WARNING: The Embarrassing Bodies website contains images of an explicit medical nature and nudity in a medical context.

Search Results

  • Conditions
  • Questions
  • Comments
  • Episodes
  • The problem with narcolepsy

    Narcolepsy

    A condition that commonly causes sufferers to have an irresistible tendency to fall asleep at any time of day, often at inappropriate times such as eating or in the middle of a conversation. Read more →

    Hi, I am 14 years old, I keep falling asleep everywhere. Anytime. Especially during class. Because of this my grades have dropped. When asked why, I would have no idea how to answer because no one understands what I go through. They just look at me as if Im crazy. I dont know how to explain this to my parents either. This has been going on for years, but its been getting worse. Nowadays when I fall asleep I just have no idea how to stay awake, there isnt anything i can do no matter how much I want to stay awake. my lack of concentration is extremely disappointing. Please help me understand what is happening here.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


    Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

    Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

    By posting on this website you are agreeing to abide by our community guidelines

    You poor thing 😞 you shouldn't be going through this alone & really need to speak to your parents if possible or someone close as you need to see your GP 1stly who can then refer you to a sleep clinic for a sleep study where you'll maybe have to stay over night with little sticky pads stuck to you to monitor your sleep but it doesn't hurt or anything like that, it will give the sleep doctor a good idea & possible diagnosis of why this is happening & then if you have narcolepsy or a similar sleep disorder, it can be controlled with medication & you'll notice a big improvement, or you may find a way of controlling it with little naps here & there 😊 Is there a teacher who you could speak to as well? Narcolepsy UK have a brilliant website which is full of information so you could show your teacher & parents/close person the info & that there's a possibility you could have narcolepsy without having to 1stly explain it all, all schools should be aware of or at least heard of narcolepsy & will make allowances for you if diagnosed as having it or any a similar sleep disorder including exam times, a place to take naps when needed etc. the saddest thing is, people with narcolepsy are often labelled as lazy but we really aren't, we have absolutely no control over the times our brains decide it's time for us sleep! Have a read up on the website if you're at all worried because I guarantee you will at least be at ease knowing you're not alone, if by any chance you have No one to talk to, there are plenty of us there who will be only too glad to listen & help you where we can 😊 it may mean having to get really brave to be able to speak to a family member, a friends parent or teacher but it will be so beneficial to you once you have 😊 I & many others are members of narcolepsy UK so please come to the website if you need anything or any help what so ever won't you 👍😊 good luck huni you'll be fine xxx

    I've noticed more and more recently that I've been falling asleep in random places and at random times. Also, during my sleep that I have been told I've sent strange non-sensical text messages and also tried to facetime people in the middle of the night. (Scaring one friend who chose to answer and thought she was seeing something from a horror film as I sat there with head slumped and hair over my face not speaking) As I've thought about it more recently I remember being told off for falling asleep in meetings in the past, at the time I denied it and thought that the people were joking - I genuinely didn't recall it. More recently I've found myself heavy lidded in work and had to get up and walk around my classroom - I'm now a primary school teacher. I know from experience I have fallen asleep in some rather unusual places, including banging night clubs, in the middle of restaurants, in a queue for the London Eye - or so I was told!! .... Each of the times different independent people have told me of these situations so I'm thinking it's not like they are joking and winding me up. Seriously, as I'm writing this and recalling more, I'm not sure how I've not thought of this as a problem before. I think back to when I worked in the office and mid afternoon I'd disappear for a quick nap in the bathroom. Is this normal? Not sure what my question is really, just, I mean, what could I do?





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


    Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

    Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

    By posting on this website you are agreeing to abide by our community guidelines

    hi im 22 i have dizzyspells from time to time sometimes when i get up from sittin to fast but more worringly when i lye down flat i have to have my head proped up or slightly to the left side if i dont it feels like im sinking/falling down, this even happens when im asleep and wakes me up sometimes it probably wakes me up about twice a week but i always go dizzy/feel like i falling when i lye down flat or tilt my head back whilst lying down, i also have buzzing in my ears i been for a hearing test everything was fine i did some research and i thought it may be tinnitus but i not really been around a noisy environment or listen to loud music so im unsure if i have tinnitus but if i have tinnitus what is the explaination for my dizzyness im worried i may have some kind of tumour i have also suffered from migraine when i was about 11/12 for couple of years doctors said i would grow out of them which i seemed to have done but i am still worried as i have had these dizzyness/falling feelings for a good 5 years and now im a mum i just want to make sure iv nothing serious up with me should i see my g.p or is it something little





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


    Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

    Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

    By posting on this website you are agreeing to abide by our community guidelines

    Hello I cant answer your question but I have been suffering with dizzyness 24/7 for the last 4 years and no one will help me. I have 2 children and am 23. I find it very hard to go in an elevator because when I get off I still feel like im in it even when im walkin down the street. Four years is avery long time to be dizzy I really wish someone would help me before I go mad. I have suffered from migraie too. Also have funny lights in my eyes 24/7 and sometimes blurred vision. Realy need some help x

    Hi Lisa, I have been suffering from dizzy spells as you describe. I went to see an ENT specialist who told me I have damaged my inner ear from a previous ear infection. it makes me dizzy as the left and right esr are giving different signals and the brain cannot work out which is correct. I have been told there is no fix, b ut the brain will eventually compensate for it and i will return back to normal, but this could take any length of me. hope this helps.

    Show all answers for this question

    I am 19 years old and am always tired all the time. I have been to my doctors but my blood test showned that I do not have anaemia. I have very dark circles under my eyes but do not understand why because I have enough sleep every night. This is becoming a big problem now because I'm falling asleep a lot now, even in class.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


    Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

    Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

    By posting on this website you are agreeing to abide by our community guidelines

    i am having the same problem. Iv benn uber tired lately and i dont know why. \i go to bed at 10 and get up at 8. thats 10 hours of sleep and shouldnt that be enough?? ive fallen asleep in class everyday in at least 3 classes. what should i do? help :(

    have you checked your thyroid? i have underactive thyroid and im always exhausted. also sometimes when you get your iron levels checked it could show normal but one of the components or w.e that make up the iron could be extremely low.. my doctor was telling me about it...

    Show all answers for this question

    Hi, i am currently expiriencing tears falling from my right eye, they just seem to keep falling through out the day and i cant seem to stop them. I have tried using hypromellose but this isn't helping either. Any ideas anyone? xx





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


    Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

    Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

    By posting on this website you are agreeing to abide by our community guidelines

    Thank you for visiting our web site and for discussing your problem so openly. If you would like the opportunity to be seen by one of the Embarrassing Bodies Doctors and have your problems assessed and treated by a specialist, then why not apply for the chance to take part in the programme. Please visit the following link and click ‘Apply to be on the show’ where you can fill in an application form: http://www.channel4embarrassingillnesses.com/features/be-on-embarrassing-bodies/

    Im 47 yrs old and over the past 7yrs I can fall asleep just like that my eyes become heavy my whole body jumps and before I know it I'm gone, when I wake up I have no recollection of what I was doing beforehand, and takes me a few minutes to come round then I'm wide awake it feels like I've been asleep for hours this can happen up to 4 or 5 times a day. Sometimes I can fall asleep for a split second when I'm stood up its hard to explain this one it just happens but then I can carry on after as normal, I work as a senior carer and if I'm in a meeting or group conversation my eyes become heavy and I know I can't go to sleep I have to get up and move around or make an excuse to leave the room, I can be writing notes and drift off when I wake up I've made a mess of the notes and have to amend them. I have fallen asleep eating food, holding a cup of tea but haven't dropped the cup i have jumped and spilt the brew everywhere as I'm getting older I feel this is getting worse, I have mentioned this to my GP but they don't seem to take me seriously, when I go to visit my children they recognise the signs and jokingly they say is your narcalopsy kicking in mum and laugh, I know there is something wrong as this is not normal. Julie





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


    Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

    Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

    By posting on this website you are agreeing to abide by our community guidelines

    I have insomnia which i have had for 2yrs now, im 14 and in the middle of y gcse's. i also have alopecia areata which ive had for 1yr and a half, however, there has been no memrable events to cause me not to sleep, ive tried varouis exercise routines, diets, sleeping routines etc none have worked, im not allowed sleeping pills due to my age nor do i want them as i dont believe them to work very well, im stressing now becuase im becoming short tempured, and lassig out on the people i love, i need help now, im getting by on 2-3hrs sleep per average night, im falling asleep in lessons and ruining my chances of good results, i dont know what to do and this is my last resort, im trying so hard no to give up but its become exceedingly difficault. I need help now i havent had a fall nights sleep in over 2years! PLEASE SOMEONE HELP ME!





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


    Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

    Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

    By posting on this website you are agreeing to abide by our community guidelines

    as soon as i start to fall asleep i start itching all over my body even in my ears and all over the face. this happens no matter where i am even if i fall asleep on the sofa or anyones house i start itching please help it drives me nuts, And no rash at all





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


    Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

    Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

    By posting on this website you are agreeing to abide by our community guidelines

    ya i suffer th same have u any info on it ?????

    no and i never ever have a rash. And it only happens when i am falling asleep, it drives me nuts

    Show all answers for this question

    Hi my hair started thinning 7yrs ago after a breast abcess. I have been to numerous doctors abo amd all blood tests are normal. I was given aldactone 200mg per day. my hair stopped falling out but started falling out again 6months ago. I was referred to a dermatologist who took a 2 second look at my scalp and diagnosed me with androgenic alopecia but he will not carry out a scalp biopsy due to the side effects. I wanted to try dianette but he would not prescibe it. What else can I do? As a 29yr old female this is getting me down.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


    Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

    Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

    By posting on this website you are agreeing to abide by our community guidelines

    I am a 36 yr old woman and I have a problem that whilst I am asleep (deep sleep) I wet the bed and do not know I am doing it. There is no problem while awake only when asleep. The GP has tried two different types of medication (first started with a S and the second with a D; sorry do not know the name) I have recently been diagnosed with mild diabetes (food controlled) following child birth with an 18 month old daughter. The problem started around the age of 5; have tried various bed alarms which scared the daylights out of me. I am obesely overweight and over the last six years it has got worse as it is now every night. It is affecting my family as well as my wellbeing and is adding additional stress on everyone. My GP seem to be more concerned about my diabetes. Diane





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


    Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

    Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

    By posting on this website you are agreeing to abide by our community guidelines

Show more…

    im 21 and ever since i can remember i have needed to sleep during the day even if i do get 8 hours of sleep.(or more) When coming home from school i always had to go to bed otherwise i would end up falling asleep anywhere. People have always said i was lazy and the doctor said it was depression but i would not say i am a unhappy person. i now have a child and find myself needing to go to bed when ever i have a chance or i will end up falling asleep when looking after my child. I also feel very tired after i have had some food.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Hi i have sleeping problems, as i am falling asleep i see myself falling through mid air then i suddenly see the floor and i causes my body to jump which causes me to jump up in shock this doesnt happen every night but this happens on most occations also when im asleep i have been told i cry,laugh and scream out loud my emotions vary on what dream im having i have had it ever since i was a child and the doctors told my mom i would grow out of it i have stopped sleep walking but everything else has stayed any idea on how i can stop this





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    About 6-8 months ago I started falling asleep during the day at work. It is uncontrollable- I am very aware that this is happening but I cannot stop it. I do have sleep apnea and use a cpap machine but I don't feel that this awful, sudden, fatigue has anything to do with the sleep apnea. In fact, since I started using my cpap machine on an everyday basis this seems to have gotten worse. I am lucky that the person who sits across from me at work wakes me up - she says that I snore softly but that's because my head falls forward. I take Nuvigil but I still fall asleep. This is scary for me- I can't afford to lose my job because I am falling asleep at work. This is so bad that I fell asleep at the hair salon while having my upper lip waxed. I knew the hair removal was taking place and I still slept through it. This is awful.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    My daughter is 9months old & has been having night terrors for 2 months now. It is every night and happens about 5 or 6 hours after falling asleep. Most websites say it happens early into falling asleep. She thrashes around violently, screaming & seems extremely distressed. I have tried everything!! I've tried giving her a bottle to calm her, picking her up for a cuddle, going into a different room that is cooler. I've tried putting her to bed earlier, later, with a night light & I've moved items out of the room incase they scare her. She has a great routine & has calm down time at least 30mins before bedtime. I'm now stuck for what to do. I don't know what else I can try, it's taking it's toll on us.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Go and see your doctor (again). 2 or 3 times a day is a lot. Are you REALLY bored in class? Or trying to stay awake? do you have any strategies for trying to stay awake? If you hate it and feel embarrassed then these are all things you need to say to your GP. Ask for a referral to a neurologist, preferably one based in a sleep clinic. Inability to focus can be the first stage of falling asleep in these circumstances. I don't think you're being daft. Narcolepsy IS a rare condition, and falling asleep can be a symptom of many other things. Attitudes like that above is probably why the average time for diagnosis for narcolepsy is 10-15 years (not kidding). Good luck.

    I am only 14 and whenever I watch TV or go to the movies I always fall asleep. Also when we watch films and DVD's at school I keep falling asleep. I do not know why this happens. Is there anything I can do to stop this?





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    I'm 39, when i eat something, 10 minutes later i start to fall a sleep ,day or night, i feel tired most of the time, and even on a cold night when i'm asleep ,i wake up by my sweat rolling of my bodie ,and some times i don't relise i am falling asleep, is this old age creeping up on me ?





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    I am no pretty certain I have narcolepsy I have lost a very good job due to falling asleep during the day standing up , my whole body shuts down , if I don't go to sleep. My eyes start to roll and I look like I am high. When I laugh my knees buckle and I loose control of my body, it doesn't matter what time of day I wake up usually 4 hours after being awake I start feeling tired and need to sleep. If I am sat down at an office desk for example I will start to doze off and when I awake I literally have forgotten what I did the previous 20minz or so before my sleep attack, sometimes I can be in a sleep haze where I can still carry on with what I am doing but after I can't remember , it started in my teens I just and everyone else thought it was laziness . I can't go on a train with out falling asleep straight away often missing my stops , planes I basically go in and out of sleep modes , I need help I really do , but where do I start





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Hi Julia, I'm 42 and was only diagnosed both narcolepsy with cataplexsy 3 years ago. I believe It began during adolescence and worsened after each child. My doctor used to say I was depressed, I must of been the happiest depressed person you could meet. Which leads up to being such a jolly person when I'm awake, when I laughed my knees buckle,vision blurred, head nodding then total collapse and paralysis for a few seconds. The doc told me not to laugh. There are a lot of other symptoms that really are not nice. I.m still finding everyday life difficult, but have reduced work to part time. The medical really controls my cataplexsy but the modafinal sometimes doesn't. I know it's a horrible illness to live with but I try to be possitive and think of others with conditions a lot worse. I do sometimes get down, I wouldn't be human otherwise, (maybe I.m not lol). Remember your not alone with this, even though it feels it at times. Hope this helps you.

    Hi Julia im 19 and the same thing happens to me. I fall asleep very easily for example in lectures, watching t.v and doing work. When i laugh my knees buckle and i have muscle weaknesses in my face. Im currently having tests done at a sleep clinic to find out what the problem is. You should definitely go to your doctors as my doctors transferred me to the clinic after they thought i was lacking from vitamain D but i knew it was more serious, and now it finally feels like im getting the help i need.

    Show all replies in this thread

    Hi my 6 year old son for 2 years now and getting worse has been falling asleep at the most random times,like while eating talking and playing with friends he fell asleep on a rubber boat in a swimming pool on holiday this year with lots of kids splashing around him he dosnt sleep well at night and binge eats a lot he also would have really bad nose bleeds day and night even while he sleeps any help wud be greatly appreciated worried mother





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    I used to be like that when I was young. We used to go to Nascar & Indy races when I was his age and even fell asleep there. Look up narcolepsy without cataplaxy. It's good you are trying to figure it out at a young age. I was in my early 20'S when diagnosed. I couldn't stay awake in school. Grades bad because I wouldn't concentrate.. too busy trying to keep myself awake. I do not sleep well either.. my quality of sleep is poor. Good luck!

    I used to be like that when I was young. We used to go to Nascar & Indy races when I was his age and even fell asleep there. Look up narcolepsy without cataplaxy. It's good you are trying to figure it out at a young age. I was in my early 20'S when diagnosed. I couldn't stay awake in school. Grades bad because I wouldn't concentrate.. too busy trying to keep myself awake. I do not sleep well either.. my quality of sleep is poor. Good luck!

    I'm 26 years old the last few months I am having problems with weird sleep problem. I will be talking right in the middle of a conversation with my husband and like a switch be out (sleeping?) this can last a long time or very short periods it's not a normal sleep I think of things while in this daze really hard random stuff while in the trance but when I wake up I don't remember what I had been talking about before falling asleep nor what I was thinking about while dreaming. I don't realize I have even fallen asleep. I also have A.D.D I cannot control my dozing off





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    I have been falling asleep for a while now. It used to be mainly if i was travelling to and from work and when i do fall asleep i can feel myself dreaming. Sometimes it's almost like being drunk or being unconsious but aware of the unconsiuosness. Now it happens in the house. Most nights if not every night when i come in from work i lie on my bed and can fall asleep for a hour or so and sometimes i have the feeling that i am unconsious/dizzy but aware of it. I have had countless blood tests and all of which thankfully come back normal but i just want to know what is wrong is with me. I am 28 now but this has been happening for a few years now. Also sometimes when this has happened for instance if i am sitting on the sofa and rest my head back and then when i wake up i can feel my heart racing. I was advised in 2007 i had SVT but this is not severe enough thank goodness to require treatment. I also have asthma and am on treatment for this.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Hi, I'm Ella and I'm 14. I'm wondering if I have narcolepsy... I can't get through a day at school without falling asleep even though I sleep for like, 8 hours at night, at least. I sleep when I get home, during lunch and during classes. Usually during class I'm asleep for the first 20 minuets or so and for the rest of the time I haven't got a clue what I'm doing cos I've missed the intro! At first I thought I was just being lazy but nobody else does it and when the teachers tell me to get up I physically can't and they just get more annoyed with me. I also think I could have that cataplexy thing but I can't be sure. When I'm walking or laughing my knees will suddenly give way and my face goes limp. I don't know how to explain it but it scares me. I'm really worried and confused and I don't know what to do so please help me!! Who do you go to to be tested for it? (I have talked to my GP but he said it was nothing) Thanks x





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    By the sounds of it ella, I believe you do have the symptoms of narcolepsy. As soon as you mentioned the about falling asleep all the time in class ect. I used to do exactly the same, and when I was taking my gcse's I fell asleep in between and when I woke up I couldn't remember a thing, my mind literally went blank and had no energy to move. Also, as soon as you mentioned the buckling of the knees when your laughing, this is very common with "narcolepsy with cataplexy" and also the mention of going limp in the face. Don't be scared, the more scared you become the worser it will get honestly. The reason for the buckling of the knees is because you've had a strong emotion ie laughter (can happen when crying, scared, excited, worried, surprised and even arousal) you body is loosing its strength in muscle tone and your body is going to sleep. This is why your knees tend to buckle, and your face goes limp. When you sleep, your body goes stiff so you can't act out your dreams, and this is what happens when you laugh. Your body goes to sleep, but your mind is awake. Soon you may start suffering when laughing that your head will fall down, and you will try lift it up but it will fall straight back down, and also feel paralyzed/limp in the face this is again due to the muscle tone, as its gone weak and your body think its time to go sleep. You will be able to hear things but you won't beable to move or speak, this will happen until the moment you've stopped laughing. I would say go back to your gp and mention these symptoms, however Its very likely they will reply that its nothing as they may not be enough evidence ie other symptoms you've experienced. However if the gp says it is nothing keep going back every month, and explaining that your worried etc and then they will potentially put you forward for a consultation with a neurologist. At the consultation you must tell them everything you've experienced, its best to keep a diary of what happens during your normal day recording when you've fallen asleep etc this will look good on your behalf as it will give some evidence. Start this now as you can take it to the gp when you next go, and times after. If the consultant believes there may be a possibility you have narcolepsy they will put you forward for testing. They will attach electrodes to your scalp and monitor you over a night period and will look for any unusal activity whilst asleep and will look at how fast you go into REM sleep, and how often, REM sleep is the sleep when you dream, and then the following day you will go for further testing and be montiored from 9:00am till around 5pm and will have periods of time to go sleep whilst being monitored. They will do this around 4-5 times depending how many times/fast you fall into REM sleep. From then you will have another consultation around a month later and will find out whether you have narcolepsy or not. Also when you see the consultant he/she may want a video of when your laughing etc to see what happens (tip is to get a friend family member to record you so you can take that on your first consultation. Do not worry too much if you have narcolepsy you will be treated straight away and given medication which will help reduce the sleepiness during the day, and may improve your lifestyle. P.s if you have had the flu jab in the past year or two, this may be a cause of the narcolepsy like symptoms so if you have had it make sure you mention this if you visit a consultant. All the best, x

    I was told to wake my children up 45minutes after falling asleep to interrupt sleep pattern. It worked immediately for both of them.





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Hi I have a lump in my right Breast it's sore and I can feel it when I am trying to go asleep I'm afraid to tell my mam and worrie about it all the time and over the last few weeks my hair is falling out when I am brushing it ahh what should I do?





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Hey Im constantly tired and cannot last a day with out falling asleep after school i get 8 hours sleep almost every night . Im 16 and i dont like the fact that i cant just come home and go out with my friends . Please help





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    im 29 and have 4 children under the age of ten my youngest is 14 months when im not keeping myself busy i ten dto find myself falling asleep on the couch either in the mornings or when i get in from picking myself other three up from school can u help





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    I've had ET for 30 years. Beta Blockers have been really helpful but now it's getting worse. I was wondering if anyone else gets jerks on falling asleep as for the past couple of nights this has been waking me up





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    I have the same problem as you as well as other disorders. I too have had this problem for a long time it makes me feel like I am about to fall off something like a ledge or the bed it wakes me wide awake again so I have to start the sleep process all over again I find that if I do a check before I try to sleep that I am on the bed properly and I tell myself that I am safe and nothing is going to happen it sometimes help. sorry I cant be of anymore help but I hope it helps to know you are not alone, by the way I am a 47 yr old female and have been suffering for many years

    My partner of 6 years snores very loudly, and was always tired, and falling asleep, one afternoon i sat and filmed him for 15 mins on my camera, -when i showed him, and he realised the breathing rhythm,and amount of tossing/turning etc he was referred to a sleep specialist who diagnosed sleep apnea, and he was given a mask and machine -( "CPAP" by RESPIRONICS) although he has to sleep with it on at night , he wakes -having had a good nights sleep, and doesnt fall asleep so much -hardly ever -in comparison to before ---i would advise anyone with this problem (or partner )with it to try this same (although maybe drastic)first way of drawing your GPs attention to it-if only to make them aware of the severity-it worked marvelously in our case





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Hi am am 14 now but not so long ago i dropped my nintendo ds on my front tooth when i was falling asleep and it left a small chip so i got a filling but i am worried as my teeth look a bit yellow and that is a faded white and will it ever fall out?





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    i have been clenching my teeth all my life. it wasnt a big problem until about 10 years ago. i was made a hard plastic nightguard, which i chewed to pieces within a week. then i had a softer more rubbery guard made. i found i was taking it out and hiding it, whilst asleep! until i couldnt find it. i then had a referral with a recontructive dentist, who suggested a titanium guard, at a cost of £1500, but no guarantee i would keep it in whilst asleep. it has also been suggested that the fillings which keep falling out because of the grinding should be replaced with gold inlays at a cost of £800 per tooth, again with no guarantee i wouldnt grind them out!





    This will be published. Surnames, nicknames or usernames are not allowed


    Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


    Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

    By posting on this website you are agreeing to abide by our community guidelines

    Jackie, one of the main root causes of this problem is stress. A stressful job and/or homelife may be the trigger in your case. Breaking this habit can be difficult but achievable...by finding time and seeking avenues (light exercise/relaxation/yoga/hobbie etc.) to relieve it.

Show more…

Can't find the condition you were searching for? Suggest a condition for us to add to the site


Important Notice

The information provided on this website (including any NHS Choices medical information) is for use as information or for educational purposes only and is not a substitute for professional medical care by a qualified doctor or other qualified healthcare professional. We do not warrant that any information included within this site will meet your health or medical requirements. This Embarrassing Bodies site does not provide any medical or diagnostic services so you should always check with a health professional if you have any concerns about your health.


If you want to embed our videos in your site, read our embedding T&Cs here