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    I have been refereed to the hospital recently. And the doctor I had examined my bones and ligament movement. He came to the conclusion that I have hyper mobility, and my ligaments are long and stringy rather than 'short and fat' But I also have problems with my bones, and especially my hips. Sometimes it can be so painful I cannot walk properly, I also have problems with my fingers, and I can dislocate my jaw & wrist. I have to start have physiotherapy on my bones to learn how to live with the pain. Would there be any possible drugs/medication i could take to help this? That I could pick up from a drug store. Thank you.





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    Hi, I’m a 53 year old male that has mobility problems and classed as obese. I have been having trouble with dripping when going to the toilet for some time and have had medication from the Doctor, but this has not stopped it, but when I go in the morning and also some times during the day my urine has a very strong smell. Is there anything else I can do to try and help my situation?





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    Hi, im a 20 year old female and have had mobility problems since the age of 9. I've been told i have growing pains, hypermobility syndrome, artheritis, multiple sclerosis but all tests and scans have come back clear. My syptoms seem to be getting worse and more frequent. Over the past year my symptoms seem to include paralysis in my back and in my legs. I also have problems with my wrists, hips, shoulders and ankles. I have not yet met a doctor or specialist who knows what is wrong and have today been told that there is nothing else anyone can do. I've had no injuries or accidents that could have caused any of the pains. Does anyone have any ideas what it could be?





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    Please see Professor Rodney Grahame, the world specialist on Ehlers-Danlos (hypermobility) for a definitive diagnosis (London). There is an international Fascia Congress site which has useful information for the various forms of what is now called hypermobility but has various manifestations. You need to keep exercising (moderately) and therefore need to see an exercise therapist or personal trainer (not a physio)as strong muscles will continue to support weak joints. Good luck.

    I have recently been told that i have hyper-mobility syndrome but i had an injury on my right knee when I was about 7 i am now 24 and the last year or so my knee has been swoolen and very pain full and i have all so been going to the gym as was told my physiotherapy to go but it just getting worse I have doctors on monday but i dont wont to be just told to lose weight as they do what should i ask for to be done about it and can i get any support for my knee for the gym to stop it going back so much i also have started getting pain in my left knee to can you get DLA for this hyper-mobility syndrome?





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    I also have hypermobility & was diagnosed after having back problems (have also had knee probs). With this condition you need to keep yourself physically fit & healthy so your physio is right in saying you need to exercise. However, you need to be doing exercises that are appropriate for your knee injury - the physio should have advised you on this. Swimming & cycling would be good as they are non-weight bearing activities. I would avoid running/high-impact aerobics/squats/lunges etc until you have a proper diagnosis of your knee injury. If you are very overweight then you will need to listen to your doctor & take their advice - I lost 6 stone after my back problems did not improve even after surgery, and what a difference it has made! Make a list of your symptoms, and some questions to ask, and take this with you to the doctor. Also check out info on the Hypermobility Syndrome Association website. Good luck!

    Could you please advise: I have been to countless doctors, MRI, specialists, sport doctors and we are still battling. Kyla is 15 years old and has extreme hypermobility. She has torn and injured ligaments in her wrists, ankles, knees are a problem, her shoulder, scapula moves up causing her clavicle to sublux and nearly dislocating. Her pelvis is rotating potentially causing her femur to sublux. Her quads are pulling tight affecting her patella- pulling it to the side, causing pelvis to rotate and vertebra to compress. Basically her ligaments are too weak to support her joints, most muscles are too weak to support her joints, some muscles are too strong pulling bones out of place. She is in so much pain. How can I help her? What treatment would work? She is thin, intelligent motivated and driven but cannot live a normal life- please help us to get her back to a normal life style. It breaks my heart to see her suffer with pain all the time.

    I have a rare neurological condition called Neuromyelitis Optica. I take a lot of medication for it the main ones being Mycophenolate Moffetil 1500mg and Prednisolone 30mg although until recently it was a higher dose. I have put on lots of weight over the past 3 years and I know weigh 101kg and am 5ft 5ins. I have mobility problems. I am unable to walk without a crutch, I have no balance (positive romberg)? I have incontinence problems and have also recently been registered severely sighted. I will be 34 next month but feel more like 94! I would love to loose weight but don't know where to start. I eat 4 small healthy meals a day but I still put on weight. I try to exercise what I can but find it very difficult, I have severe ataxia in my legs, I can't hold my arms above my head as they are weak and the main issue is my heart is racing all the time. My resting rate varies between 122 and 134bmp. I am currently waiting to see a cardiologist. I am also permanently hot and sweating. Blood tests have ruled out thyroid problems and diabetes. I'm hoping someone can give me some advice. I'm desperate. Thank you.





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    Is it possible you have Cushings Syndrome due to the prolonged use of high dose steroids? I am being investigated for this currently and it can cause many symptoms including excessive weight gain around face, neck and trunk.

    I am 24, 5ft 2inches and 11 stone. I have been diagnosed with PCOS albeit borderline, I also have severe mobility issues and my family (distant and close) all have problems with diabetes, their hearts or cancer. I am really worried that if I cannot find some way of losing weight without further damaging discs and nerves that I will end up like everyone else. I eat in proportion to the amount of moving I do and love vegetables. I did ask for Alli but the GP's fob me off, I tried sit ups but crippled myself for two weeks. Also, as I am at the doctors way too often, I feel embarrassed about asking for a diabetes and cholesterol check. I really feel like a hypochondriac :( Can someone please give me some much needed advice??





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    I am 22 years old, female. I was born with 'clicky hip syndrome', which I have been told is not un-common in new born babies. My mother has osteoarthritis in her hip and knee and had a hip replacement aged 50. My Grandmother has Osteoporosis and Scoliosis and i have recently been told my Great Grandmother had very un-even shoulders (one dropped down significantly more than the other). When i was approximately 10 years old i started to experience pain and problems with my right elbow, it would snap and over extended a lot. Over the years it got worse and by the time i was 17, it would often dislocate, lock, pop, crunch and snap and cause pain. I had a mini - reconstruction and was also diagnosed with hyper mobility syndrome. The reconstruction initially helped, although as time has gone on my elbow will lock on the odd occasion again, and snaps quite often still. I am 22 years old now and slowly my entire right hand side of my body is gradually experiencing the same problems i had with my elbow. My hip is causing quite a lot of pain (very achy and throbbing), it pops and snaps a lot and i can feel it grating when i move it (you can hear it grate as well) My shoulders have always been un-even, but now my right shoulder has dramatically dropped and my scapula dislocates very easily. My doctor is new to the job and she is amazed that i feel no pain when my shoulder is popped out? It is only uncomfortable. My right knee over extends quite badly now and aches and snaps quite regularly. The surgeon who repaired my elbow was worried about this joint at the time of my surgery on the elbow and he predicted i would need similar surgery on this knee in the future. My right ankle again has the same issues as above minus dislocation. Apart from the surgeon who repaired my elbow, the only thing doctors can tell me is that i have hyper mobility syndrome and all i can do is exercise and keep strong muscles to make up for the over elastic ligaments and shallow joints. At age 22 i am now at the stage where working out is leaving me in pain? Please can someone give me an answer to what the problem could be? I am sure that i have inherited something, it would be great to know how i can prevent my joints from getting worse and put a name to what the issue may be. Thanks





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    Hi,HMS is inherited.I have a severe type of hypermobility syndrome so I understand what you are going through.Unfortunately surgery is not the answer most of the time.I can't let you know everything you need to know as it would take ages but you need your gp to refer you to a rheumatologist. Thats not always easy depending on where you live. Also go onto the HMSA website where there is a lot of info that will help you, you can become a member and receive newsletters etc.

    iam 54 suffered spinal stroke hypertension gout ckd sleep apnea limited mobility can anyone advise best help to lose weight nhs dieticians best advice not to eat anymore than 90grams of fat per day





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    2 years ago i got ill i was normally fit and well i have a problem with walking one day i will be fine and can walk normally and the next i cant walk at all i have to use a mobility scooter to help me get about.I have seen doctors and they dont know what has caused my legs to stop walking every test i have had has come back as normal i have seen a specialist and they have said i have m.e but im not convinced so please could you help me and give me some advice





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    Hi Michelle, I have several sugestions: -See a neurologist to see if you have any type of muscular dystrophy. -Have a very detailed MRI Scan of your spine, especially your lumbar spine -Blood tests to check for VDRL and HTLU 1, Hepatitis B and C (I think you could have these done at an STD Clinic) -Lumbar puncture to detect infection, including herpes -Have you had genital herpes? This could be the cause -Have you had an antibiotic from the Quinolone family? It can cause this type of problem as a side effect, for a long time -Did you have the Swine-flu jab (the Pandemix one available in 2009) about 3 to 4 weeks before your problem started? I hope you find all this information helpful

    I have had mri scans full blood count everything come back fine. It all started a couple of months after i had the contracepive depo injection and i think this has caused some problem with my muscles but no one knows what i have i have

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    I have arthrofibrosis following a skiing accident 2 years ago in which I had a nasty tibial plateau fracture and an avulsion fracture. I have had 2 surgeries for the arthrofibrosis and am waiting for a third to remove a piece of bone and my cruciate ligaments as my avulsion fracture did not heal well. I know arthrofibrosis is not well known condition, but what else can be done? Every time I have surgery I just rebuild more scar tissue and it affects my mobility and leaves me in pain.





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    You have exactly the same prob as me, I too had the bone shaved off but it has grown back after just 2 years. Mine is caused i believe thro too much mobility in my mid foot area. Orthotics alone dont seem to solve it. Try extra support (to reduce the mobility) by lining your shoes with thick padding around the mid foot area to reduce the mobility. My foot hurt for a bit after the op but rarely does so now. I am also 57 and feel i may as well be 92. I wear walking boots most of the time but now even they are feeling tight and my third toe blisters where the bunion is pushing it across. I suffer from hypermobility which is why my third toe slides too, it is murder, you have my thoughts.

    My name is lucy I'm 44 yrs old and weigh 20 st. It started in 2009 size 16 I slipped a disc in my lower back,I had a disectomy Nov 09 unfortunately it failed,I'm left with severe pain in my low back and down right leg and foot. I have been going regularly to the pain clinic ì was put on morphine gabapentin nortriptyline peeicyazine clonazepam as well as injections in my spine after a few years they took me off morphine and replaced with methadone. I have joined slimming world and lost about 1 st .my knees have arthritis and I'm too fat to be operated on, I have limited mobility and crying out for help with my weight ,apparently half of my medication has weight gain, at present I am not having any help today I was told by my consultant that to better my mobility is to have a mobility scooter ,I fill gutted and left depressed and over wit with no help. Please help.





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    Hi im nikki and i was diagnosed a few yes ago now, i suffer sever mouth ulcers that go all down my throat and once had about 50 at a time. I have a very high crp because of it and esr levels are treble what they should be. I react badly to immune suppresants so living on steroids. Ive gained 6stone in weight, i have arthritis because of it and have to use a mobility scooter or crutches. Memory problems, all over pain, uveitis in my eyes at times, swallow problems, severe migraines that last days, had meningitis, been in hospital so many times because of it! Its not just ulcers for many sufferers. Its destroyed my life. I also have bowel problems with bowel ulcers and inflamation. I have fibromialgia and ME, also have EDS type 3, i am on morphine patches n pills. I take about 30 pills a day. I had never heard of it but have had symptoms since i was a child.





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    Bless you Nikki, you really do have it bad. I have Fybro' and find some days better than others. Some days I have so much pain even in my fingers and toes and all over my body. I have no energy to do anything and feel abnormally tired and because of this I become irritable and snappy and just have to go and lie down then I sleep like a log but I find it very difficult to switch off and sleep at night.My speech can be affected quite badly sometimes so much so at one point I thought I had some form of Dementia like my poor mum had, it was frightening. I now take anti depressants, pain killers, and anti inflammatory medication. I take 6 tablets in the morning and 4 at night and a few in between. To me this illness should most always be seen as disabling because for so many of us it is.I too had some of these symptoms as a child and no one understood why - I do now.

    I am 51 years old.my mother has really bad lymphedema in both legs and her mobility s very poor.i have heard this could be heritory .my mother says hers is primary but I know neither of her parents had it.i think hers is more to the fact she is obese,has varicose veins,arthritis and lack of mobility.i have become obsessed with this and it is making my life hell.i am constantly checking and measuring my legs.my gp just says keep an eye on them.i spend most of my life caring for my mother and mauling myself to get full length stockings on her.i am getting to the point that I hate having to do it because it makes me ill constantly worrying it will happen to me.





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    I keep getting ear infections im going dizzy and like im going over backwards ,my ears are blured and i feel reallu sick my stomach feels horrible and my mouth,tounge is white,and keep getting thrush in my mouth and swollen gums,had 3 lots of ear drops and now antibiotcs that i dont agree with and have made me feel worse,i keep burning up then shivering and my voice keeps going,im 61 live alone aslo have bad mobility problems and a hernia and ibs,and water problems,i know there is something badly wrong with me but fed up gettin no were with doctors its just take the tablets,it goes away then comes back again,hardly any good days any more lynda





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    Hi Hattie just read your letter regarding scoliosis, i had a major operation where a harrington rod was placed,i was 37 years old and had a server curve of over 48 degrees, at the top of my spine starting from the neck to the middle of my back also have a curve at the bottom of my spine as well, i know when you think about a rod with screws attached to your spine you may find it scary and opt to not do anything regarding surgery, but please think very carefully about the benefits and problems which may accure. im now 48 years old and feel if i hadn't had surgery my life would be a lot more difficult where mobility is concerned. The surgery itself was painfull but within a few days i was able to walk with a little help, and have never looked back, it was the right decision for me my curve is still there but by having my spine fused it hasn't been able to get any worse.mobility wise i do pilates and find it very helpful in keeping flexable, i can still touch my toes, bend side to side easily, pilates is great for strenghthening the core muscles which is the best form of exercise for someone with scoliosis. I hope this helps you hattie take care.

    I am 42 and now 18.5 stone . I put on circa 4 stone this year due to being diagnosed with rheumatoid arthritis and to help get mobility back ive had 5 intramuscular steroid injections this year hence the additional weight I can't move! Please help, as the extra weight (of course does not help my joints). I was previously very active with 60+ hour job, lost it through my lack of mobility . I swim 4 times a week which helps my joints but does not impAct weight loss? Dr Christian advised on today's show that you are looking for people in my situation ( or similar). I would really appreciate help! X I can't go to gym and run for other exercise due to painful joints and with not working, it's difficult to eat healthily all the time. Kind regards





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    Hi Rheanna, It's Chloe here. The definition of our issue comes under 'hyper-mobility' my problems mainly come from being too flexible. It's not arthritis according to my GP, although when I'm older it could create it. Me and my parents would advise your mum takes you too the GP as it can lead to serious implications in your bones. My GP was very useful, he passed me onto other doctors and specalist and like i said before I have physiotherapy, and I have to start another course of treatment soon, believe me although it's still quite painful at the moment it's slowly starting to show signs of improvement including less clicking. Hope this helps.

    Hi, I have really thick semen when i ejaculate and it's only ever happened since I had testicular cancer two years ago and this was how I found out I had testicular because I then realised my testical was really hard, my consultant says there is nothing wrong with thick semen and refused me a fertility test, I then went to my doctor and managed to get a fertility test which came back as satisfactory with my sperm count been low at 6 million per ml and the average been 25 million per ml, but my sperm having good mobility, but if my semen is thick I can't see my mobility been good as I have left it for a while to see if it goes watery but it doesn't, please shed some light on this for me as me and my partner are trying for children.





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    my son in law has suffered with this for 7 years now. all the treatments he has had have had no effect at all, not helped by a mis diagnosis in the 1st place , his les are now so bad that the pg has taken over both legs from knee to ankle, there surely must be a better treatment for this dreadful disease, it affects all the family as my son in law is only 37 with 3 young children, his involvment in family life is vertually nil due to pain and mobility problems, so children and partners also suffer, if anyone has any answers i would love to hear them gl to all





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    I also have Cystic Fibrosis and am currently in hospital at the moment. What people need to understand is that there are many different genes in CF so every person with CF is different. I have mobility problems just because my body is so tired and unfit and full of mucus all the time. The hardest thing I find is that because I don't LOOK ill, people will assume I'm able to walk to a shop with them, and bus drivers give me funny looks when I show them my bus pass. I even had a lady once ask me, bitterly, if my blue badge on my car was mine.





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    I also have cystic fibrosis and spent new year in hospital and get confronted about my blue badge also but what is the most upsetting is that people never ask they always assume the worst.....unfortunatley

    I too am CF & like you, don't look ill, which most of the time is fabulous & I love the fact people don't look & you & instantly label you & feel sorry for you etc - but you're right - it can be such a pain in the butt when you're really strugling to stand up on a train & nobody will give up their seat for you or when you get questions about your blue badge - I had a policeman ask me if I had a disabled badge when I parked in a disabled bay a month or two ago, I said "yes I do" & carried on with my business - when I got back to my car 15 mins later he was standing over it waiting for me & insisted I showed him the photo on the back as he didn't believe it was mine! I guess I should take that as a compliment that I look well(despite being on a transplant list).

    Hi im 34 and have been suffering with my symptoms since i was 22. i have two different problems, one in each foot. over the 12yrs ive seen many doctors, hospitals and specialists, and still no one can tell me 100% whats actually up with me, they all have come up with something differnt. at the moment theyre struck on Hyper Mobility Syndrome, and have simply based this on how flexible i am, but previously iv been diagnosed with Gout, Pulled Tendons, suspected joint problems etc, a whole range of stuff really, im at my wits end. i have had various treatments, such as electro therapy, n physio etc, also some injections in my foot for adding some sort of liquid padding to the sole of my foot, which realllllly hurt and has given me further problems. i cant stand on my feet properly, i cant get shoes on, it effects my life so much. i have gout symptoms in one foot - but its not gout, and HMS in the other foot! but to me i have sustained both injuries whilst wearing silly shoes, and i have not been given any kind of scan or xray to check if there is any damage done. i also have a vibration that happens in the foot they say i have HMS in. have you any advice on what or who i should see now. any advice at all. id even come on the show, iv always said to my friends now way but now this hospital has come up with yet another diagnosis without no real evidence of it or explanation im really tempted to walk into one of your surgeries, well hobble into one anyway. thanks for listening to me moaning about this, its appreciated.





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    Hi, I had surgery to correct my double scoliosis 11 years ago at RNOHT Stanmore. I was 18 at the time. I have been fused between t2-l3 & have a lot of metal instrumentation inserted along the lenght of the fusion (basically the lenght of my spine). Yes, my spinal mobility has significantly been reduced, however, I feel you & your body adapts & you just learn to live with it. On a day to day basis, I dont even think about it now. Everything has become second nature. There are times when I find the lack of mobility annoying & yes, it does prevent me from doing certain things (certain pilates moves, sit-ups, twisting when reversing the car) but on the whole, it does not bother me. Even with a perfectly straight spine, I can still bend over & touch my toes for example as most of this movement comes from the hips. Opting for surgery is pretty drastic & if your curves are stable & not likely to progress & they arent having a detrimental effect on you, it is worth thinking long & hard before you choose this option. Mine would have only got worse so I didnt really have a choice. I was suffering so much before. I hope this helps a little -PL-

    my husband has very bad varicus vains on his legs which i8s affecting his mobility and the nhs will not do anything about it as he is only 28 is there anywhere in the derby area which will see him without a referal from his gp





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    try bathing using Oilatum for 15 mins and then applying dovobet ointment (not cream).its no cure but its what gives me most relief and mobility

    Ive been having problems with my joints for years now, and I'm only 21. Originally I suffered from pain in my back, hips and knees, and I got a diagnosis of flat feet. Was given insoles, which helped a small amount for the pain, however, in the past 8months, the pain in my joints as spread to my hands, wrists, elbows, the whole of my back, as well as further pain to my hips, knees and ankles. All I got from the doctor was that I was suffering from hyper mobility syndrome, and that it shouldn't be hurting as much as it does. And that I should get fit. I do tai chi nearly everyday when I'm not in so much pain that I can't move, and I used to be a very active person before the pain, but now I'm limited to how far I can walk and go, and I really am struggling with just the basics of life. Please please help me.





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    Hi. I'm 40 years of age and currently weigh 28.5 stone and 5'4. With a BMI of over 68. I've mobility issues which have contributed to some of the weight gain (About 10 stone). I've asked my general practitioner for a referral to a dietician but since I'm not a diabetic I've been denied this referral now 4 times. When I've tried dieting myself with a caloric intake of around 1500 calories (On doctors advice) per day I became very weak and collapsed on a few occasions. And my iron levels dropped and took several months to get back to it's normal range. I've some other problems creeping up due to the immobility and weight gain such as lymphodema and a leg ulcer now that I've had for about a year. Please. Any advice would be greatly appreciated. How can I get a referral to a dietician? If I'm past that,then how can I get a referral to a bariatric specialist?





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    Hi was wondering what its like to be circumcised? How it feels if theres no mobility and you experience living with a circumcised penis.and also how bad is your scar?





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    The scar is barely noticeable and i think a c penis s would be more attractive

    I was circumcised when I was 5 so don't remember before, its still sensitive when stimulated. Scar about a centimentre down shaft but it depends on surgeon as to size of scar.

    I have the same problem. I have to wear a pad when going out. I even wet myself before I can get to the toilet. When i lie down I am fine but the moment I get on my feet, it is difficult to control. I have been to my gp. He was to refer me to an incontinent nurse but non in my surgrey at present. the last one resigned. I am 66 yrs old and my mobility is no too good which makes it worse. What can I do. The pad irritates me down below.

    Hi there im 53years old iv got Parkinson Disease along with Osteoarthritis Arthritis and a skin complaint... Iv been Told that i could not have surgery done on my knee due to my illness (Parkinson) im wondering if i still could go through with it by taking a 50/50 chance of losing my mobility??





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    Hello,hope things will get better. I am also 53 yrs young now this is my 13year with this Parkinson. I also have had 3 back surgery's 2 fusion on my l-1 l-2 l-3 &s1 and possible for l2 fusion in future. With my Parkinson dec1 2011 I had a deep brain stimulation done on me at UMC hospital in Colombia mo. Taking very little medicine since surgery.S o Charlie So keep your faith & head up .

    Sorry posted surgery date of 2011,the correct date is Dec1 2010

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