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    I have recently been told that i have hyper-mobility syndrome but i had an injury on my right knee when I was about 7 i am now 24 and the last year or so my knee has been swoolen and very pain full and i have all so been going to the gym as was told my physiotherapy to go but it just getting worse I have doctors on monday but i dont wont to be just told to lose weight as they do what should i ask for to be done about it and can i get any support for my knee for the gym to stop it going back so much i also have started getting pain in my left knee to can you get DLA for this hyper-mobility syndrome?





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    I also have hypermobility & was diagnosed after having back problems (have also had knee probs). With this condition you need to keep yourself physically fit & healthy so your physio is right in saying you need to exercise. However, you need to be doing exercises that are appropriate for your knee injury - the physio should have advised you on this. Swimming & cycling would be good as they are non-weight bearing activities. I would avoid running/high-impact aerobics/squats/lunges etc until you have a proper diagnosis of your knee injury. If you are very overweight then you will need to listen to your doctor & take their advice - I lost 6 stone after my back problems did not improve even after surgery, and what a difference it has made! Make a list of your symptoms, and some questions to ask, and take this with you to the doctor. Also check out info on the Hypermobility Syndrome Association website. Good luck!

    Could you please advise: I have been to countless doctors, MRI, specialists, sport doctors and we are still battling. Kyla is 15 years old and has extreme hypermobility. She has torn and injured ligaments in her wrists, ankles, knees are a problem, her shoulder, scapula moves up causing her clavicle to sublux and nearly dislocating. Her pelvis is rotating potentially causing her femur to sublux. Her quads are pulling tight affecting her patella- pulling it to the side, causing pelvis to rotate and vertebra to compress. Basically her ligaments are too weak to support her joints, most muscles are too weak to support her joints, some muscles are too strong pulling bones out of place. She is in so much pain. How can I help her? What treatment would work? She is thin, intelligent motivated and driven but cannot live a normal life- please help us to get her back to a normal life style. It breaks my heart to see her suffer with pain all the time.

    How do i know if I have ADD/ADHD? I dont know if i have it or is just me being pure lazy, i kick my self up the backside because i can't complete things. went to 6form droppedo out because i was always late and never in, Went to college dropped out and always late but i enojoyed the course but stil.... Is it because i lack willpower? Ive made a appointment with a doctor soon but i can't help feeling its just me lack of will power





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    I am 18 and was diagnosed with ADHD when I was 8. It sounds like a posibility and I can relate to it because I was expelled from school in year 10 (age 15) and since then have had to sort myself out pretty much. I've been on loads of different dosages and medications and have got the right one for me now. Everyones different with it as I have a friend who's also 18 who has had ADHD diagnosed since he was about 14 and he takes no medication as he learnt to control it better. See someone, take advice and see how you feel

    I can relate to you on this one. Im a 25 year old female and has recently just be diagnoised with Adult ADHD. Reading your comment I noticed you saying you droped out of education few times, A few years back i was the same, Just about managed to get through college, however I had two atempts of going to University and only lasted two months. I always felt different like there was a blanklet covering me. I battled with depression for few years and that was when I did my own research. ( what the internet is good at) I researched ADHD and i was surprised that all the symtoms of it i have and have had all my life! I managed to get my doctor to refer me and now my life is on track with the help of different kinds of therpy and medication. hope this is some help.

    i am 30 yrs old and have a total lack of libido i have been to my doctor and she sent me to a sex therapist who i seen for 3mts and after we finished our meetings she sent me back to my doctor who then told me that there was nothing else she can do for me i have been with my partner for 8yrs and this is getting really affected by my lack of libido and i dont know where else to turn for help





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    iam 54 suffered spinal stroke hypertension gout ckd sleep apnea limited mobility can anyone advise best help to lose weight nhs dieticians best advice not to eat anymore than 90grams of fat per day





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    Hi, I’m a 53 year old male that has mobility problems and classed as obese. I have been having trouble with dripping when going to the toilet for some time and have had medication from the Doctor, but this has not stopped it, but when I go in the morning and also some times during the day my urine has a very strong smell. Is there anything else I can do to try and help my situation?





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    I was involved in a motorcycle accident back in June, 1972 when I was 14 years of age, which compressed my spine at 7th and 8th thoracic vertebrae, leaving me paraplegic requiring a wheelchair for mobility, with no feeling below my ribs. For years, until 2008, I used a condom catheter since I lost voluntary control over my bladder and urination, but due to more sustained leakage because of slippage, I now have a supra-pub catheter inserted into my bladder, bypassing my penis. I have learned to deal with being paralyzed, which includes lack of feeling and usage of my lower body, that is all but sexual dysfunction. I miss the feeling provided by sexual activity tremendously! I haven't had an orgasm since before the accident. I still have full erections, both due to manual stimulation as well as spontaneously; however, when my penis is in relaxed state, it withdraws until it...disappears! It recedes and drops out of sight. It becomes so embarrassing that I can't find the courage to talk to my doctor about the issue! The whole reproductive paralysis issue has been so embarrassing, such as penal withdrawal during foreplay, that I have not attempted intercourse. Yes, you heard me right, I have never had the full sexual act. Am I the only one to have such problems? Is my life going to continue to be sexless?





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    i'm no expert in the medical sense about your penis but i wouldn't worry about living your life sexless. if you find the right woman she will understand and help you through it. you just need to remember if any woman doesn't stick around because of it then she is not worth being with. get the courage to talk to your doctor about the disappearing penis but i would think its not a big deal as my ex partner had the same thing happening from time to time. hope things get better for you

    2 years ago i got ill i was normally fit and well i have a problem with walking one day i will be fine and can walk normally and the next i cant walk at all i have to use a mobility scooter to help me get about.I have seen doctors and they dont know what has caused my legs to stop walking every test i have had has come back as normal i have seen a specialist and they have said i have m.e but im not convinced so please could you help me and give me some advice





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    Hi Michelle, I have several sugestions: -See a neurologist to see if you have any type of muscular dystrophy. -Have a very detailed MRI Scan of your spine, especially your lumbar spine -Blood tests to check for VDRL and HTLU 1, Hepatitis B and C (I think you could have these done at an STD Clinic) -Lumbar puncture to detect infection, including herpes -Have you had genital herpes? This could be the cause -Have you had an antibiotic from the Quinolone family? It can cause this type of problem as a side effect, for a long time -Did you have the Swine-flu jab (the Pandemix one available in 2009) about 3 to 4 weeks before your problem started? I hope you find all this information helpful

    I have had mri scans full blood count everything come back fine. It all started a couple of months after i had the contracepive depo injection and i think this has caused some problem with my muscles but no one knows what i have i have

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    I AM 37 AND HAVE ALWAYS STRUGGLED WITH EYE CONTACT AND SCORED 36 ON THE TEST WHICH CONFIRMS MY THOUGHTS THAT I MAY HAVE A FORM OF AUTISM. I AM ATTENDING A CPN FOR DEPRESSION AS I LACK THE ABILITY TO FORM ATTACHMENTS BUT NO-ONE WANTS TO GIVE ME A DIAGNOSIS WHICH I CAN WORK WITH. I MANAGE IN DAY TO DAY LIFE BY TRYING TO FIT IN BY BEHAVING AS I SEE OTHERS DOING, BUT JUST DON'T FEEL NORMAL AND PEOPLE HAVE NOTED MY LACK OF EYE CONTACT AND DON'T KNOW HOW TO GO FORWARD FROM HERE. WHO DO I SEE TO GET A DIAGNOSIS IF I KNEW WHAT WAS WRONG WITH ME THEN I COULD WORK ON FIXING IT, AS IT IS I FEEL SO LONELY BUT CAN'T DO ANYTHING ABOUT IT. I CAN FORCE MYSELF TO MAKE EYE CONTACT BUT AM NOT COMFORTABLE WITH IT AT ALL....





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    I am a 51 year old woman. I have never found sex enjoyable and have never been given an orgasm by another human being. Over my life, each partner has had an affair due to my lack of interest which has also left me distrustful. My current long term partner of 8 years is now losing patience. I am seeing a sexual therapist but the appointments are a month apart. The first month I had to do pelvic floor exercises, the second month I have to play with food in my mouth ?? It is 8 months since I approached the gp for this referral and quite frankly am feeling desolate at the lack of help it is giving me. I have said this is my last attempt. If sexual therapy cannot help then I feel I am best to simply withdraw from relationships and any attempt at sex. Help....what do I do, where do I go ???





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    I am a 21 year old hetrosexual male with very little body hair. I have no hair whatsoever under my armpits and only a small amount of wispy, very fine pubic hair in my genital area. I have no facial or chest hair either, however I am of normal stature (6ft tall) with a normal head hair and a normal sized penis and testicles (6" x 5 1/2") I find it extremely embarrassing in changing room situations with other men but the worst situation by far is when a new girlfriend, (who so far have all been much hairier than me, by the way) sees my virtually hairless body and says something like 'I wish I didn't have to shave all the time' - and 'you're so lucky' which is not really what I want to hear. Do you think my lack of body hair may be down to a lack of Testosterone or could it be something else?





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    I am 51 years old.my mother has really bad lymphedema in both legs and her mobility s very poor.i have heard this could be heritory .my mother says hers is primary but I know neither of her parents had it.i think hers is more to the fact she is obese,has varicose veins,arthritis and lack of mobility.i have become obsessed with this and it is making my life hell.i am constantly checking and measuring my legs.my gp just says keep an eye on them.i spend most of my life caring for my mother and mauling myself to get full length stockings on her.i am getting to the point that I hate having to do it because it makes me ill constantly worrying it will happen to me.





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    I am 42 and now 18.5 stone . I put on circa 4 stone this year due to being diagnosed with rheumatoid arthritis and to help get mobility back ive had 5 intramuscular steroid injections this year hence the additional weight I can't move! Please help, as the extra weight (of course does not help my joints). I was previously very active with 60+ hour job, lost it through my lack of mobility . I swim 4 times a week which helps my joints but does not impAct weight loss? Dr Christian advised on today's show that you are looking for people in my situation ( or similar). I would really appreciate help! X I can't go to gym and run for other exercise due to painful joints and with not working, it's difficult to eat healthily all the time. Kind regards





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    Amanda, I have been disgnosed with this back in 2008. The only problem I get along with the lack of mobility is I keep getting ill with bugs and infections all the time as my immune system is at an all time low. I would love suggestions to maybe improve this for me as with a 1 year old its hard hen I am ill on times.

    You have exactly the same prob as me, I too had the bone shaved off but it has grown back after just 2 years. Mine is caused i believe thro too much mobility in my mid foot area. Orthotics alone dont seem to solve it. Try extra support (to reduce the mobility) by lining your shoes with thick padding around the mid foot area to reduce the mobility. My foot hurt for a bit after the op but rarely does so now. I am also 57 and feel i may as well be 92. I wear walking boots most of the time but now even they are feeling tight and my third toe blisters where the bunion is pushing it across. I suffer from hypermobility which is why my third toe slides too, it is murder, you have my thoughts.

    Hi, I had surgery to correct my double scoliosis 11 years ago at RNOHT Stanmore. I was 18 at the time. I have been fused between t2-l3 & have a lot of metal instrumentation inserted along the lenght of the fusion (basically the lenght of my spine). Yes, my spinal mobility has significantly been reduced, however, I feel you & your body adapts & you just learn to live with it. On a day to day basis, I dont even think about it now. Everything has become second nature. There are times when I find the lack of mobility annoying & yes, it does prevent me from doing certain things (certain pilates moves, sit-ups, twisting when reversing the car) but on the whole, it does not bother me. Even with a perfectly straight spine, I can still bend over & touch my toes for example as most of this movement comes from the hips. Opting for surgery is pretty drastic & if your curves are stable & not likely to progress & they arent having a detrimental effect on you, it is worth thinking long & hard before you choose this option. Mine would have only got worse so I didnt really have a choice. I was suffering so much before. I hope this helps a little -PL-

    My name is lucy I'm 44 yrs old and weigh 20 st. It started in 2009 size 16 I slipped a disc in my lower back,I had a disectomy Nov 09 unfortunately it failed,I'm left with severe pain in my low back and down right leg and foot. I have been going regularly to the pain clinic ì was put on morphine gabapentin nortriptyline peeicyazine clonazepam as well as injections in my spine after a few years they took me off morphine and replaced with methadone. I have joined slimming world and lost about 1 st .my knees have arthritis and I'm too fat to be operated on, I have limited mobility and crying out for help with my weight ,apparently half of my medication has weight gain, at present I am not having any help today I was told by my consultant that to better my mobility is to have a mobility scooter ,I fill gutted and left depressed and over wit with no help. Please help.





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    Last year I was approved for a gastric sleeve as I weighed nearly 18 stone as I had an accident and broke 2 discs in my spine. Over the last 5 years I went from ahealthy size 12 to a 24 due to lack of mobility not over eating. Unfortunately I had a serious problem with my gallbladder and had to under go an emergency gallbladder removal but it stuck to my small bowl and was very ill afterwards. I told my gp I no longer wanted the gastric sleeve as it had taken 9 months for my wound to heal through infections and lefteme with a huge jagged deep scar under my right breast stretching across for about 10 inches my stomach and under the breast is still numb now just horrfic pins and needles. The point is I have now decided I want to go ahead with the op and no onewill re refer me they just dont want to know. Please can anyone give me any advice where I go next





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    Hi, I have really thick semen when i ejaculate and it's only ever happened since I had testicular cancer two years ago and this was how I found out I had testicular because I then realised my testical was really hard, my consultant says there is nothing wrong with thick semen and refused me a fertility test, I then went to my doctor and managed to get a fertility test which came back as satisfactory with my sperm count been low at 6 million per ml and the average been 25 million per ml, but my sperm having good mobility, but if my semen is thick I can't see my mobility been good as I have left it for a while to see if it goes watery but it doesn't, please shed some light on this for me as me and my partner are trying for children.





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    My 4 year old son was diagnosed with PS. He is missing all or part of his right pectoral muscle and we've recently noticed some lack of strength in his upper body. Has anyone else experienced this lack of strength? Does Physical therapy help with this?





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    Hi my son is 14 months old and we are currently waiting to find out if he has PS. Was this something quickly diagnosed for your son. Thanks x

    Yes, the diagnosis was pretty quick. We originally only noticed the small hand size (on the right side only) and some webbing between his fingers so the doctor first called it something else. When he was 18 months and went back for another check up, we had also noticed the difference in his chest on the right side. These symptoms were really all he needed to make the diagnosis. He said he could tell by looking at him that his pectoral muscle was missing. We haven't had any sort of scan to see which muscles are there or aren't there...but wondering if it'd be helpful to find that out? Hope you get some answers soon! What tests are they doing that are taking a while?

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    Is the lack of breast tissue formed at puberty the result of a lack of a particular hormoan? Also if transexual men are given hormoan tablets to help and encourage them to develop breasts why are women with little or no chest not offered the same treatment?





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    I agree totally! I Dont see why they cant give it to females.

    You can use your tongue. Women love that. Mix it up though. Most women get more frustrated with the lack of closeness than the lack of orgasm.

    my husband has very bad varicus vains on his legs which i8s affecting his mobility and the nhs will not do anything about it as he is only 28 is there anywhere in the derby area which will see him without a referal from his gp





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    try bathing using Oilatum for 15 mins and then applying dovobet ointment (not cream).its no cure but its what gives me most relief and mobility

    Hi. I am 28 now and I too have this problem. When I was about 10 or so, my mom started to notice the abnormal development of my breast and became concerned. I can attest to the fact the some doctors (my pediatrician at the time) do laugh it off as if there is nothing wrong. I don't blame it necessarily on a lack of care but would consider it more of a lack of knowledge. In my now professional medical experience, we (as doctors) do not know everything there is to know about every medical issue but instead of admitting that we pass it off as idiopathic. Had my doctor admitted that he couldn't understand why my breast were growing in that way, I could have had this fix by now. It is embarrassing and it has always made me feel uncomfortable around guys, as if they can see (even with me being fully clothed) that I wasn't normal. It also makes me feel like less of a woman because I lack the appeal of that one feature that outwardly defines me as a woman.

    Hi Hattie just read your letter regarding scoliosis, i had a major operation where a harrington rod was placed,i was 37 years old and had a server curve of over 48 degrees, at the top of my spine starting from the neck to the middle of my back also have a curve at the bottom of my spine as well, i know when you think about a rod with screws attached to your spine you may find it scary and opt to not do anything regarding surgery, but please think very carefully about the benefits and problems which may accure. im now 48 years old and feel if i hadn't had surgery my life would be a lot more difficult where mobility is concerned. The surgery itself was painfull but within a few days i was able to walk with a little help, and have never looked back, it was the right decision for me my curve is still there but by having my spine fused it hasn't been able to get any worse.mobility wise i do pilates and find it very helpful in keeping flexable, i can still touch my toes, bend side to side easily, pilates is great for strenghthening the core muscles which is the best form of exercise for someone with scoliosis. I hope this helps you hattie take care.

    My son has schitzophrenia. I'm thoroughly disappointed with the lack interest by his mental health team in his progress. His care co-ordinator sees him once a fortnight for his depot and other than visits from a family councellor there's nothing. There's a list of some 25 people waiting for CBt.and just one psychologist available. A bloody disgrace ! There's no support worker in sight and no-one with some authority/interest to help him. As a parent I feel totally frustrated by the lack of professionalism within social services, not least the lack of response to my numerous 'phone calls about CBT. Someone needs to investigate the whole issue of care, treatment and therapy of schizophrenics living at home with parents, in 'supported' accommodation and those caring for themselves. There would be tears shed at the revelations. From a very concerned parent.





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    My son, who lives with me, also has schizophrenia and I agree with your comments. My son has been having a depot once a fortnight for over 8 years now. He doesn't have a family councellor or what used to be called a "social worker", the depot nurse seems to have to cope with everything. A previous nurse once informed me that there was a short life expenctancy for someone taking his medication, I was very shocked to hear this and don't know how true it is. Recently he has been avoiding the visits from the nurse and receiving his depot and I'm not sure how to handle this. He seems ok at the moment.I don't know if he'l stay stable with it but can understand him thinking he's had enough of it. He hasn't worked for about 12 years now, lost his job due to paranoia. I want to see him get his life back but whenever I speak to someone connected to his case I hit a brick wall. From another very concerned parent.

    to harold and pamela, hi, i am diagnosed schizoaffective disorder-mixed type f25.2 which is both schitzophrenia and depression. this started at 17 yrs of age, i am now 45 yrs of age and have been in and out of hospital many times. i have found when ive been told im ill, i feel well and when im told im well, im ill and cant cope and feel suicidal. currently i am not seeing my community mental health team and do not wish to do so because they locked me up based on lies by others living around me and by lies from my so called care coordinator who i think isnt in the right job, he does not do things for my best interest. i have found the so called help is more of a hinderance to me getting on in life. i have been living on my own now for the best part of 13 years, and truthfully what i can suggest to parents with sons/daughters suffering the same...they need their independence, your son/daughter needs to approach someone in the support team/cpn, doctor or gp who they feel comfortable with, in order for them to get on. such issues as employment or housing or medication. i was on depot injections for over 10 years and i always felt it was too strong. if they cannot talk to their cpn, then they should be asking for to be seen by someone different. but realistically the choice to talk has to come from your son and not yourself. they need to make their own decisions and you not make choices for them. also try and break the "care" attachment you have with your son/daughter as this is not allowing them to lead their own lives. if they dont lead their own lives they will only find it harder to cope in time

    I have recently started to feel a lack of flow in my urine and lack of spurt in my semen. Feel heavy in my bladder even after urination. However there is no dribble after it stops but say 15 minutes later I once again feel the urge to urinate. I'm 48 years of age. Have started on a course of ciproflaxine. Please could you tell me if I'm suffering from BPH? Is it alright to have sex in this condition?

    Dear I am a 32 year old, mother of 2 small children. I recently received x-ray reports on my lumber spine region (AP& lateral) " "A grade 2 spondylolisthesis is present at L5/S1, with bilateral pers interacticularis defects. There has been a resultant degenerative change at L/5/S1 level. The remaining lumbar discs appear normal." " It notes on my report that an orthopaedic referral is recommended. I am unsure as to how to precede with this knowledge and what concerns this will mean for me. I would be very appreciative of any information. I suffer from all over joint pain, particularly on my right side (Knee), fatigue, lower back pain, disturbed sleep, I also suffer from incontinence when I exercise, numbness of lower extremities and consistent lack of mobility. It takes me more than an hour every morning to walk properly after I side shuffle up. I also experience sharp throbbing pains, which run from my elbow to the very top of my index finger/ring finger on my left arm mostly. I am very worried about my health and what this will mean for me and my family in the future as I had x-rays taken in december 2007 which stated that I had a grade I spondylolisthesis.





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    Having been diagnosed grade I Dec 2007 and grade II Sept 2013, have you a more recent update to this?

    Hi was wondering what its like to be circumcised? How it feels if theres no mobility and you experience living with a circumcised penis.and also how bad is your scar?





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    The scar is barely noticeable and i think a c penis s would be more attractive

    I was circumcised when I was 5 so don't remember before, its still sensitive when stimulated. Scar about a centimentre down shaft but it depends on surgeon as to size of scar.

    I am still visiting hospital after 33 years of having this . See my post down the page. In the past six months I was sent to a general surgeon in the hope that he would remove the cluster of abcesses on my labia and pubic bone. He point blank refused to touch it and actually stated it was too big a job and he thought a plastic surgeon would be better. I was referred to a very obnoxious plastic surgeon who informed me that my weight was to blame along with the fact I have type 2 diabetes. He stated that any graft would not take in that area as it was a messy place. He also commented on my successful grafts that I had previously. Obviously this ignorant excuse for a hunan had not even read my case notes. If he had then he would've known that I had NEVER been grafted in any of my 14 surgeries . Incision and drainage..yes. Packing ..yes. Surgery with stitching ......yes. I informef this person that I was NOT overweight when I developed this disease. I was around 8st 4lb. Nor was I diabetic . That occured 6 years ago. It seems that sufferers of H.S. are pigeon holed and put into a ceryain category. This man made me feel dirty. Yes I am now overweight because of the lack of mobility because of discomfort. I am also a sufferer of arthritis .....which seems to be amother related condition. To say that there is lack of understanding is a massive understatement. This man suggested I see a dietician !!!!!. As a person who is type 2 I eat extremely well. My diabetes is extremely well controllef and I have a first class diet. He then referred me to another dermatologist because he said I wss high risk fir anaesthetic. The dermatologist suggested yet another concoction of drugs which could affect my sugar levels and my thyroxine and lisinopril. So I have been given the option to take a cocktail that could make me ill. The dermatologist stated he could offer nothing else after this. He also said he haf done a survey on 14 patients. Out of the 14 eight people responded. However when the drugs were stopped sixmonths later the disease returned. In a couple of cases it wasnt too bad. In the remainder it was much worse. Regarding the other six of the fourteen there was no change at all. I am certainly not going to take somethong that could actually affect me in other ways whilst doing naff all to cure H.S.

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