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    do the lesions always itch with this condition? I have dry lesions on my lower legs that are getting more with age, and have not faded in 2 years, but they don't itch. My GP has no idea what they are - could it be this?





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    The lesions can itch when overly dry or hot but it's not usual. If your GP doesn't know what they are then get a referral to a dermatoligist and don't wait until they get worse. good luck

    i have had a M,R,I done and it shows i have several tiny white matter lesions within both cerebral hemispheres the largest is in the deep white matter of the right frontal lobe and measures 7mm most are located in the deep white matter but there are periventricular lesions adjacent to both lateral ventricular trigones and there are a few subcortical lesions. there is sparing of the temporal lobes. no brainstem or cerebellar lesion. there is a tiny lesion in the left anterior corpus callosum. no mass effect or restricted diffusion. no cerebellopontine angle mass. the fifth,seventh and eighth cranial nerves appear normal with no mass or significant vascular compression. so have i had a strok





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    I also suffer from HS, but my condition is getting worse. I have been on antibiotics on numerous occasions and I am due to get the lesions surgically removed from under my arms. The difference with mine is that when they do burst, the skin around that area is soft and weak due to the strain of the build up of puss underneath. So, when the lesions do finally burst, a chuck of flesh hangs out from the opening. Now I have two small chunks of flesh hanging out from under each arm and I am really concerned. It will greatly increase my risk of acquiring further infection and also causes hygiene issues. Is there anything you would recommend? I have tried silver from the GP to help close the wound but nothing to date has worked effectively.





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    Australian Tea Tree oil wash. QVC sell this in litre bottles - quite expensive but can be diluted. This not only is an antiseptic wash - but stops the nasty niffs too.

    thas exactly like mine its like something eating your flesh away its quite upsetting,i do bath using tea tree oil to try and keep it clean as mine is constantly drainning with puss,my gp has tried aquacel with me its a seeweed lint stuff and apparently its supposed to heal the holes that this skin complaint is leavingxxi have been suffering with this since the age of 14 im now 43 and a specialist did say smoking dosent help itxx

    I have also lesions under my eyes, can you tell me whats the best treatment for it, please I really need help.





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    My stretch marks on my inner thighs are starting to become red, raised and even turn into lesions, with the skin opening and becoming unbearable to touch. I'm only 20, a size 12 with no big weight gain or loss...is there anything I can do to stop this from happening?





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    On the program it does not mention how to stop the itching of DSAP. Have suffered constant intense itching without relief since lesions first appeared on legs only following heart bypass vein removal. diagnosed by dr but only prescribed e45 cream which is no help.





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    I've had DSAP for a few years now, mainly on my arms but also to some extent on my lower legs. My arms can itch quite intensely, particularly after sun exposure. My friend gave me some Doublebase cream to try, and this is the best treatment that I have found up to now. I lather it on morning and night, and during the day if necessary, and it certainly does calm the itching. Not sure if it is available on prescription only??

    I have been diagnosed with DSAP, only this morning. I had biopsies over a year ago that came back as Bowens desease and Aktinic Keratosis, there were many lesions and I was treated with cryotherapy and Efudex cream every couple of months but it didnt really improve, My dermatologist has now prescribed Neotigason capsules wich are a retinoid have I got all three problems I am a bit confused





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    I too have been advised I have DSAP, the itching is driving me mad, has anyone got any useful tried and tested advice to help ?

    I have had psoriasis since being a child and now I'm 20 its at its worst. I have large scaley lesions everywhere, from my scalp to my face to my legs. Ive tried numerous creams from tars to steriod creams but nothing seems to work! I have been referrred to see a dermatologist but the appointment is not for another 10 weeks and I am in so much pain as its continuously itchy, sore and bleeds quite a bit. Is there anything that anyone knows that I can use to calm it down until I see the dermatologist as its really getting me down. Many Thanks





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    I have the same problem and it is also driving me mad. I am taking 3 a day of neem and sarsaparilla, 2 of omega 3 and 3 of quercitin all of which I got from a health food shop. They are expensive but I think have helped a bit with the itching. I am hoping to have some uvb treatment at the hospital which worked for a bit the last time i tried that treatment, 15 years ago. I dont think the steroid or non steroid creams tha tyou get from the doctor make any difference at all apart from making you more depressed by looking at yourself whilst you are putting the cream on. I dont really know what else to suggest, I haev tried it all! I am seeing a homeopath as a last resort at the moment as he helped hugely with my asthma. Anything is worth a try. Good luck with it.

    how can i exercise when i cant feel my body form the neck down i find it hard to walk never mind run i have had an M,R,I on th 14 march 2012 and in bref it shows multiple small white matter lesions. appearances are nonspecific but the differential diagnosis would include demyelinating disease and smal vessel ischaemia. all i know is i am 5;10 and 16 stone and have a bmi of 32.2 and i need to find a way to lose some of it i have tryed eatting less and eatting as good as i can but still i am stuck at 16 stone





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    I am so embarrassed by the lesions on my legs. Going to a dermatologist was not fruitful. Why is no research being done on this? I started getting the skin circles on my lower legs in my lates twenties, which twenty years later are now numerous and a brown/purple colour, with the tell tale plug in the middle. I am now seeing pale circles on my cheeks. I am worried that these will become more pronounced in colour. Can anyone recommend a concealer for legs and face? I dread the summer season where everybody has legs on show....





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    I also have a classic case of DSAP which I inherited from my father. I diagnosed myself 25 years ago at the age of 37 when no GP or dermatologist could - I researched my symptoms on the internet. I try to stay out of the sun and keep covered - not fun in summer. I have found that Derma Blend ( purchased at the makeup counter at The Boston Store) conceals very well particularly for the less noticable lesions on my lower arms. I first apply a non greasy sun screen and then the Derma Blend which does come in different shades. You have to experiment to find the shade that works best for you and I often mix shades. I cover the area with a light dusting of baby powder which helps seal the Derma Blend. I wait 5 minutes then brush off the powder with a makeup brush. It works pretty well and lasts for a few days as the Derma Blend is water proof. My DSAP has gotten worse over the years no matter how I protect myself from the sun. It has covered most of my lower legs but thankfully only a small portion of my arms. I do have a couple of spots on my upper forehead but hopefully they are due to age not DSAP. Good luck to everyone coping with this unusual condtion.

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    I live in Sydney and have had dsap since my early 20's (now 50). The lesions have become a lot worse in the last 10 years. I manage it by wearing long sleeves etc always, but have lately started to wonder if there are other more worriying lesions as well, so need to get checked rather than thinking its just dsap.

    I have so many questions because I have been trying for 2 years to figure this out.I have been to so many Dr. apptments, I've lost count. I even spent a week at the clinic & got no answers. Are the material in the lesions sticky? Do some lesions leave crater-like pits? Now they have gotten into my scalp & I'm trying a new medicine called MC. $40 for 1/2 ounce & it came from the drugstore. Can someone please HELP!





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    HI Guys. I'm an adult who has had a case of this. Started in June with one/two bumps just below my belly button until spreading to around 20. In terms of a solution - they will start to scab up and go a little crusty eventually (6 month in my case). When each one did, I just had to pick it off. Yes it stings a little and there is bleeding but you get the virus part off and then your skin can heal over. Will get a slight mark but this fades. This is a horrible one and can feel a little helpless sometimes but it's not actually detrimental to health and does go away eventually. Just a case of being patient. Good news also is that apparently once had, you are immune to it in future! Good luck all.

    Try a soak in an epsom salt bath every night for half an hour. If it is working you will notice after the 2nd or 3rd bath. For my daughter we use about 2 cups of salt and I give her some in a cup to scrub itchy areas with. This is the only thing that has worked for her. It dries up inflamed lesions overnight.

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    Hi, Glad to find this site. I am 58 and have DSAP on my legs, arms, back, chest and face. I also have actinic keratosis lesions. It took me a while to realize that there were two separate conditions going on. I have used several cremes by prescription over the years, have had hundreds frozen as well. Nothing is great. I use tretinoin creme continuously. I apply it directly to the actinic keratosis lesions and it causes them to flame up and then go away. I mix a pea size amount with a skin creme and apply to face and arms nightly. It keeps then lesions more smooth. I also use dove gentle exfoliating soap on my arms and it does a great job of taking away the roughness without irritation. I am told it is unusual to have this on the face, but I have lesions on my nose, under my eyes and on my cheeks. These have developed in the last couple of years and fortunately they stay in remission as long as I use the tretinoin creme.





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    I have had actinic poro caratosis since early thirties. My dermatologist had me use RetinA, which makes your skin get really red and inflamed. However, if you continue to use it it will get rid of the lesions for a number of years. We used the retinA for my arms and used the freeze method for lesions on my legs. I have been able to control really well. I use facial sunscreen when I go in the sun.

    I have been diagnosed as having MC virus - its in my pubic area. Since noticing the lesions my eyes have been fire red and weepy particularly when I'm sleeping. The gum clinic say its not possible for MC to affect or get into a persons eyes. A pharmacist friend had me pull back my lower eyelids and says she can see what appear to be lesions. Can MC affect the eyes?





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    I am 29yrs old/female and I have had Behcet's since I was 3yrs old. I only had three symptoms of Behcet's - oral lesions, constantly being sick, and vaginal lesions. I now know that it is common for genital Behcet's lesions to be misdiagnosed as herpes, so *insist* on having lab tests done for your wife. I had to have three separate swabs and a double biopsy of the vaginal lesions all come back negative plus make the ObGyn aware of 10+yrs of oral lesions I had suffered before the doctor was able to make the connection. Without that doctor's insistence on figuring out what was going on, I might still be undiagnosed. The ObGyn sent to see a Doctor Jean-Claude Bystryn (the last name may be misspelled) out of Mt.Sinai Hospital in New York City, the doctor who ultimately diagnosed me Behcet's. There are other doctors in New York City, a rheumatologist named Dr.Harry Speira Sr (again, possibly misspelled the last name) on Park Ave and there is now a Behcet's center. A neurologist and a gastroenterologist can also be instrumental in the diagnosis and treatment of Behcet's. !!!!! I should have said this before but I just thought of it, ***PLEASE*** search for and check out the American Behcet's Disease Association website NOW. The website has lists of resources, from doctors to treatment to support groups. Go there asap, you will find alot of information and have the best chance of finding a doctor to diagnose and treat your wife. Good luck.

    Hi I have had white lesions all over my tongue, I have had it for a year now, ever since I fell pregnant it now has cracks on the sides of my tongue. I get this feeling at the back of my throat that something is stuck and won't go away, I also have numbness in my right side if cheek and neck, I don't no what it could be, I am very worried. My tongue even gets numb at times. It's very annoying. I don't no if the white lesions are ulcers cause I get them every day. I even feel very dizzy at times. I am only 20 years old and I am getting all of this, I don't no why!! Does anyone no???





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    i have also have a strange tongue since pregnancy, mine goes white and numb and has cracks :( i wish i knew how to fix this, its nasty isnt it!

    I know exactly how all of you feel.i have suffered for over 10 years since the age of 13. i am currently having the worst bout after the birth of my first child. i have several open lesions and have had 4 different courses of antibiotics and have had sepsis from them needing IV antibiotics, but many doctors don't get it-i am now waiting to see s surgeon again but in the mean time you are told to dress the wounds and get on with it!part of the problem is working in the health profession and lancing the lesions myself- i seem to be seen as capable to 'manage'. all i can hope now is that my baby girl doesnt inherit this horrendous condition and someday they can find a cure or if not at least a method of controlling the severity of the condition.





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    I want to have laser treatment on my bakini line, I have this condition on my bakini line, arm pits, bottom and top of my arms however I do not shave, wax or pluck hairs, the hairs which are ingrowing are new hairs which tend to be on my bakini line or in my arm pits and they become red, infected and sore, often breaking out into puss filled lesions and become scabbed and take months to heal even with antibiotics and creams. I use Hibi Scrub on my bottom in the shower and have started to use it elsewhere as well which seems to reduce the rash but not the lesions on my bakini line. I have had this condition for nearly 10 years and seen a dermotologist who just took one look and diognosed it and said nothing they can do apart from creams and antibiotics and live with it. I have got to the point where I always have lesions on my bakini line and these are scaring more and more and not healing properly causing more to appear. I need to have some other form of treatment to prevent it happening in this region before I become serverly scared and the condition gets worse. Can anyone recommend a NHS or private clinic that will perform laser treatment on hair folicals on the bakini line please? I have no idea where to look and my doctor is useless. I really need help.





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    hi im wondering if anyone has the same as me ive got loads of these white lesions all over my tongue and on the side ive had it for quite a wile ther reallyy small though! Could it be genital warts maybe? Ive got 2 of them down ther aswel well i think they are but ive looked at loads of pictures and they dont look anything like them and ther really small! Can thrush cause little white lesions all over the tongue?cause i think ive got that aswel as my tongue is got a white coating on it..please help!..





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    Having read all these comments makes me quite sad that so many of us are suffering without adequate support. I have been suffering from HS since the age of 7, I am now 43. At 15 I had the sweat glands removed from my right groin as they were a twisted lump. At 18 i started to develop sinus infection which was finally operated on when I was 23 after severe infection. I currently have two large lesions in my groin which I've had now for over two years. Antibiotics did not touch it. It goes through phases where it's dormant and then becomes infected and extremely painful. I also have the occassional one under my breast. I suffer from an under active thyroid and am currently being treated for depression. I have been told by my doctors that I may have these rumbling lesions for the rest of my life!!!! I intend to keep on at my doctors to find a suitable solution and would advise anyone here going through to the same to also keep pushing.





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    All very interesting to reassure read about. I was diagnosed with DSAP of fore arms and lower legs approx 20 yrs ago. This summer a larger lesion on the inside of my lower leg started to be commented on by others and when it had a blood spot on it I consulted my GP followed by a visit to a Dermatologist. Privately this time to avoid the wait. She felt there was nothing to worry about and/but prescribed some creams to apply. One contained a steroid, the other an antibacterial. Within a month my lesions had flared up and looked unsightly and embarrassing.yet I perseveres for another month. Looking at the poss effects of the creams I decided it might be the antibacterial and stopped using it. Soon after I stopped the steroid cream too. At the same time I stopped I was applying ALOE VERA GEL to a burn on my arm. Knowing it to have a therapeutic calming effect I used it on my arms and legs. The lesions undoubtedly would have improved without the AV but the improvement was quick and comfortable. My skin is back to and a little better than how it I was before this episode. I use the steroid cream on the worst of my leg lesions as well as the AV elsewhere. I will be seeing another consultant about the one concerning lesion and expect to be reassured that all is well if not a little unsightly. And that's the main point...ALL IS WELL....there are so many worse things I could be experiencing





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    As someone who's suffered with this disease for over 30 years, I can tell you with 100% certainty that long term antibiotics DO NOT WORK! The only thing that happens with long term antibiotics is you become immune to them when you need them for something else. H.S. is not a bacterial infection of the sweat glands, it is not a bacterial infection at all. When the lesions/boils are cultured, they come back sterile. There is no cure. Many doctors in the US are considering it an autoimmune disorder now rather than a skin disease. It is genetic. I have had HUNDREDS of lesions drained, and 2 major surgeries (wide excisions) and nothing helps. I have tried steroids and many of the natural treatments (tea tree oil, diet, salt water, etc). Nothing makes it go away. There are times it lightens up, and sometimes that co-incides with whatever treatment, but it never stays gone. You may get some relief after menopause.





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    What laser did you use on the lesions?

    It sounds like genital herpes you have. This can be caused by cold sores around the mouth (mainly the puss from the cold sore) coming into conact with any skin lesions of the lining of the vagina. It can be passed mouth to genital directly or if you have picked or squeezed a cold sore around your mouth and then touched your genitals without washing your hands you can get it that way. If you have unprotected sex with either male or female and they have any skin lesions that come directly into contact from the puss you may pass the virus onto them unknowingly. My advice is to go to any walk in nhs std clinic next to your local hospital. It's totally confidential. Not even you GP is advised that you've attended. You can also take a close friend for support, and you call them for the result, so no embarrassing letters or messaged!

    My lesions are on my lower legs only and do not itch.

    I have had DSAP for over 30 years (I am now 53) although nobody knew what is was for the longest time. I have a great dermatologist whom I see once a year. No treatment has helped me ever. I tried Effudex cream which BURNED my skin and made no difference in lesions. I am a runner and love to be outside as much as possible in nice weather. Sunscreens have NOT helped me at all and I have been read that they block the body from making vitamin D which is an essential vitamin. My doctor is amazed at my high level of vitamin D (a very good thing!) so I continue to NOT wear sunscreen. Yes, the lesions are ugly and get more red when by body is hot and look more whitish/scaly otherwise. I have come to terms with it. i go sleeveless if I want to and wear shorts in the summer. If people can't get beyond my lack of perfection, that is their problem...not mine. I do get tired of explaining to "curious people" though that this is not something they can catch from me - it is a rare hereditary disease.





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    I admire your attitude, you know its bad even when a nurse respondes with an "Oh my" Has anyone found anything that works to lighten the dark spots, Your right, it is what it is and people who ask me if I have measels dont understand. Reading has made me know, I'm not alone

    Dear Anne, Where are your lesions and do they itch? Just curious. Best Regards, Ray

    Hi Amy, do you find that exfoliating makes the lesions worse? I am worried about doing that because I don't want to get sore.

    i have red lesions on the insides of my thighs and there not scabbed but its starting to spread to my other thigh, what could this be?





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