor that she saw (small town eye doctor) made them aware of the severity of things such as driving, etc. Any info will help.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Contact BEBRF. blepharospasm.org This foundation can provide information, treatment information, patient support and current research information. You are not alone. Good luck.

    I've had Blepherospasms for 19 years. The injections helped for about five years but unfortunately I've started blinking like crazy. I don't think you will go blind but it does over time affect your vision. And it dies affect your driving because if the blinking. I wish your mom and the rest of us much luck with a cure and soon. God bless us all!!

    Show all replies in this thread

    I had an blindness in my left eye for the last 18months I had two laser eye surgery beginning of the year and yes it went away, well most of it but just, today playing squash it game back a plate like fizzy ness came over and now couldn't see anything out of it, just had a bath put me head back in the warm water and noticing I could see a stream like flow of red blood flowing down from north to centre and stopped as I put my head up then slowly went away leaving a outline of the flow of blood, now am worrying that I may need to go to the A&E, am only 29years old any comments ?





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    I am 27 and also suffer with this condition along with a long list of other things hayfever, Asthma, Eczema, Allergies to everything including a severe nut allergy. I've tried everything and been to numerous dermatologists but to no avail. The last time i visited my doctor about my eyes though he did say in etreame cases over long period the discharge in the eye can cause blindness but then proceded to just give me the same old drops as usual which by the way do nothing. I've come to the conclusion that there is no answer or the doctors just don't care. What they don't realise though is how dibilating and embarrassing these conditions are it's not just a "simple condition". If anyone finds a doctor who will give them the time of day and not just stuff you with steriods please let me know - I'm desperate!





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Priority attention - Health hazard broadcast on Channel 4 Just watched Embarrassing Bodies. You have just broadcast that Ticks should be removed by slicing off with a credit card or pulled up with a pair of tweezers. Removing a tick in this way will result in the tick's head being separated from the tick. This allows the tick's head to continue to burrow into the skin, and will cause the infection that can lead to blindness, etc, etc. It is imperative that the tick is removed by twisting it and ensuring that the head is still on the tick after removal. You never mentioned that on the program. Search the web for O'Tom tick removal tool and read more at http://www.dorsetdog.com/health-care-tips-and-tick-removal#tick





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    HI THERE,I,M REPLYING ABOUT OUR CONDITION BLEPHAROSPASM,AND TO ALL THE OTHER SUFFERS. I HAVE HAD THIS CONDITION FOR EXACTLY TWELVE MONTHS,I HAVE WRITTEN ON HERE ABOUT IT AT THE BEGINNING, NOW I AM DRIVING AGAIN AND DROVE TO MY BOTOX APPOINTMENT FOR THE FIRST TIME TWO WEEKS AGO, LUCKILY BOTOX HAS WORKED FOR ME, AND IT HAS GIVEN ME BACK MY LIFE,HOPEFULLY IT WILL KEEP ON WORKING,WE WILL HAVE TO SEE.I LIVE LIFE TO THE FULL AND TRY TO TALK AND LAUGH ABOUT IT AS MUCH AS POSSIBLE AS IT IS HARDLY HEARD OF I FIND, I ASKED AT MY LOCAL HOSPITAL WHY THERE ARE NO BOOKLETS OR NO FLYERS ABOUT OUR CONDITION AND THE LADY SAID THAT AS THE CONDITION IS RARE THEY CANT REALLY AFFORD TO DO IT,MONEY I GUESS, PLEASE TRY AND STAY POSITIVE, I,M SURE THINGS WILL GET BETTER IN TIME AND THE MORE IT IS TALKED ABOUT THE MORE FUNDING THIS CONDITION MAY GET,AS FOR THE SIDE EFFECTS,WELL I WAS SO DESPERATE AND AFRAID,I NEVER GAVE OR GIVE THEM A THOUGHT AS BLINDNESS WAS TOO SCARY!I STILL HAVE LITTLE TICS NOW AND AGAIN, FROZEN EYES AND A DROOPY EYELID BUT AT LEAST I CAN KEEP MY EYES OPEN.

    Hello! I found out that I had the HPV virus when I was pregnant with my first child. That was just over 24 years ago. At that time, I don't know if the doctor knew or advised me which strain I had. I had no warts ever rear they ugly heads until my son was about 6 months old. BUT, although I did not have any warts during pregnancy, there were still many dangers posed to my son in having a vaginal birth just because I had the virus. If you have warts, then you most assuredly have the virus. I don't know if you can take any medications to clear up the warts during your pregnancy, but your doctor should be aware just in case your virus can pose a threat to your child during a vaginal birth. Mine was so long ago, but I do recall watching a short video on the dangers of the virus to the baby during a vaginal birth - all sorts of nasty things can happen to the baby, up to and including blindness! So don't mess around, get help from your doctor.

    I have read all the comments and i too feel very alone.I don't know anyone with Behcet's.I would give anything to be able to talk to someone with this condition. I have spent 10 years being told its all bad luck.you would think that 48 genital ulcerations might ring alarm bells with GPS.Not to mention mouth and throat ulcerations,skin lesions,unexplained inflammation all over my body.headaches,VERY high temperatures during the night and the final straw BLINDNESS in BOTH my eyes. I was diagnosed 18 months ago and i felt at that point i had visited hell.The medications added to my problems.I was given high dose steroids that have made me gain 8 stone in weight,and basically made me confused and depressed.CYCLOSPORIN sent my blood pressure through the roof,LIVER function reading 5 times higher than normal.I have had both my eyes injected with steroids. I could write a book about my experiences and problems BUT there is light at the end of the tunnel.I found my own specialist. This man has changed my life.He understands Behcet's and has empathy for his patients.I am now having INFLIXIMAB INFUSIONS and the difference is incredible.I know wake up in the morning and feel glad to be alive.I still have many problems but the treatment suppresses the disease. My opthamologists have got my eyesight back.I know it all hangs in the balance and i know i will become immune to the infliximab but my doctor tells me he can deal with that when it happens.Its a long constant battle and i used to think why me but these days i think positive and i think why not me.

    Hi! After reading through some of these its kind of reassuring to know that there are more of you out there suffering these retched symptoms. I was diagnosed when I was early 20's after a couple of bouts of being in hospital fed on a drip as the ulcers were so bad in my mouth that I could not eat.Prior to diagnosis I had awful acne type rash on my arms one summer (I know it wasnt prickly heat.. this was different, though I didnt go to doc) following the diagnosis I had approx 5 years of ill health during which time I spent a week in London to find out more. After many tests they discovered on a simple chest xray that I also had Sarcoidosis of the lungs ( I have no idea if this was caused from the Behcets) which in turn led me to spend a year of weekly appointments at the Eye Clinic at our local hospital as I had developed Iritis and UV itis (inflammation in front & behind the eye of the nerve) after a year I was given the all clear from UVitis & iritis after being on Prednisolone steroids for a long time with steroid eye drops, steroid eye cream at night and dialating eye drops. I have to say this is a year I never want to repeat as although I only took 1 week off work for london tests I struggles to drive to work & use computers with my eyes dialated ( I dont think I should have nbeen driving but needed to work) the steroid effects gave me moon face (lots of extra weight). My sarcoisosis was given the all clear after about 2 years, I think the steroids I was taking for my eyes helped this condition. I used Blue inhailers while short of breath at times. Following my all clear from the eyes & lungs I had a scary experience of my saliver drying up! that lasted about 2 1/2 weeks during which time I could not eat, leading to my periods stopping & hair thinning out. I was so frustrated as I was on a waiting list to go for a barium swallow test at the hospital as the docs were convinced I had something stuck in my throat. All I wanted 24/7 was fizzy cold drink as the feeling I had constantly was totally dry mouth as if you have run really far & need a drink. I never got to the bottom of this! After 5 yrs or so I had no symptoms at all until Oct 2011! I had about a 10 yr break of behcets in which time I had my little boy who is now 4 yrs old. In my mind I thought my past must have been a miss diagnosis until now! Sadly for me my old doctor emigrated and needless to say it is like starting from scratch again. I have had mouth ulcers in Oct 2011 (now 35 yrs old) which doubled the size of my lips which lasted about a month then got another load of them again in Feb which has still not gone. I currently only have 5 ulcers though my arm has just developed an acne type rash. I have been taking Vavaicyclovire tablet courses which are not working. They turned infected twice so I had antibiotice (fluoxacillin) which helped. I made my own soups during this period to get essencial vitamins into my body & made Banana milkshakes as I could not eat & couldnt imagin being in hospital leaving my 4 yr old withour Mummy! At times it got so bad even having the soup that I got some soluable sulphadene over the counter & swished this round so that my mouth would be numb enough to quickly eat it! I didnt swallow the sulphadene as I was taking paracetamol & ibruprofen seperately. Im also using corsidil mouth wash as I cant quite brush my teeth as I would usually due to the pain. I have been pestering my Doctor with every symptom as I know in the past Erythromycin tablest helped my skin lesions, though my Doctor still wont prescribe them to me as my notes only gfo back 10 yrs on the computer. I advise you all to be persistant with the doctors. If I hadnt gone back 3-4 times in 1 week about my eyes the first time who knows what damage could have been done as UV itis can lead to blindness. The first sympton of that was itchy bloodshot inner corners of both my eyes. As well as all of the above I was diagnosed with Spinal Dysraphism 5 years ago which was discovered after 12 years of tests & MRI scans of my spine. This is a tethered spinal cord which I believe to be a totally seperate condition to the Behcets. I wanted to post all of this to see if anyone else has had the Saliver problem, Sarcoidosis, Spinal Dysraphism, UV itis? On a positive note the 10 yrs of freedom I had from this was absolutly fantastic as it gave me the confidence to get married & have a baby! I would really like to know if any one has found a pain relief or quicker recovery to the mouth ulcers as this is really getting me down right now. Good luck to you all & if any one has any questions please ask :-). Also I would suggest to any of you to get a diary & take photos of your symptoms as by the time you get to see a consultant you may not be showing any symptoms.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Hi Melanie, I hope you are feeling a bit better today, just wanted to drop you a quick line, i have Behcets but im on Anti TNF treatment Enbrel for my Arthritis which also keeps the Behcets quite under control the ulcers are not no where near as bad on this medication, so may be worth asking but its hard to get this treatment took me 10 years off suffering with arthritis, also seen another gp the other day and he prescribed the Brown inhaler that is used for Asthma he advised to use this on my mouth ulcers as this has been known to work again maybe worth asking the question, take care and i wish you well for the future, it was also lovely to read that you had 10 years free and had a wonderful baby boy, im 37 and have been suffering since i was 25 but only diagonsed with the Behchets after suffering arthrtis, DVT and Bells palsy over the years,

    Ask your doctor to refer you to a specialist in sarcoidosis.Ask your doctor to refer you to a specialist in sarcoidosis. Ask your doctor to refer you to a specialist in sarcoidosis. Steroids may be prsecibed and if so take them and keep all medical appointments.

    Show all replies in this thread

Can't find the condition you were searching for? Suggest a condition for us to add to the site


Important Notice

The information provided on this website (including any NHS Choices medical information) is for use as information or for educational purposes only and is not a substitute for professional medical care by a qualified doctor or other qualified healthcare professional. We do not warrant that any information included within this site will meet your health or medical requirements. This Embarrassing Bodies site does not provide any medical or diagnostic services so you should always check with a health professional if you have any concerns about your health.


If you want to embed our videos in your site, read our embedding T&Cs here