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  • Tuberous sclerosis on the face

    Tuberous Sclerosis

    A genetic disorder caused by a problem with one of two genes involved in the process of growing cells in the body. Read more →

  • Atrophoderma

    Atrophoderma is a rare disease that causes large skin lesions to appear on the body. Read more →

  • DSAP on legs

    Disseminated Superficial Actinic Porokeratosis

    Disseminated superficial actinic porokeratosis (DSAP) is a rare inherited skin condition that causes dry, itchy lesions on the arms and legs. However, some people can develop DSAP as a result of immunity problems. It usually affects fair skinned people… Read more →

  • Acne vulgaris on the back

    Acne

    A common skin condition, which can affect the face, arms, back and chest with red spots and blackheads. Read more →

  • Bed bugs

    Bed Bugs

    Bed bugs were a problem that humans thought they had got under control, but recent years have seen a 500% increase in their occurrence. Read more →

    do the lesions always itch with this condition? I have dry lesions on my lower legs that are getting more with age, and have not faded in 2 years, but they don't itch. My GP has no idea what they are - could it be this?





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    The lesions can itch when overly dry or hot but it's not usual. If your GP doesn't know what they are then get a referral to a dermatoligist and don't wait until they get worse. good luck

    I also suffer from HS, but my condition is getting worse. I have been on antibiotics on numerous occasions and I am due to get the lesions surgically removed from under my arms. The difference with mine is that when they do burst, the skin around that area is soft and weak due to the strain of the build up of puss underneath. So, when the lesions do finally burst, a chuck of flesh hangs out from the opening. Now I have two small chunks of flesh hanging out from under each arm and I am really concerned. It will greatly increase my risk of acquiring further infection and also causes hygiene issues. Is there anything you would recommend? I have tried silver from the GP to help close the wound but nothing to date has worked effectively.





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    Australian Tea Tree oil wash. QVC sell this in litre bottles - quite expensive but can be diluted. This not only is an antiseptic wash - but stops the nasty niffs too.

    thas exactly like mine its like something eating your flesh away its quite upsetting,i do bath using tea tree oil to try and keep it clean as mine is constantly drainning with puss,my gp has tried aquacel with me its a seeweed lint stuff and apparently its supposed to heal the holes that this skin complaint is leavingxxi have been suffering with this since the age of 14 im now 43 and a specialist did say smoking dosent help itxx

    i have had a M,R,I done and it shows i have several tiny white matter lesions within both cerebral hemispheres the largest is in the deep white matter of the right frontal lobe and measures 7mm most are located in the deep white matter but there are periventricular lesions adjacent to both lateral ventricular trigones and there are a few subcortical lesions. there is sparing of the temporal lobes. no brainstem or cerebellar lesion. there is a tiny lesion in the left anterior corpus callosum. no mass effect or restricted diffusion. no cerebellopontine angle mass. the fifth,seventh and eighth cranial nerves appear normal with no mass or significant vascular compression. so have i had a strok





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    My stretch marks on my inner thighs are starting to become red, raised and even turn into lesions, with the skin opening and becoming unbearable to touch. I'm only 20, a size 12 with no big weight gain or loss...is there anything I can do to stop this from happening?





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    Hi does anyone have flegels disease? I understand I am 1 of about 60 people in the uk who has this. I have seen 2 dermatologist but so far nothing has helped. Would love to be in contact with other flegel sufferers so we can keep each other informed over treatments tried and found etc. My biggest problem is the itching at night. It's unbearable, I scratch in my sleep which not only means I don't get a good nights sleep but I also keep my boyfriend awake. I'm getting increasingly frustrated with the doctors just saying there is nothing they can do and I will just have to love with it. If I plead with them to at least help With the itching they continue to prescribe the same creams that I have already tried and didn't work. They also keep prescribing creams to keep my skin moisturised but my legs (this is where the lesions are) are not dry! And if apply the cream 2/3 times a day as suggested my skins just gets clogged up and means I easily break the skin when I itch as my skin is too weak. Would love to hear comments and any advice. Thanks





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    Forgot to add, that the lesions are mainly on my lower legs and on the inside of my calf area. I have thickened skin hich means I have to scratch really hard to ease the itch. Pinpoint bleeding occurs if I not off one of the lesions, I have tried many steroid and topical creams, Ive had them frozen off (well 100 of them as that wa the most he would do in one session), tried sun treatment all to no effect. I have tried hypnotherapy to try and stop the itch scratch cycle but nothing works. The itching increases at night and is unbearable when I get tired. It's is affected by heat And body temperature. I've An abrasion treatment, anybody had this?

    Hi I to have been diagnosed with flegel's disease and my feet also burn at night.I have tried pvu treatment but that only made my feet burn all the more. Have tried a lot of different cream and none have worked yet .Would like to hear your comments

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    I have also lesions under my eyes, can you tell me whats the best treatment for it, please I really need help.





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    I am so embarrassed by the lesions on my legs. Going to a dermatologist was not fruitful. Why is no research being done on this? I started getting the skin circles on my lower legs in my lates twenties, which twenty years later are now numerous and a brown/purple colour, with the tell tale plug in the middle. I am now seeing pale circles on my cheeks. I am worried that these will become more pronounced in colour. Can anyone recommend a concealer for legs and face? I dread the summer season where everybody has legs on show....





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    I also have a classic case of DSAP which I inherited from my father. I diagnosed myself 25 years ago at the age of 37 when no GP or dermatologist could - I researched my symptoms on the internet. I try to stay out of the sun and keep covered - not fun in summer. I have found that Derma Blend ( purchased at the makeup counter at The Boston Store) conceals very well particularly for the less noticable lesions on my lower arms. I first apply a non greasy sun screen and then the Derma Blend which does come in different shades. You have to experiment to find the shade that works best for you and I often mix shades. I cover the area with a light dusting of baby powder which helps seal the Derma Blend. I wait 5 minutes then brush off the powder with a makeup brush. It works pretty well and lasts for a few days as the Derma Blend is water proof. My DSAP has gotten worse over the years no matter how I protect myself from the sun. It has covered most of my lower legs but thankfully only a small portion of my arms. I do have a couple of spots on my upper forehead but hopefully they are due to age not DSAP. Good luck to everyone coping with this unusual condtion.

    On the program it does not mention how to stop the itching of DSAP. Have suffered constant intense itching without relief since lesions first appeared on legs only following heart bypass vein removal. diagnosed by dr but only prescribed e45 cream which is no help.





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    I've had DSAP for a few years now, mainly on my arms but also to some extent on my lower legs. My arms can itch quite intensely, particularly after sun exposure. My friend gave me some Doublebase cream to try, and this is the best treatment that I have found up to now. I lather it on morning and night, and during the day if necessary, and it certainly does calm the itching. Not sure if it is available on prescription only??

    I have been diagnosed with DSAP, only this morning. I had biopsies over a year ago that came back as Bowens desease and Aktinic Keratosis, there were many lesions and I was treated with cryotherapy and Efudex cream every couple of months but it didnt really improve, My dermatologist has now prescribed Neotigason capsules wich are a retinoid have I got all three problems I am a bit confused





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    I too have been advised I have DSAP, the itching is driving me mad, has anyone got any useful tried and tested advice to help ?

    I have had psoriasis since being a child and now I'm 20 its at its worst. I have large scaley lesions everywhere, from my scalp to my face to my legs. Ive tried numerous creams from tars to steriod creams but nothing seems to work! I have been referrred to see a dermatologist but the appointment is not for another 10 weeks and I am in so much pain as its continuously itchy, sore and bleeds quite a bit. Is there anything that anyone knows that I can use to calm it down until I see the dermatologist as its really getting me down. Many Thanks





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    I have the same problem and it is also driving me mad. I am taking 3 a day of neem and sarsaparilla, 2 of omega 3 and 3 of quercitin all of which I got from a health food shop. They are expensive but I think have helped a bit with the itching. I am hoping to have some uvb treatment at the hospital which worked for a bit the last time i tried that treatment, 15 years ago. I dont think the steroid or non steroid creams tha tyou get from the doctor make any difference at all apart from making you more depressed by looking at yourself whilst you are putting the cream on. I dont really know what else to suggest, I haev tried it all! I am seeing a homeopath as a last resort at the moment as he helped hugely with my asthma. Anything is worth a try. Good luck with it.

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    I have had actinic poro caratosis since early thirties. My dermatologist had me use RetinA, which makes your skin get really red and inflamed. However, if you continue to use it it will get rid of the lesions for a number of years. We used the retinA for my arms and used the freeze method for lesions on my legs. I have been able to control really well. I use facial sunscreen when I go in the sun.

    Hi, Glad to find this site. I am 58 and have DSAP on my legs, arms, back, chest and face. I also have actinic keratosis lesions. It took me a while to realize that there were two separate conditions going on. I have used several cremes by prescription over the years, have had hundreds frozen as well. Nothing is great. I use tretinoin creme continuously. I apply it directly to the actinic keratosis lesions and it causes them to flame up and then go away. I mix a pea size amount with a skin creme and apply to face and arms nightly. It keeps then lesions more smooth. I also use dove gentle exfoliating soap on my arms and it does a great job of taking away the roughness without irritation. I am told it is unusual to have this on the face, but I have lesions on my nose, under my eyes and on my cheeks. These have developed in the last couple of years and fortunately they stay in remission as long as I use the tretinoin creme.





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    I live in Sydney and have had dsap since my early 20's (now 50). The lesions have become a lot worse in the last 10 years. I manage it by wearing long sleeves etc always, but have lately started to wonder if there are other more worriying lesions as well, so need to get checked rather than thinking its just dsap.

    I have so many questions because I have been trying for 2 years to figure this out.I have been to so many Dr. apptments, I've lost count. I even spent a week at the clinic & got no answers. Are the material in the lesions sticky? Do some lesions leave crater-like pits? Now they have gotten into my scalp & I'm trying a new medicine called MC. $40 for 1/2 ounce & it came from the drugstore. Can someone please HELP!





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    HI Guys. I'm an adult who has had a case of this. Started in June with one/two bumps just below my belly button until spreading to around 20. In terms of a solution - they will start to scab up and go a little crusty eventually (6 month in my case). When each one did, I just had to pick it off. Yes it stings a little and there is bleeding but you get the virus part off and then your skin can heal over. Will get a slight mark but this fades. This is a horrible one and can feel a little helpless sometimes but it's not actually detrimental to health and does go away eventually. Just a case of being patient. Good news also is that apparently once had, you are immune to it in future! Good luck all.

    Try a soak in an epsom salt bath every night for half an hour. If it is working you will notice after the 2nd or 3rd bath. For my daughter we use about 2 cups of salt and I give her some in a cup to scrub itchy areas with. This is the only thing that has worked for her. It dries up inflamed lesions overnight.

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    Hi Gary, use them together or separately, it doesn't matter. It's simply a case of keeping the skin as moisturised as you can. If the lesions dry out too much then your skin will itch/





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    I am from London and I have DSAP. I was back and forwards to the GPs for over three years. Different GPs told me I had psoriasis or eczma andI was given different strengths of steroid creams that didn't help at all One day we have a newly qualified GP and he referred me straight away to the dermatologist at Guys. Unfortunately they said they couldn't do anything for me. They burnt a few off the first time I went. Those particular lesions improved after about 3 months but they didnt want to try any more as they take a long time to repair themselves on legs and I could have ended up with ulcers where they burnt them. I was sent to the Camaflauge Clinic. I spent a while there try to get make up for my legs. I was given a prescription for two lots of make up (the people were very nice by the way) unfortunately the chemist had my prescription for 6 months, I got one of the colours but they couldn't gat the other colour even though I kept popping in every months to see if they were able to get the make up. I have to say the doctors at the hospital were very nice but all I can do is cover up and use a high factor sunscreen. I usually wear long skirts or jeans which is annoying in the summer. I have read hair, blue eyes and pale freckly skin

    It sounds like genital herpes you have. This can be caused by cold sores around the mouth (mainly the puss from the cold sore) coming into conact with any skin lesions of the lining of the vagina. It can be passed mouth to genital directly or if you have picked or squeezed a cold sore around your mouth and then touched your genitals without washing your hands you can get it that way. If you have unprotected sex with either male or female and they have any skin lesions that come directly into contact from the puss you may pass the virus onto them unknowingly. My advice is to go to any walk in nhs std clinic next to your local hospital. It's totally confidential. Not even you GP is advised that you've attended. You can also take a close friend for support, and you call them for the result, so no embarrassing letters or messaged!

    I have been diagnosed as having MC virus - its in my pubic area. Since noticing the lesions my eyes have been fire red and weepy particularly when I'm sleeping. The gum clinic say its not possible for MC to affect or get into a persons eyes. A pharmacist friend had me pull back my lower eyelids and says she can see what appear to be lesions. Can MC affect the eyes?





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    As someone who's suffered with this disease for over 30 years, I can tell you with 100% certainty that long term antibiotics DO NOT WORK! The only thing that happens with long term antibiotics is you become immune to them when you need them for something else. H.S. is not a bacterial infection of the sweat glands, it is not a bacterial infection at all. When the lesions/boils are cultured, they come back sterile. There is no cure. Many doctors in the US are considering it an autoimmune disorder now rather than a skin disease. It is genetic. I have had HUNDREDS of lesions drained, and 2 major surgeries (wide excisions) and nothing helps. I have tried steroids and many of the natural treatments (tea tree oil, diet, salt water, etc). Nothing makes it go away. There are times it lightens up, and sometimes that co-incides with whatever treatment, but it never stays gone. You may get some relief after menopause.





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    I am 29yrs old/female and I have had Behcet's since I was 3yrs old. I only had three symptoms of Behcet's - oral lesions, constantly being sick, and vaginal lesions. I now know that it is common for genital Behcet's lesions to be misdiagnosed as herpes, so *insist* on having lab tests done for your wife. I had to have three separate swabs and a double biopsy of the vaginal lesions all come back negative plus make the ObGyn aware of 10+yrs of oral lesions I had suffered before the doctor was able to make the connection. Without that doctor's insistence on figuring out what was going on, I might still be undiagnosed. The ObGyn sent to see a Doctor Jean-Claude Bystryn (the last name may be misspelled) out of Mt.Sinai Hospital in New York City, the doctor who ultimately diagnosed me Behcet's. There are other doctors in New York City, a rheumatologist named Dr.Harry Speira Sr (again, possibly misspelled the last name) on Park Ave and there is now a Behcet's center. A neurologist and a gastroenterologist can also be instrumental in the diagnosis and treatment of Behcet's. !!!!! I should have said this before but I just thought of it, ***PLEASE*** search for and check out the American Behcet's Disease Association website NOW. The website has lists of resources, from doctors to treatment to support groups. Go there asap, you will find alot of information and have the best chance of finding a doctor to diagnose and treat your wife. Good luck.

    36 yr old female with recently diagnosed dasp . currently trying carac cream from doctor.has anyone else tried this? its day 7 of treatment still no real change in lesions or surrounding skin. nightly application for 14 days. any one?.. when should my skin start to look bad like i was told? its on my arms and one spot on my leg...getting nervous that this rather expensive cream isn't going to do anything :( help please!!!! thank you !!!!





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    i have dasp (loads of spots) on my legs and arms was told to use zyclara cream i am on day 10 seems to be working spots getting smaller i was told to use this cream once a day before i go to bed for 14 days then 14 days off if not gone try again hope this helps you

    Hello, I have had DASP since I was a teenager I am now 50 and have tried nearly everything. For years my dermatologist did not know why my condition was uncharacteristically inflamed and so red and angry, we likened it to chemical burns, I have been on Herbalife products, Advanced Program and F4 (3x daily + 3x topically) in 3 months the inflammation and redness has diminished considerably. I can now feel comfortable wearing short sleeves.

    All very interesting to reassure read about. I was diagnosed with DSAP of fore arms and lower legs approx 20 yrs ago. This summer a larger lesion on the inside of my lower leg started to be commented on by others and when it had a blood spot on it I consulted my GP followed by a visit to a Dermatologist. Privately this time to avoid the wait. She felt there was nothing to worry about and/but prescribed some creams to apply. One contained a steroid, the other an antibacterial. Within a month my lesions had flared up and looked unsightly and embarrassing.yet I perseveres for another month. Looking at the poss effects of the creams I decided it might be the antibacterial and stopped using it. Soon after I stopped the steroid cream too. At the same time I stopped I was applying ALOE VERA GEL to a burn on my arm. Knowing it to have a therapeutic calming effect I used it on my arms and legs. The lesions undoubtedly would have improved without the AV but the improvement was quick and comfortable. My skin is back to and a little better than how it I was before this episode. I use the steroid cream on the worst of my leg lesions as well as the AV elsewhere. I will be seeing another consultant about the one concerning lesion and expect to be reassured that all is well if not a little unsightly. And that's the main point...ALL IS WELL....there are so many worse things I could be experiencing





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    Kenalog 40 mg/ ml with 50% saline mix in and around the wound worked with one treatment over 11years ago and has kept new lesions that I can feel under my skin from surfacing. I've never had a steroid regiment.

    Hi I have had white lesions all over my tongue, I have had it for a year now, ever since I fell pregnant it now has cracks on the sides of my tongue. I get this feeling at the back of my throat that something is stuck and won't go away, I also have numbness in my right side if cheek and neck, I don't no what it could be, I am very worried. My tongue even gets numb at times. It's very annoying. I don't no if the white lesions are ulcers cause I get them every day. I even feel very dizzy at times. I am only 20 years old and I am getting all of this, I don't no why!! Does anyone no???





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    i have also have a strange tongue since pregnancy, mine goes white and numb and has cracks :( i wish i knew how to fix this, its nasty isnt it!

    Just wanted to add - dont know if anyone else has similar problems...to touch the skin around the vulva,or rub even softly, it is almost as if the skin sort of peels away, leaving red sore skin underneath, and more recently, i scratched an itch on my ankle, and the skin therre appeared to do the same. i now have a sore exposed area on my ankle. anyone else had anything similar? i ahve had behcets for years and get various symptoms, including oral and genital lesions and ulcers, aswell as extreme lethargy and bowel problems. x





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    I have had DSAP for over 30 years (I am now 53) although nobody knew what is was for the longest time. I have a great dermatologist whom I see once a year. No treatment has helped me ever. I tried Effudex cream which BURNED my skin and made no difference in lesions. I am a runner and love to be outside as much as possible in nice weather. Sunscreens have NOT helped me at all and I have been read that they block the body from making vitamin D which is an essential vitamin. My doctor is amazed at my high level of vitamin D (a very good thing!) so I continue to NOT wear sunscreen. Yes, the lesions are ugly and get more red when by body is hot and look more whitish/scaly otherwise. I have come to terms with it. i go sleeveless if I want to and wear shorts in the summer. If people can't get beyond my lack of perfection, that is their problem...not mine. I do get tired of explaining to "curious people" though that this is not something they can catch from me - it is a rare hereditary disease.





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    I admire your attitude, you know its bad even when a nurse respondes with an "Oh my" Has anyone found anything that works to lighten the dark spots, Your right, it is what it is and people who ask me if I have measels dont understand. Reading has made me know, I'm not alone

    I have a patch of skin on my neck that has become slightly darker/redder than the rest of my skin. I'm a white male and this patch is slightly darker and about the size and shape of a 5p piece.In the middle it looks to have a lighter patch about the size if a pin head.It is flat to my skin not raised.I have had this a couple of months.It's not itchy or sore but all sort of things going through my mind like cancer or k s lesions.There are no others anywhere esle.





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    I have Hidradenitis Suppurativa and take Vitamin A for to help with the drainage of the lesions as directed by my naturopath. this seems to help however the vitamin A makes the the skin around my groin area very dry and scaly and I was wondeing if anyone knows what type of cream could help with the dryness. i have heard that Eucerin is a great cream for extrenely dry skin however I don't know if it would be safe to use on the vaginal area. Any ideas?





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    I find cream very cloying & can even clog the pores up even more. I know it's expensive but do try Bio-Oil. Watch out for when Boots or Superdrugs have it on offer - which happens quite regularly. Good luck. PS - Bio-oil really is great with the scarring too.

    I know exactly how all of you feel.i have suffered for over 10 years since the age of 13. i am currently having the worst bout after the birth of my first child. i have several open lesions and have had 4 different courses of antibiotics and have had sepsis from them needing IV antibiotics, but many doctors don't get it-i am now waiting to see s surgeon again but in the mean time you are told to dress the wounds and get on with it!part of the problem is working in the health profession and lancing the lesions myself- i seem to be seen as capable to 'manage'. all i can hope now is that my baby girl doesnt inherit this horrendous condition and someday they can find a cure or if not at least a method of controlling the severity of the condition.





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    i ve had ls for over 10 years .The pain from the lesions is terrible dermovate nn helps but makes skin so fragile thus even moving the wrong causes splits .helium tape works but only allowed use it short term.Good luck





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    I haven't been officially diagnosed but I can relate as I keep getting these stubborn boil type lesions under my right underarm. I've been convinced that I'd nicked the skin through shaving as that seemed to be when it started. But come to think of it it does tend to flare up around period and the other day I had one on my left labia but when I squeezed it I was free from pain.





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Show more…

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