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  • Tourette’s Syndrome

    Someone with tourette’s will suffer from verbal and physical tics which generally take the shape of head jerks, blinking, teeth grinding, eye rolling, and neck twisting as well as grunts, squeaks, coughs, blowing and screaming. Read more →

    I am 16 years old and have had tics for the past 8 or so years, I dont have any vocal tics but have alot of motor tics especially facial ones. My dad also has them and has had them since he was a child. I have had 1 consultation with a neurologist in the past and they have said about the medication available but said about the side affects they can cause. They cause me alot of pain and discomfort and by the end of the day by body aches all over. They become worse if I am watching the telly or playing a games console, sometimes to the extent that I have to stop what I'm doing because it hurts so much. I understand that there isnt a known cure for it but I would really like to know if anything can be done to try and ease the pain. Thank you





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    I'm 16 and have had several motor and vocal tics since the age of 8, which are really hard to control and others avoid me as a result. The worst ones are violent head jerking which can cause a lot of pain in the back of my head/neck and making kind of squeaky/ grunting noises; which I don't realise I'm doing until someone points it out. The feeling just builds up then suddenly releases, which only gives temporary relief before it starts again. I think O.C.D. is also there as I always have this paranoid feeling that something bad will happen if I don't do certain things like check the contents of my bag 5 times before going to bed or aligning my work/ pencil case so they're parallel and in size order. I re-read this message 7 times before posting to be absolutely certain that there are no errors. Has anyone tried hypnotherapy to cure tics? I think I might try it and see if it helps before seeing a doctor. If not, would an official diagnosis of Tourette Syndrome or O.C.D. affect my chances of becoming a surgeon?





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    Hi there, I searched for tourette and saw your message and am happy to write a reply. Firstly, I am 38 years old and I have tourettes syndrome. I was diagnosed at age 20 at the National Hospital for Neurology in Queen Square, London (Your GP can refer you). For a diagnosis of Tourette Syndrome, your symptoms must have been present for more than a year, start before age 21 and you would need to have motor tics and vocal tics to be present for a diagnosis. There is no cure, no one knows exactly where tourettes comes from, its more common in boys, but there are drugs like haloperidol, sulpiride etc. to control symptoms if they are very bad. I dont advise taking medication for tourettes as it upsets brain chemicals and in my experience the side effects arent very nice. My consultant told me to only take the medication if the symptoms interfere with my job. I dont take any medication. I also have OCD and ADHD - these conditions are often present with tourettes sufferers. Symptoms do wax and wane over time and as I have got older they are not so severe. Do go to your doctor for a chat and if you would like a diagnosis, a neurologist would be the best specialist to see for this. Dont stay alone, dont put up with abuse anywhere and remember, you are perfectly normal. You will have a normal lifespan and you can do anything you want. Be strong and remember - you arent any different from anybody else, you simply may have a rare neurological condition. Regarding your career choice: Don't worry! There is a famous surgeon in the USA who has tourettes, and........ I am an accident and emergency nurse at a London Hospital and yes, I do use needles and take bloods etc., and I'm probably more accurate than most, because my concentration when doing these skills is amazing! Good Luck! Matt.

    Hello I am 18 and i have Tourette's Syndrome as well. i first got my symptoms at the age of 3 and was diagnosed at 8. i'm not sure at how to explain it but i do strongly suggest finding things that take your mind off of it. i have also found that over the last 5 years, from when the severity of my tics peaked at 12/13, that i have the ability or will power if you call it that to change my tics slowly in to other things that are less noticeable by forcing myself to do something that is sort of the same but not as good at satisfying the urge to twitch. but since i started trying to do this i have managed to turn all of my swear words and verbal twitches to quiet noises at the back of my throat, and to curb the physical twitches i tence the part of the body and the muscles that are used for that part of the body i am twitching .. its not brilliant but it is a preventative measure that has worked over the long term for me. i used to be on 9 pills a day and i am now 7 months pill free and managing. going on pills wasn't my choice it was that of my doctor and my mother. but i was on Resperadone and Clonadine for the other things i have with my TS [OCD, ADHD, ADD, Anxiety, Paranoia, Depression and Rage attacks]. all i can say to you is just try to find something that helps and gets your mind off the twitching, i find for me its Exercise, or if i am in public i keep all manner of things in my pockets to fiddle with and a pack of sweets or chewing gum :) .. i'm pretty sure not a lot int his will help that much but i just wanted to share with you how i have managed this, in the hope that it is of some help to you .. and before i go i am going to tell you a quote that i try to live by "Don't see Tourette's as a problem, See it as a challenge to over come. Best of luck mate :)

    Hi fòr the last mònth í have peeing 8 tø 10 évery night í been tø doctors had antibötics thats not helped and ím nòt a dîebetíc im a 42 female





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    I started having little tics from the age of ten, i am now 17 and over the last year or two they have started getting bigger and more violent and i think i may have deveolped a vocal tic aswell... is this torrette's or something else? it's really concerning me and i'm scared of hurting someone with it.





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    in my opinion its tourettes im 14 and ive got tourettes and it wen im nervous it gets worse but if your worried about hurting some one with it i think you should tell them and explain but first if its realy concerning you go and get it checked out. you dont have to listn to wot i say but you should get it checked out if your worried and concerned about it

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    I've got several tics/twitches,from sharps nods of the head,twitching the eyebrows,grinding the teeth and curling the top lip. I'm very aware when I'm doing it and its very embarrassing. I've just became a dad and now the thing I fear most is embarrassing her when she's older. Is there anything I can do to control it?





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    Hi Darren. There are many things that can help you control your tics. You may find a combination of medication and talking/behavioral therapies will be helpful in controlling it. Also taking up a hobby such as playing an instrument/singing or a sport may be helpful. Personally I have full-blown tourettes and my first tics started when I was three. I'm now 21 and although I have no children my partner has a little sister. I've found that its best to just be yourself. If you tic, you tic. If they ask questions then answer them honestly whenever they ask. Children will always be inquisitive, its part of growing up but if you are open and honest with your child, and other children, when they ask questions you will find that they will grow up into accepting people with great moral values. Please just be yourself. Lastly: congratulations! (sorry it's a year late: only just found this!)

    Hi I am a 46 year old female who started having an extremely High (fowl) smell when I urinate. I noticed that this happened after I had a bout of high fever episodes every 2 weeks for about 5 months (Jan 2011-May 2011)and the doctors kept giving me anti-bio-tics to treat me for UTI when I didn't have any of the symptoms. Eventually I became so sick and deathly looking I was hospitalized for 5 days. After being discharged I realized my urine had a smell (which is very unusual for me). I've been going to different doctors they all give me an anti-biotic but the fowl smell gets more worse. It's very embarrassing when I use the bathroom. At home my husband always have a supply of bleach for after I use the bathroom. It's so confusing also because at times my urine is clear and that fowl smell just don't seem right. They never really told me what was causing the days of fever either. Can you please help me? PS I started having the fever from Jan 25 2011. It would go down the week I'm on the anti-biotics and once the dosage is finished it would return the following week. that went on until May 2011 when the fever didn't want to go down my complexion changed and the doctor decided instead of giving me the drips and sending me home they hospitaziled me. Jessica





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    Are you going to hospital all this time or are you with your local Doctor??.. I find when I go to hospital, they treat you and you dont get that one to one full explanations.. If you do have a local doctor in this scenario, ask him to explain the reports or get report sent to him, so he can monitor you and explain better.. From there a closer one to one situation forms as it seems your not out of the woods yet and you need this..If you dont have a local Doctor in this, perhaps go to one and explain what has occurred and the on going issues.. 46 is very young still and yes you would want this sorted.... start asking questions

    Women around peri and post menopause should check online for the 32 symptoms of menopsuse. There are alot of things caused by the decrease in hormones and there are more hormones than progesterin and estrogen, I haven't researched them, yet.

    Hi my son is also showing signs of adhd at all and home so we are now in the system regarding the tics they think they could be related to the adhd but we are going to look into this more in the next appointment. When i went to see the gp to begin with i made videos of him doing his tics so the doc could see they were quite prominent my gp had some experience with tics so I think that helped in getting a referral

    hi, I am a 15 year old female that has had tics since I was about 2. At first it was just blinking a lot but after i had gotten rheumatic fever about the age of 6 I started getting verbal tics. I started taking medicine and it helped a ton, but once I statrtrd getting better I stopped the medicine. I haven't had any verbal tics ( saying "whoop" out loud without even noticing) since I was about 8. I am now a freshman in highschool and only have small physical tics when I'm stressed and anxious. A few of my tics include: stretching my fingers wide open, closing my left eye really hard then closing both of my eyes really hard, and opening my eyes really big. I guess I wink at people too? Because a lot of people ask me why I just winked at them when I don't even know how to wink on my own. Most people don't believe I have Tourette syndrome because when I feel a twitch or tic coming I tend to hide my face by looking down or away or hiding my fingers under the table or behind my back. anyways, thanks for listening and id be happy to answer any questions!





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    hi, i'm 19 (almost 20) and i've been a tourettes sufferer since i was around 6.. or at least that's my earliest memory of having it.. my tics vary wildly. right now there is; nodding, stomach crunching, jerks in my spine, tensing my arm, humming, whistling, clicking my fingers, popping my lips, and a few more. unfortunately i also suffer from many ocd's, one of which involves prime numbers, so any of my tics MUST be done to a prime number.. it's annoying. but even after all of this, i found a job, and a girlfriend (now my fiance), who also has the same tics. alot of people with tourrettes think it's nigh impossible to find a partner, and i just want to make it known that this is not always the case.





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    Hi, I am 21 and have had possibly every one of the symptoms of Tourettes over time as far back as I can remember. Each symptom has come and gone over the years from facial tics, muscular tics/stretches, coughs/grunts, blowing on my hands etc. At times the tics have been bad and sometimes I have come out from an 'attack' breathless but then other times I have gone days maybe a week without noticing them. I find that when I am physically active the tics tend to be minimal or smaller in severity and frequency, this may be a reason I live an active lifestyle training almost everyday. In contrast to this, extended periods of sitting still tend to aggravate the symptoms (long classes/ lectures). I have never found that it disturbs my day-to-day life as when I need to concentrate the symptoms never occur dramatically (sports for example, maybe a minor tic).I found that over the years my symptoms have lessened, worst when I was young and going through puberty, yet still preside depending on my current situations (stress, excitement, anxious etc.). It is not something that worries me now, but before when I was unaware of others with my symptoms it did make me self-conscious. Now it just makes a good laugh for my mates which doesn't bother me one bit!





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    Hi I am 29 and I have had tourettes since I was 7. I am on risperdone and it works really well for me. I have just watched the programme with 20 year old Ben in. I understand what he says that people think tourettes is swearing. It is not, I don't swear at all with mine. I am a teacher, so would not be allowed to be a teacher if I swore. It is hard to live with and I was bullied for nearly my whole life at school. I have had to have counselling as a result of my low confidence and self esteem about my condition but I am getting better. I can agree with what Ben said that the tics hurt. I hit the back of my head/neck and the pain is so bad sometimes that I just want to cry. I have really good friends around me though who do not judge me at all for having the condition and I am now able to laugh and joke with my friends when my tics get bad.

    Hi I am 29 and I have had tourettes since I was 7 years old. I am on risperdone and it works well for me. I have just watched episode with Ben in and I agree with what he said that most people think tourettes is about swearing. I don't swear at all with my tourettes. I am a teacher so would not be able to be a teacher if I swore. I do however have tics. I agree with what Ben said in how they hurt. I hit the back of my head/neck and at times it takes up so much energy and it hurts so much that I just want to cry. I have never had much confidence and was bullied for most of my school life in which I have had to have counselling to try and improve my confidence and self esteem. It has helped in the past but still at times things are hard. I do however have very good friends around me now who don't judge me at all for my condition, and I am now able to laugh and joke with my friends when the tics are bad. Tourettes is a condition that I have and I hate but I do not let it stop me from doing what I love and that is being a teacher and believe it or not my tics do not happen when I have a class of kids in front of me.





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    Hi im 17 and im a tourretes suffer my self I do have the vocal ticks and move ments ticks in my opinion I would try to not be on response as it makes you feel tied alot and gives you a weade feeling I would try Clonoden as it hellps me alot olso I have fownd playing a instromens hellp eg drums I hope this hellps

    I have this same thing that you guys all have. I actually thought it was OCD, but then just did some reading, and it is either Tourrette or another similar tic disorder. I have physically hurt myself by having these tics. My head hurts sooooo bad, and the big nerve that goes from head to nasal area. Also bad chest pains from another tic. This sucks!!! To me, it seems like the reason we do this is because the motor tics involve this type of muscle contracting that (to me) feels a little like an orgasm. I think the same neurotransmitter or hormone is being produced every time we do the contraction. This is just my theory. I'm wondering if everyone else is hyper-sexual like me, too.





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    I think my 4 year old son has tourettes syndrome, ive never even give it a thought before but after watching a programme the other night it was like looking at my son, he has neck twists and eye blinking and hand movements and grunting, sniffing and snorting, we have had his adenoids and tonsils removed because they said he had sleep apneia and he is still doing it, he has glasses but he is still closing one eye and constantly blinking, he has a lot more tics too many to mention and have steadily got worse over the last year and more tics being added all the time, could this be tourettes or is he too young x





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    Hi, Racheal, my husband and two of my three children have Tourette Syndrome. Both of our babies exibited some tics very young before a year of age. Most doctors do not want to medicate small children, but usually will medicate if it is causing problems with eating, sleeping, breathing or functioning. TS gets worse in adolescence where the symptoms increase and most people will probably want to see a good Neurologist for treatment. I have found through more than 27 years living with people with this disorder that pediatricians and family doctors know little about it and are NOT the people to treat it. A good Neurologist, preferably at a University teaching hospital, as well as therapy to help the child cope with the illness is recommended. Only a good Neurologist can diagnose and properly treat your child optimally. (I first took our older dd to the Ped and she said my daughter was "nervous" I had to take her to a Neurologist to get her treated properly.) Good luck. You are not alone.

    Hello I am an 18year old male from Maine and I was first diagnosed at the age of 7. It became severe around the age of 12 up to still now, but it is dwindling. My tics involve verbal racial slurs, my left arm flailing, grunting, spitting, and my hand bones grinding together. There are medications for this and I reccomend consulting a doctor as I would strongly support the arguement that you have it. The medicine I am on is Haldol(tranqulizer pill) and marinol(thc pill)

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    My son who is 14 has Tourettes and it is an awful condition for everyone. You need so much patience for a person with this condition as the tics can really end up driving you mad more than the person who has them! He is on Risperidone at the moment which has slightly lessened them but I know that in another month when he has his year exams that the stress will cause them to get so much worse. He has Tics that come and go and has had ones that involve shoulder shrugging, blinking, sniffing, vocal noises and forcing his head forward. There is never a time when he does not have at least one Tic on the go. My heart goes out to anyone that has this condition. The best thing we ever did was get the school to inform the rest of the year what was going on with him so that they were less likely to tease him about it.





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    Hi I am 29 and I have had tourettes since I was 7. I am on risperdone and it works really well for me. I have just watched the programme with 20 year old Ben in. I understand what he says that people think tourettes is swearing. It is not, I don't swear at all with mine. I am a teacher, so would not be allowed to be a teacher if I swore. It is hard to live with and I was bullied for nearly my whole life at school. I have had to have counselling as a result of my low confidence and self esteem about my condition but I am getting better. I can agree with what Ben said that the tics hurt. I hit the back of my head/neck and the pain is so bad sometimes that I just want to cry. I have really good friends around me though who do not judge me at all for having the condition and I am now able to laugh and joke with my friends when my tics get bad.

    Hi i'm 15 and a few months ago I started having minor tics and then they suddenly became pretty severe. I would have these episodes where my tourettes would be uncontrolable about once a week and i would have to sit on my bed and wait the tics out. I have recently been diagnosed with: Tourette Syndrome, Obsesive Compulsive Disorder (OCD), High anxiety and last but not least Depression. My depression was bad enough to have me hospitalised twice (the most recent time i got out a few days ago)I am on pretty strong meds for my Depression and have to take 11 tablets a day for various things and on the really bad days 12. I am too ill to be out and about with people as they set off all of the above problems so my school is going down the drain. But the worst thing I have to deal with at the moment is my OCD symptoms causing me to be unable to touch or be touched by my family even though in this tough time all I want is a hug of my mum. Oh my goodness this is a long comment. Sorry and well done to anyone who managed to read to the end! x





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    I have different issues to you but i am a bit older and stuck on the sick as i similarly can't be around people, I wish i could say well this is how it is fixed. But honestly, pretty soon the system will forget you exist and you will have to work it all out for yourself, either push yourself past the little things or soon the nhs will give up on you. You do not want to be stuck in your room for 3 years. The novelty wears off fast.

    Does teeth alignment work for tourettes? When I get my son to hold something in his mouth his tics stop.





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    I will would not advice you doing this let the tick out or it will get worse

    How do people with Tourette's like others to react when ticing or vocalising ? On my way to pick up my 9 year old grandson who has started vocal tics since I last saw him.





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    I have Tourettes Syndrome, its sometimes nice for it to be ignored, if it does 'make you look up' then just treat it like a normal action, we would hate it if you kept pointing it out and looking at us for it.

    One of my best friends has Tourette's and I'm used to being hit due to one of his tics, but it still shocks me how some people will just openly stare at us as we walk down the street. It still embarrasses him sometimes, but I think it's those staring that should be embarrassed, not him.





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    Hi. I'm 21 have been suffering with bv for the past 3 years. Like all of you I've tried everything. Going to doctors getting anti bio tics it goes away then comes back. I've started the bv gel. Tried natural yogurt too it didn't help. Can anyone recommend anything that will clear it up for good ??





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    hello. i have vocal a tic. this can be humming, laughing for no reason, and growling. i started when i was 6. some days they can be bad and some days can be good. i can get really wound up if people start to mention it to me. any one out there who has tics, help me for advise plaese!!!!





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    my son has had and has repeated boils on his bum,i have started get t hese type of things under my arm pits.he wont take anti bio tics.is it infecticious as i thought my have spread by hared razor,unbenne to me,ive put drawing ointment on his an trie germoline





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    THATS AN AMAZING RESULT,I MYSEL SUFFER WITH FND ,MUSCLE SPASMS ,TWITCHES ,TICS,UNABLE TO WALK WITHOUT ASSISTANCE.I HAD CBT FOR A YEAR AND A HALF,HELPED MENTAL HEALTH BUT IT DIDNT HELP WITH MY PHYSICAL PROBLEMS.WHERE DID YOU GO FOR THIS TREATMENT?

    I am now 26 and what you have said describes my condition exactly.Nothing really helps all I can say is avoiding stress and building confidence is the best you can do. My tics have subsided over the years and i still have a noticable tic in my shoulder. My partner is very understanding and it helps when she points out that its getting worse as I can focus on not doing it. I have never taken medication for it and i find with the right support i can manage it by myself.

    I grind my teeth 24/7, I simply cannot stop! I can't keep a mouth guard in, my young thrusts it out of my mouth! Help! I want to preserve my teeth and mouth! I have facial tics that seem to be beyond my control! help!





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    I have just recently been told i have tourettes/a tic, which really upset me but i think i have had it since the age of about 5, again everybody thought it was just a habbit and that i would grow out of it but as i've got older its got worse, I get like twitches in my head, neck, body, fingers, and vocal tics too and many more. I haven't yet found anything that calms it down and its very embarrassing most times and i cannot stand to go shopping/out in public sometimes do walk out of the shops. I would really like to try something without using medication.





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    Same happens to me mate.

    same and wen im in school people look at me wird and some sometimes think they are talking about me behind my back i find it worse wen im nervus i realy dont no wot to do

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