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    My sister inlaw has rheumatoid arthritis and osteoporosis. She has had a bladder infection for over two years now and the doctors say there is nothing more they can do. It is so bad she goes to the toilet between ten to fifteen times a night. She is desperate for someone to help her. Is there anyone out there that can help.





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    Has she tried 'Waterfall D Mannose'. I worked for me for a while but may not help chronic infection? It has a mild anti- inflammatory and helps to wash out the bugs too.

    My toe nails grow over the top of my toes and it is quite uncomfortable when I have to cut them also they are quite thick and hard. Any solutions please. I am a 60year old with Osteoporosis and find it difficult bending to cut the nails.





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    I am 22 years old, female. I was born with 'clicky hip syndrome', which I have been told is not un-common in new born babies. My mother has osteoarthritis in her hip and knee and had a hip replacement aged 50. My Grandmother has Osteoporosis and Scoliosis and i have recently been told my Great Grandmother had very un-even shoulders (one dropped down significantly more than the other). When i was approximately 10 years old i started to experience pain and problems with my right elbow, it would snap and over extended a lot. Over the years it got worse and by the time i was 17, it would often dislocate, lock, pop, crunch and snap and cause pain. I had a mini - reconstruction and was also diagnosed with hyper mobility syndrome. The reconstruction initially helped, although as time has gone on my elbow will lock on the odd occasion again, and snaps quite often still. I am 22 years old now and slowly my entire right hand side of my body is gradually experiencing the same problems i had with my elbow. My hip is causing quite a lot of pain (very achy and throbbing), it pops and snaps a lot and i can feel it grating when i move it (you can hear it grate as well) My shoulders have always been un-even, but now my right shoulder has dramatically dropped and my scapula dislocates very easily. My doctor is new to the job and she is amazed that i feel no pain when my shoulder is popped out? It is only uncomfortable. My right knee over extends quite badly now and aches and snaps quite regularly. The surgeon who repaired my elbow was worried about this joint at the time of my surgery on the elbow and he predicted i would need similar surgery on this knee in the future. My right ankle again has the same issues as above minus dislocation. Apart from the surgeon who repaired my elbow, the only thing doctors can tell me is that i have hyper mobility syndrome and all i can do is exercise and keep strong muscles to make up for the over elastic ligaments and shallow joints. At age 22 i am now at the stage where working out is leaving me in pain? Please can someone give me an answer to what the problem could be? I am sure that i have inherited something, it would be great to know how i can prevent my joints from getting worse and put a name to what the issue may be. Thanks





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    Hi,HMS is inherited.I have a severe type of hypermobility syndrome so I understand what you are going through.Unfortunately surgery is not the answer most of the time.I can't let you know everything you need to know as it would take ages but you need your gp to refer you to a rheumatologist. Thats not always easy depending on where you live. Also go onto the HMSA website where there is a lot of info that will help you, you can become a member and receive newsletters etc.

    I don't know if anyone will be able to help me or give me any advice on what I'm about to tell you , I am a Triple X female at the age of 27yrs and my doctors told my parents when I was a baby I would never walk sit or talk I proved them wrong my mum sent me to mainstream schools and I struggled from time to time but made it through .I have many symptoms which include OCD (checking) , Asthma, Chronic Depression and anxiety \ emotional issues , Stomach Problems, i have a smaller mouth than usual and i had 19 teeth took out all at once as my mouth wasn't big enough for my big teeth to come through i have Flat foot and also some Social Phobias. I had a operation at age 9 as i had a cleft pallet .I started puberty and my body started to change at around 12 yrs old where i put some weight on and at 14 had only 1 menstrual cycle since they my body has never really developed like any other what we call normal female .My bone structure is 3 years behind so my bones are 24 rather that 27 I have to take the pill daily as I do not produce oestrogen there for I have ovarian failure and I am unable to conceive naturally due to early menopause syndrome and i am also prone to osteoporosis . My main reason in contacting you is because of my weight i am obese and due to my ovarian failure and going through the menopause and my metabolism is very low therfor i find it very difficult in losing my weight i feel like my doctors basically don't care and i don't seem to receive enough support to help me it is like they don't understand . My BMI is at 41 and i need to lose weight not just for my self but also to get the one thing i can not do and that is to conceive naturally its so hard to find out that you will never have your own children but where there is help on the NHS you have to obied by there rules and be at a certain weight/BMI of 30 if and when i do reach my goal weight i will receive 3 free goes at IVF . i have found it very difficult over the years to lose weight and i don't know which way to turn for help next all i want is to conceive . i am hoping someone can help me in any way / advice . Also i have never come across any other female or male with an triple x syndrome / xxx chromosome until i met my partner David through my friend he is 31 and he also is a extra x hes syndrome is called Klinefelter syndrome which make things even more complicated for us both to conceive as he is unable to conceive naturally also . you can read about our syndromes by searching for them on any search engine Thank you for your time im sorry about the long essay Amanda Jane x





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    Hey ladies, gosh I was just checking my hotmail account and the reply to my comment on pmmd from a lady called Mary. For some reason I thought her reply,as well as my comment on this page was only a few months ago. Would you believe reply dated 25 April 2015, yes almost 1 year ago. Where has this year been. Im still undiagnosed due to moving around, having some mental health illnesses I needed to stabilise first and I have to say I have. I definitely have PMDD but I am so scared of finally getting a diagnosis. Does this sound mad? I guess, just thinking out loud now, Im really scared Nick Panay or Professor Studd, whoever I go and see, wont diagnose me because for over 20years, no one has listened to me when Ive told them ie professionals, mental health professionals there's something really wrong with me, other than mentally. I just dont "feel right". Since finding out about PMDD , after thinking I had Bipolar, even giving my blood for research to Cardiff University, Professor Craddock, Bipolar research whom after filling a Bipolar length questionnaire out, said I had Bipolar, Psychiatrists looking at my paperwork said no, I was a "complex" patient and didnt know where to start. Well I did, finally, PMDD. Ive, now, almost 5yrs of paperwork, research on myself which clearly shows Im suffering from pmdd. However, Im going to be very honest here, Ive also been using cocaine for 25years. As said Ive some mental health illnesses from PTSD, self harming, anxiety disorder, now Drug Psychosis (Nov 2014) which I do believe is also slightly menstrual psychosis which Ive now read about but I emailed the professor, Ian Brockington from Action for Menstrual Psychosis who said after reading my paperwork I sent him in November 2015, he didnt think I had any form of menstrual psychosis but it definitely looked like "severe pms". However, he didnt clarify "severe pms" IS PMDD!! Anyhow, Ive his email stating this whihc I guess will help me gve to a new GP. My experience of GPs is bad, the last one, being my Dad's GP surgery, after I moved back home from sheffield to kingston, surrey after 15yrs in 2014. My, then new GP, after purely only asking for a new Mental Health referral from Sheffield Mental Health Team I was under to a new one, asI needed to get on a Psychiatrist waiting list to get diagnoised officially, as had been on a waiting list in Sheffield for over a year before moving and to get a referral to a Gynceologist. Would you believe his reply was.. and that day I was severely pms/pmdd'ing as well as had been self harming, which I showed him. His reply to my requests. Why did I want to see a Psychiatrist, just to be labelled and he said he could not do the two things I asked as he was only allowed to do 1 referral at a time. REALLY??! On that breath, I took a deep one, like my wonderful Sheffield Mental Health CPN and wonderfful Sheffield Mindfulness Kundalini Yoga Therapy teacher had taught me, I breasthed in, counted to 10 and walked out or god help him, my anger issues I had bad then, I would have thumbed him one. Not long after, I endedup in A&E and diagnosed with Drug Psychosis as had a very bad episode, myself actually calling the ambulance ! Anyway over a year on, Im doing real good but as said living here and there as Ive had to detach myself from my Father (another long story - adopted father may I add !) and Im settled now and ready to register with a new Gp in Kent. I live with a good friend whose Bipolar I and anger outbursts and recently now Osteoporosis. She said her mental healt team are wonderful and her GP so.. its time but also is it time to sort the cocaine issue but my sheffield CPN agreed with me I dont have a serious problem. I actualy have been using cocaine mainly on my ovulation days and pms days as it did/does control my mood and some physicaly symptoms. Sorry for the long waffle but any thoughts, anyone? I so need to get diagnosed but am scarred and scarred all a GP will see is the cocaine. Im going to startattending CA as there is one local.





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    I too have severe PMS and it is also destroying my life. On my ovulation days I feel so tired and depressed it's like I am a complete and utter depressive. This lasts for at least 4 days, I then have at least 7-10 days prior to my period that I am not myself. On my normal days I am such a happy and positive person, but on my bad days, family dont want to be anywhere near me. I hate myself so much and want to end my life. What grabbed me about your story was your use of cocaine, on my bad days, I actually think that cocaine would benefit me, give me energy make me feel normal. How sad is it that we have to put up with this? Why cant doctors help us with this condition? Ive spent fortunes on all sorts of treatments, none of which have worked :(

    Hi, I got told when i was 14yrs old that i have Premature Menopause, now im 25yrs old and i have just got diagnosed with Osteopenia. Im on medication to help me. The doctor said i will get Osteoporosis around 35yrs old. I was woundering if anyone has any healthy remedies to help me with Osteopenia or Osteoporosis? Thank you





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    Thanks for advice - I had a bone scan at the time and I'm fine re bone density and risk of osteoporosis. Too late for my teeth unfortunately. Thanks again :)

    I have an under active thyroid, I also have Osteoporosis,of the Spine. I am 4ft 10 ins, and weigh 13 st 12oz. I work out at the gym, on a programme an Army PT set for me.I do intence 2 and 1/2 hrs in the gym, 6 days a week. I was advised to do NO CARBS, so no potatoes, no bread, no pasta, no rice. My Gp, is NOT helping in any way. And my PT, put me on a machine to do my body stats, my BMI 40%.





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    try some calcium ion supplements or sub in cheese into your diet instead of other foods as the calcium ions can stop some of the fat being absorped into the blood stream.

    I went to my dr to ask for help to lose weight and was told eat less move more as no fat people in Africa. 2stone later I went again and was told although I'm over 7stone heavier than I should b there's no medical reason for then to help until I have a serious illness to need medical intervention ... (Even tho 5deaths in immediate family with heart attacks&cancer all under 57 ) Go home eat more n make urself iller then well help so costing Nhs more

    I am 63 now. 18 months ago I broke a wrist ice skating (really!!!). 6 months ago I broke a rib leaning hard over a wheelie bin(!!). A couple of years after my menopause I broke a toe twice (diff toes). The only time I sought attention was with the wrist. Medics did not mention osteoporosis. Should I have asked to be tested. if the team read this can I suggest some basic guidelines for asking to be tested please. Thanks





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    I was watching the show and noticed that Dr. Christain told a boy to 'stop drinking milk' and he may find an improvement in his acne. As 64% of male and 71% of female teenagers in the UK don't actually get enough calcium, i think perhaps it would be more better to clarify 'cut out milk for a period of time-if theres no improvement reintroduce it........' & 'if you have to cut it out make sure to take a supplement or plenty of other sources'. We want to avoid the whole population of teens cutting out milk and well, lots of future osteoporosis for us then. Otherwise...great show though :)





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    I'm 24 years old. I was born with clubfoot and diagnosis wiith this same condition , not only this condition but a few others also ( osteoporosis and osteoarthritis ) over the years my condition will have its ups and down. I'm limited mobility due to joints and also have deteriorating bones as I get older.. but I'm blessed to say things the doctor thought I wouldn't be able to do, I do now.. they said I never conceive and I have a handsome 6 year old. They said I never walk nor lift and I'm able to do both ( not for long periods of time or nothing to heavy).. I have complications as I get older but I'm thankful to be alive...





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    Yes, your teeth are affected by anorexia very much. The lack of proper nutrition and vital nutrients have left your body weak. If you don't consume enough calcium (and vitamin D to help absorb it) your body will start breaking down bones and teeth, as calcium is stored in them. No nutrients -> tooth and bone decay. I suggest you get a bone scan to also check for osteoporosis.

    Hi , I am in late 30's and I have severe Endometriosis, my gynea has suggested removing my ovaries, but a my mother suffers from Osteoporosis (arthritus) ,and I would like to have children ...I have been recieving the strongest dose of IVF treatment , but been getting bad side effects so it is a slow precess - meanwhile my pains are getting worse and I am frightened that it may get to a stage of my organs getting fused together . I am seeing the ivf doctor who is trying to keep my ovaries so I can have children and my gynea doctor who wants hem out as it is a severe case - what do i do?





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    Please be careful with propananol...my blood pressure would drop and I would fall...first broke my arm, next Time I broke my collar bone and lastly broken ribs...at this point they figured out it was the propananol... I don't have osteoporosis just low blood pressure in General...I am waiting til the FDA approves the lazer focused ultrasound method to get approved...in stage three trials now at university of Virginia, Swedish hospital in Seattle and at a few other sites...already used successfully in Europe and this is done without surgery... Hope is on it's way!...





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    Lainie - would you mind please posting links to the info about the lazer focused ultrasound? Sounds very promising! Thanks.

    Hi Sarah I too was diagnosed with endometrisosis when I was 17 and suffered with pain even after having the endometriosis lasered away during a laparoscopy so can empathise with you! Speak to your GP about the Zoladex injection. GPs don't tend to prescribe it for longer than 6 months although a specialist has now written to my GP to prescribe for up to 2 years. The injections are given once a month and do cause menopausal symptoms such as hot flushes (which at 19 I find horrendous!) although I've now been given HRT to balance the hot flushes and other side effects of the injection including headaches and mood swings. The injection goes into your tummy and an anaesthetic can be given if you're squeemish like me :o) The HRT will protect your bones and prevent osteoporosis later on in life. Hope this helps x x

    I was frightened by passing, about once per week, what looked like black flaky powder around my stools. The time of the week coincided with the day I took Fosamax for osteoporosis. I reported this to the doctor who seemed puzzled and told me to stop the Fosamax while she organised a test on my stools. The black powder disappeared after stopping the Fosamax, except for the first miss, when it appeared two days afterwards. From then forward, nothing. The faeces test was negative for blood. Can I go back to Fosamax as it's only once a week and I'm afraid of forgetting to take the (every day) alternative. I take a lot of other medication because I have Parkinson's disease.





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    Hi there, I'm so sorry to hear you are in so much pain physically and pyschologically.I hope I can help a little even if it is to acknowledge you are not alone x I too am a recovering Anorexic and have severe Osteoporosis. I have just had a scare of fracturing my hip and my treatment offer wasn't HRT or the pill but a high dose of VIT D of 4000units per day for a month then the possibility of an infusion via IV of a biphosphates.Ask your Dr's about this? In then end I didn't have to have this IV injection as my VIT D level had sored !! I too suffer from pms having my periods return disgust me and I suffer from horrendous night sweats, breast pain but not so much stomach or back ache. Any idea how I can get rid of my symptoms? I also notice my mood becomes extremely low and very very tearful. As you know this is not good for the Anorexia. As I say today is history, tomorrow is a new day and is open to a world of possbilities so hang on in there ! xx

    Why is my doctor so against h r t patches. I suffer from hot flushes,stress incontinence, loss of libido and vaginal dryness. I am 65and had a full hysterectomy age 42 . I was on HRT for about 15 years without any ill effects but my doctor decided 2 years ago that she was not going to prescribe it for me because of the published risks ( which have turned out to be a very small increase for HRT users).Vaginal dryness and loss of libido are so severe that sex is a thing of the past and to even try intercourse is so painful. My husband is very understanding where sex is concerned but is worried about my stress incontinence and the increased risk of osteoporosis as my last bone density test showed slightly below average for my age.





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    I am suffering with the same symptoms , I also have been diagnosed with a condition called lichen sclerosis which causes itching and soreness and have been given steroid cream , but as the hydrcortisone should only be used sparingly as it can alter the skin I have to apply estrogen cream as well. My doctor also. Won't put me back on hormone replacement therapy, surely the benefits of h r t patches out weigh the slight risks associated with it . I also had a hysterectomy in my 40s and was on hormone replacement for 15years..I wish there was an answer to this problem as the symptoms are very distressing

    I am a senior citizen & have been on omeprazole for over 8 years, but very concerned about side effects (osteoporosis, swelling of joints, vitamin b deficiency, vomiting, diarrhea, etc). I stopped taking it 2 weeks ago, and have had severe acid reflux, much worse than before I began medication. It has eased somewhat these last few days (I'm taking dgl licorice capsules, honey, 1tsp baking soda in a cup of water when nothing else works). I'm managing to keep most of my meals down now, but when I drink any cold liquids (even water), it flares up immediately. I had an endoscopy last year which was negative. My doctor only seems to want to prescribe more prescriptions for the acid reflux - I want to find out what's causing this. Does anyone have any suggestions? I thought once the omeprazole was totally out of my system, I would see an improvement. The only good thing is that I'm not having the vomiting & diarrhea that was occurring regularly when on the omeprazole. Please - I need answers!!!





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