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  • Spina Bifida

    Spina Bifida

    Spina Bifida is a term used to describe a series of birth defects that affect the central nervous system and the spine. Read more →

    i'm 16 years old, and female. i have suffered from a bad back for about 4 years since i fell off a fence, i was sent to a back specialist to see what is wrong, they found out my back is bent but like a wiggle shape, not a C or S shape. and you can only tell i have curve spine on x ray as there no sign on my back as spine looks normal. also on my right side my spine and hip have joined, i been told drs cant operate as there more likely to damage my back more, is there anything i can do to help the pain or stop it getting worse? also is there a name for my back condition, as i been told its abnormal and not given a name ? plus i been told i was born with this condition.





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    take it easy... i'm 14 and have delt with it my whole life!! try roling up a towel and duck tape it and when you sit put it where your in the most pain!!!! it helps a bit or for a whoile

    i dont think i have a pillondial sinus but there is no name for it i am sure no one else has it... i have like a hole at the bottom of my spine/back and it is like it goes straight the way through to the inside of my body and some times it bleeds, i have had it since birth and it causes me pains in the base of my spine/back i really dont know what it is and no one knows i have it please help ?





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    I had CT scan on the top of my spine because of the pain i was getting , they said i have spong Osteoarthritis because it is curved at the top of my neck. But the pain i get in my shoulder blade is like shape stabbing pain and someone is pulling the nerve which makes it very tight and painful .is this pain caused by my spine curved or is it trapped nerve...?





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    I got circumcised 24 hours ago. Thing is I see no stitches. The only pain I have had is inside my penis where urine comes out and in my back passage. It's mild pain. My penis is very swollen and bruised and the foreskin seems to have been cut back very far. I only needed the circumcision because the foreskin was tight and blocking me passing urine which caused embarrassing spraying. The frenulum is now exposed and seems very tight. Could I put cling film over the exposed head to stop the sensitivity? I am a sixty year old diabetic and my consultant told me the foreskin problem was partially caused because of the disease.





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    My names beca and I was diagnosed with scoliosis when I was 13. I wore a back-brace 23 hours a day 7 days a week for 3 years. When I got my brace I had physcio to build my mussles so I could sit up without back pain. I'm now 25 and an taking diasapam, diclofenac and solpadol to help deal with my back pain. I would like to know if getting the operation at my age would help get rid of the pain or if there's nothing that will help can anyone say how I can strengthen my spine. I've tried yoga and marshal arts both made my spine hurt so much it hurt to move. Any help would b greatly appreciated. Thank you





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    Absolutely get the surgery. It will be much better than now. Never perfect, but you wont need those medications, just a lot of patience and years to get better. Its worth it, trust me.

    my daughter is 23 with two curves in her spine she just started to complain about a sore back when she was 18. I asked her to go to the doctor the doc looked where she was sore gave her cream. for a treat she got a massage and the wee woman told her her spine was curved. she went back to the doctors. she was to wait for the hospital appointments so a year and a have later she got the xray just to be told the havent got the right equitment and that she has two curves. so i think we got no where my daughter wants to have a baby.I know shes to old now all her bones are fully developed. shes always in pain.





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    i am 30 years old and i have double bended curves in my spine if your daughter wants to have a baby there is no reason why she would not be able to . i have 7 children and all was well . just a lot of pain at last stage of being pregnant so more rest was needed .

    I have mild scoliosis mid to lower spine area And the muscles are much more prominant on the left side. It doesn't hurt it just pops when i lift my leg or do exercise. (By pop i mean it feels like a vertibrate is shifting out of alinement.) The doctor told me the x-rays showed a mild curveture of the spine and not to worry. But I'm worried it might pop out and hurt or something more serious. it stops me doing my exercise routine which is effecting my every day life. Is there anything i can do to balance the mucsles out and get the mild curveture back into line? And is the muscle imbalance the cause of the curveture? Hope you can help.





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    I am 18.The colour of my skin which is exposed to sun alone are changed.I need someome to help me out.





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    I am 45 years old and I have been suffering from excssive sweating mostly at night but sometimes during the day too. I have had to put a waterproof sheet on my bed as i have already had to replace one mattress!! The sweats are coming from my head, neck and chest area, I can actually feel the tingling sensation as i am sweating and the sweat running down (my hair is always dripping wet and if i stand up and bow my head it actually drips off my nose!!) I have to get up during the night and change the bedsheets and my nightwear every night!! I must add that I am not feeling hot, my room is not hot either but it is causing me a lot of sleepless nights. I have a back injury sustained 5yrs ago which includes a prolapsed disc at the top of my spine and a wedged disc in my thoracic spine, could this be related? I have had tests for thyroid and menopause both were clear. PLEASE HELP, AT MY WITS END!!





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    exessive sweating can be a 'red flag' you need to go back to your GP for further investigations. If you was my patient as a physiotherapist I would derinatly refer you back.

    im sorry i cant help u but i join u on ur quest. 18 mnths ago i had an accident. i now wear leg caliphers and have had a avc (disc decompression. the sweats come on any time but never under my arms only from the head chest neck area. the sweat stings my eyes then i cant see. i have to carry something to dry me off. the only time i am ok is if i lay on my bed under a fan and do nothing. i went to see my gp .she gave me some tablets . i took them for 2 day. i had a severely allergic reaction which put me in hopsital. now i have a few scaars from the rash. my sweats r back tenfold my life is a misery with it too. ive tried everything to find out what is causing it. or something to help it. i even have to use sudocream to protect my skin from being sore. i really empathise with u . i too am not menopausal. eg. if i am in the kitchen with the door open in winter. making sandwiches i have to put a sweat band on my head to stop it dripping on the food. i also have tissues by to dry my face and clear my eyes. i have rusted too many hearing aids over this problem. if u get an answer i would be interested to c how u get on. good luck with finding a solution. if i get a result i will consult back here. promise.

    Im 27 n i had my hip replaced 2 years ago due to osteo arthritis and i now have a condition called axial dystonia that has called scoliosis and im now wearing a spine brace. I was hoping that someone might have some knowledge of Axial Dystonia as i have been refered to the national neurology hospital in London and have seen a Neurologist, but i dont really understand why i have it and if its connected to to the Hip replacement that i had to have??? I also dont know if the dystonia will go away, just as it came??? Or do i now have it for life??? Im soooo confused! Im tired of all the different pills that i am taking daily. I really want a normal life and to be able to enjoy life, but i hate being me at the moment, it really is no fun and im dreading the summer in a spine brace - its hot enough now but its gonna be disgusting and sweaty and i wont even be able to wear nice clothes. Helppppppppppp!





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    i have scoliosis and im 13 i had it when i was born :( i have to wear a brace aswell. I have to wear my brace all the time even in the bath and in bed. im not allowed to sit up with out it. when i wear clothes its shows my brace. when i want to wear something it shows it. I have to have an opperaton every 9 mounths. I have 2 metel rodes in my back they have snaped twice. I also had a bit of my rib taken out. I hope this makes you feel better. I feel really unlucky that i cant do anything fun like running, jummping, going out, i cant do ANY sports. :,( x

    you should try hydro therapy as scoliosis effets the muscles. i have scoliosis and iom having some ribs took out. but try hydro therapy its were you do excersises in a pool its real good its doesnt take the pain away but you feel better :)

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    i am now 31 and my mum told me that when i was 2 i had fatty tissue removed from my spine. in the last 12/18 months ive had bad back pain. my mum told me to ask my gp if it was anything to do with with the operation i had when i was younger. i found out it was a spinal lipoma that was partially removed. They recently sent me for an mri scan and they said i have a lipoma in/on my spine, part of my spine is pressing in and i have a bulge at the base of my spine. i have a red birth mark,the dimple and a bit of hair growth and i have suffered for years with incontinence. i have been looking on the internet and all these symptoms relate to spina bifida but no one has ever mentioned it???? i have also had 4 healthy children and i did take folic acid during all pregnancys.





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    Hi I'm 27 , iv got double scoliosis so twist lover spine & upper spine tho my head as pelvis are in the correct area they have said due to the severity of the twist they will not operate. My last mri last yr showed two discs together in middle of spine meaning I have no sponge left & it's an age of a 70 yr old. I'm in pain all day every day , from severe chest pain like some of you described as heart attack feeling too my legs just going from under me ! Really wish I could find someone to operate on me and help me out a bit ! Ashley





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    I'm 53, have scoliosis and kyphosis which has become a lot more noticeable in the last few years, with my left shoulder much higher and bulkier, but my main problem is pain. I started to have excruciating pain in my chest about 15 years ago, which came on quite fast and lower back pain that started years later than my chest pain. I was given strong opiates for my chest pain, which I became dependant on, went to a detox clinic and basically started again so the painkillers work again. My pain specialist basically told me that scoliosis doesn't cause severe pain and strongly implied that I was faking it! I felt one inch tall. I got another pain doctor but he's told me he will never increase my pain meds, so what do I do when they stop working or lasting the 12hrs like before? I've become seriously depressed and anxious. I don't actually know what is causing my chest pain, lots of doctors have implied I'm imagining it but without painkillers I'm in total agony. Where do I turn? Susie

    I have a large mole on my shoulder, it's slightly raised and a small red ring appears around the mole if exposed to the sun? It's only itchy of exposed to the sun however any other time it seems fine and no itching occurs. Should I be worried and contact my GDP?





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    can men get scoliosis . im a 46 year old man and had a curvature of the spine since birth i also had a small hole at the base of my spine . i asked my doctor if the was any surgery i could have but he said i was to old.is that true ?.





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    Hi I have spine scoliosis too and I'm 15 and going into year 11. My spine was at 56 degrees but that was at my last check up in March so I'm due to go again in a few weeks. I want the surgery but the only concern is wether to have it now or next summer with my gcses coming up and I play a lot of sport. However I don't like the site of it. What would be your advice?

    Hi, i have just been diagnosed with a tilted uterus (i am 35 and don't have any children)and i have the exact same issue with the base of my spine aswell - i have always wondered why i had a curved 'bump' towards the end of my spine and now it all makes sense... I too struggle with certain positions during sex and find it too uncomfortable to be ontop.

    After reading Stacey's comment, I checked urticaria on the internet and it did not read like her symptoms. Meanwhile, I have met someone who has difficulty in walking because she has a narrowing of the spine in her lower back.She is about to receive injections into her spine to help her condition. If it does help, I will look into the possibility of having such an injection into my neck. - watch this space

    That happens to me to. Is it sensitive? (The head) because if it is, my doctor said its just because its under exposed. So when the head is exposed it takes in air. Thats all. If that makes any sense anyways. As for pulling the forskin, just ease into it. Leave the forskin back while showering and stretch a little tiny bit and you will just start getting used to it. Forskin has give. But id say go to a doctor if its that uncomfortable. Hope this helps.

    Hi i am anna and i have had a anal fissure for three monthes and it did go away once then i got a nother one and i have not had much luck the pain it is going up my spine all the way to the top os my spine. I have gone to the gastrointerologest and i have had no luck but i have tryed drops and creams it hurst so bad i has brought tears to my eyes. I have gone to the ER and all they did was give me morphen and have me take advil and all other medications i will try anaything PLEASE HELP ME!!!!!!!!!!





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    Im suffering with some lumps that seam to be along my spine most of the day i feel like something is pushing into my spine, and just recently ive started to feel numbness in my legs, ive been waking up at night with really bad pressure in my back and painfull legs.





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    HI I HAD THIS PROBLEM FOR YEARS . I HAD TWO OPS I NEVER 4GOT THE PAIN I WENT THROUGH. I THOUGHT IT STRANGE THAT AFTER 20 YEARS I STILL GET PAIN IN THAT AREA,I NOTICE IT MORE IF I SIT ON HARD CHAIRS. MINE HAD GONE RIGHT DOWN 2 MY SPINE U SEE. BUT THANKFULLY I HAVE,NT HAD ANY OTHER PROBLEMS WITH IT SINCE.PLEASE IF UR INFECTED WITH IT GO AND GET IT SEEN 2,U DON,T WANT IT SEEPING DOWN 2 UR SPINE.GOOD LUCK.UR NOT ALONE.





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    HI I HAD THIS PROBLEM FOR YEARS . I HAD TWO OPS I NEVER 4GOT THE PAIN I WENT THROUGH. I THOUGHT IT STRANGE THAT AFTER 20 YEARS I STILL GET PAIN IN THAT AREA,I NOTICE IT MORE IF I SIT ON HARD CHAIRS. MINE HAD GONE RIGHT DOWN 2 MY SPINE U SEE. BUT THANKFULLY I HAVE,NT HAD ANY OTHER PROBLEMS WITH IT SINCE.PLEASE IF UR INFECTED WITH IT GO AND GET IT SEEN 2,U DON,T WANT IT SEEPING DOWN 2 UR SPINE.GOOD LUCK.UR NOT ALONE.





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    HI I HAD THIS PROBLEM FOR YEARS . I HAD TWO OPS I NEVER 4GOT THE PAIN I WENT THROUGH. I THOUGHT IT STRANGE THAT AFTER 20 YEARS I STILL GET PAIN IN THAT AREA,I NOTICE IT MORE IF I SIT ON HARD CHAIRS. MINE HAD GONE RIGHT DOWN 2 MY SPINE U SEE. BUT THANKFULLY I HAVE,NT HAD ANY OTHER PROBLEMS WITH IT SINCE.PLEASE IF UR INFECTED WITH IT GO AND GET IT SEEN 2,U DON,T WANT IT SEEPING DOWN 2 UR SPINE.GOOD LUCK.UR NOT ALONE.





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    Hey Geraldine, no your not the only one, my girlfriend has the same problem. She has spino bifida and has hair growth at the bottom of her spine, we could trade pictures if that makes you feel better, I've never seen anyone with the same growth either. She's awating major surgery to fix her spine, feel free to email me :)

    I am 44 years old and have funnel chest. I have never seen anyone else with it and am amazed how common it is. I have learnt to accept this is the way I am, but I dont like wearing low cut tops beacause of it. I noticed on one comment it said about curvature of the spine. When I had my son the hospital said I had a curvature of my spine and I didnt even know. Surgery is too radical if you can accept the way you are.





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    hi i am 24 with a little girl, i got diagnosed with curvier of the spine when i was a baby! thenwhen i was 11 they wantedto operate on me i was warned that there was a strong chance they wouuld hit my nerve and paralise me, so i refused the op. now i hav got worse painis terrible i have good days with bad.. myribs are sticking out with my spine bending, and i walk on 1 side. really help me ehat shall i do i am scared just want your advise xxxx





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    Hi Claire, I was born with scoliosis and had several operations as a child to correct the curvature. My latest operation was at the age of 27 when my daughter was 31/2. Like yourself I was in constant pain but unsure whether surgery was the right thing to do being as I was now a married mom with a house to keep. Well I went for the surgery and I can honestly say I have never looked back, it was the best thing to do. My overall appearance was a lot better, I stood straighter and didnt feel like I walked with a limp as I had before. My life was back to normal 5/6 months after the op and was driving 3 months after too, I even went on to have my second child. So my advice would be go for it you have nothing to loose and I am sure you wont regret it. Hope this has helped you

    Hi Hattie just read your letter regarding scoliosis, i had a major operation where a harrington rod was placed,i was 37 years old and had a server curve of over 48 degrees, at the top of my spine starting from the neck to the middle of my back also have a curve at the bottom of my spine as well, i know when you think about a rod with screws attached to your spine you may find it scary and opt to not do anything regarding surgery, but please think very carefully about the benefits and problems which may accure. im now 48 years old and feel if i hadn't had surgery my life would be a lot more difficult where mobility is concerned. The surgery itself was painfull but within a few days i was able to walk with a little help, and have never looked back, it was the right decision for me my curve is still there but by having my spine fused it hasn't been able to get any worse.mobility wise i do pilates and find it very helpful in keeping flexable, i can still touch my toes, bend side to side easily, pilates is great for strenghthening the core muscles which is the best form of exercise for someone with scoliosis. I hope this helps you hattie take care.

    Just about every human male on earth who goes through adolesence gets worried about his size. Measurements take over the past 40 years show that 51% of penis sizes range between 5 to 7 inches (13 to 18 cm). For those who fall below this range, they are considered on the lower end of a normal range and for those who exceed this range, they are considered on the upper end of a normal range. In other words, sizes are like heights - guys range from short guys to tall guys, but there is nothing wrong with either. As for retracting your foreskin, do NOT pull it back hard. While in the shower, pull it back gently, and wash the area that is exposed. Keep doing this daily, pulling it just a bit further each day. Eventually you should be able to get it fully retracted. And, yes, the head is normally sensitive after not being exposed for 18 years. By continuing to wash it after it is fully exposed, it will get used to exposure and will lose the sensitivity after two or three weeks.

    I have got a curved spine been for x-rays and an MRI scan to see weather anything is happening to my spine.. Because I have only noticed that it has been like this in the past 2years... The spin specialist said it was under 20percent curved...It's not stopping me from doing anything for example going to the gym or going on my motorbikes.. It's only noticeable when I bend over any touch my toes. If I am standing up straight I haven't got uneven shoulders or hips.. Just got a bit worried when I seen the girl on episode 7 having surgery.





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    ive had a purple rash on my stomach around my belly button and the same colour rash on the base of my spine. when the rash was discovered on my spine i had a blister that started small and grew till it burst. the rash isnt itchy but is hot to the touch. since the rash appeared 5 months ago ive also had constant headaches im not sure whats going on please can you help me?





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