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    I have CD and all my MRI scan, bloods etc came back clear...Sometimes I get the tremour, like when I think about it or am stressed, I suffer with tremour in my hands and have all my life..If I shake my leg or something, I dont seem to get the CD tremour..Could mine me anixety based? I am only 21 and it started as a twitch when I was 19 outta nowhere (I worked as a waitress though and had to lift to heavy trays)..My head used to tilt but when I noticed, I tried to straighten it by making myself aware and like moving it straight and that seemed to make my head tremour. ..Does anyone have a clue if it is stress and anixety based?





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    I do know that stress and anxiety does make cd worse but whether its stressed based I don't think so, have you been diagnosed with cd by your gp? If so have they told you about botox treatment, this may help, its best to speak to your gp about it the sooner the better, make them aware if you haven't been officially diagnosed that you think you may have cd and they should send you to a neurologist, I hope this helps some, good luck to you.

    hi im 22 i have dizzyspells from time to time sometimes when i get up from sittin to fast but more worringly when i lye down flat i have to have my head proped up or slightly to the left side if i dont it feels like im sinking/falling down, this even happens when im asleep and wakes me up sometimes it probably wakes me up about twice a week but i always go dizzy/feel like i falling when i lye down flat or tilt my head back whilst lying down, i also have buzzing in my ears i been for a hearing test everything was fine i did some research and i thought it may be tinnitus but i not really been around a noisy environment or listen to loud music so im unsure if i have tinnitus but if i have tinnitus what is the explaination for my dizzyness im worried i may have some kind of tumour i have also suffered from migraine when i was about 11/12 for couple of years doctors said i would grow out of them which i seemed to have done but i am still worried as i have had these dizzyness/falling feelings for a good 5 years and now im a mum i just want to make sure iv nothing serious up with me should i see my g.p or is it something little





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    Hello I cant answer your question but I have been suffering with dizzyness 24/7 for the last 4 years and no one will help me. I have 2 children and am 23. I find it very hard to go in an elevator because when I get off I still feel like im in it even when im walkin down the street. Four years is avery long time to be dizzy I really wish someone would help me before I go mad. I have suffered from migraie too. Also have funny lights in my eyes 24/7 and sometimes blurred vision. Realy need some help x

    Hi Lisa, I have been suffering from dizzy spells as you describe. I went to see an ENT specialist who told me I have damaged my inner ear from a previous ear infection. it makes me dizzy as the left and right esr are giving different signals and the brain cannot work out which is correct. I have been told there is no fix, b ut the brain will eventually compensate for it and i will return back to normal, but this could take any length of me. hope this helps.

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    At work last year sitting talking feeling fine all of a sudden I felt faint said I didn't feel well and that's all I remember until waking and being told I'd passed out, shaking my eyes were fully dilated black and just starring.. This has happened a few time after so got checked out and had loads of test to be told I had vasovagal syncope, I have not had an episode for 6 months and at the weekend I was fine until all of a sudden I felt faint I belt over and that's all I remember until waking with my other half saying I'm calling 999, again my eyes were just staring, black and I was shaking, very scary for me and especially for my partner, I have not had the tilt table testing yet, as all my test came back perfectly fine. I do have a check up in about 4 months time, it's just very scary and apart from seconds notice it will happen I am felling fine beforehand. I have noticed that I am on my period or due on when these happen do you think it could have anything to do with menopause. I am 40? I have always not been able to stand for a long period or if to hot I am unwell also, would love to get to the bottom of this. Never know when it's going to happen.. Would love to hear from you with any comments, thanks.





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    At 35 years old I was told I had to be sterilised because I had been suffering severe pain and bleeding since the age of 20. After years of experimenting with the pill, coil and condoms it was deemed I was allergic to all of the above and therefore the only thing to stop the pain and bleeding was sterilisation. At first many consultants wanted to remove my womb but I convinced them otherwise being I was so young and wanted a family, which I did go on to have a son at 27. The consultants were aware I had a tilted womb but never told me that what I was suffering could be because of the tilt. After reading all of the above I now realise that the pain, the bleeding, the back pain labour, the problems with tampons and back pain during my periods are all because of the tilt. I now feel grieved that I went through sterilisation for nothing and if the consultants investigated further they may have found all the above is because of the tilt. However I have no doubt the pill didn't help because some of the symptoms have eased. All though it has robbed me of having another child which I so desperately wanted and especially now as my partner hasn't got any children. I am hoping my experience will help others investigate their conditions further and not make my mistake because I didn't know any better than what the consultants were telling me. I am now coming up to 40. However, a very personal question, has this tilt prevented anyone else from having organs?





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    from what ive here read here the people who are complaining of holes that are increasing in size all have one thing in common - they insist on picking out what ever scabs form DONT DO THIS i have a large perforation from two septoplastis on a deviated septum for a while after the operation i had scabing and some bleeding. i left it alone as much as i could even when it was uncomfortable. after a while the situation stabalised it now does not bleed or scab and as far as i know it is not getting any bigger. only problem is that now and again because it gets dry it hurts when this happens i tilt my head back and scwert eye wash up my nose into my nasal cavity then i block my nostrils with my fingers and tilt my head forward so that the hole gets steeped in water for a few minutes. This usualy sorts things out for a while. hot steamy baths are also of use for this





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    do you mind me asking how much this had cost? mine perforation is very large now. it is only in the bottom section of my nose but has gave me a slight dint now in my nose, I cant help but touch it all the time, it does not bleed or anything and I have not taken anything for months. I have a ENT consultation soon so your comment has made me feel so much better. I am however very very scared of the surgery and if my nose collapses during or anything. Was yours ok? i also bust my nose abit back so the septem has bent definately bad luck! I just want to know if the surgery has been worth it? if there was any complication? I am scared the dints going to get bigger and change the shape of my nose completely so need this sorted asap as getting so down everyday and depressed do not want to go out or see anyone, its hard I really dont have a clue on how I could get this fixed.

    I am begging for some guidance, but mostly a diagnosis. For over 9 years (yes 9 whole years) I have had an off-balance feeling....like I've been on a boat all day. I have only had a couple instances where I had vertigo (spinning) but, mostly just that aweful feeling of being off balance. MIT is pretty much all the time, everyday. Somedays better than some. I have had numerous ENT/chiro/balance specialits appointments over the years...and several MRI's. All negative. My ENT actually told me (after the 8th time I went to see him) that I may never find out what is wrong with me. Now, I have some tingling in my left hand (mostly in a finger) ....and sometimes in my foot. Just randomly. I have also noticed some arthritis pain in my hands lately. My balance has become worse, just recently. I almost feel better if when I sit, I tilt my head to one side. The tilt makes me feel "even". I am 34, mother of 2' and I am desperate for help. Seriously desperate... I am scared. Could this be MS? Neck problem? I have a bad shoulder, could it be a nerve pinched, resulting in tingling? I don't even care anymore what the diagnosis....I just want one.





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    Hello Amanda, I'm so sorry to hear what you're going through! I've also got balance issues amongst other symptoms. I just wanted to find out if Channel 4 had replied to your comment here!? I hope so....I really hope you've found some relief and help. It's an ongoing challenge trying to resolve health issues!! Take care! Best wishes

    Hi Amanda For a moment I thought that I was reading my autobiography...Like you, I have been experiencing exactly these symtoms over the last 8 years following a miscarriage. I have 2 children and as my balance becomes worse being a Mum with a full time job is getting increasingly hard. I have been to my GP and ENT specialist on a number of occasions and there has been no explanation besides benign,positional vertigo which I doubt as I rarely experience a spinning sensation ! I also experience a tingling sensation on occasions in my left hand and have been wondering if this and the 'off balance' feeling is the result of a trapped nerve in my neck? Fingers crossed we both get a diagnosis soon and our quality of life improves !!!!

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    You may have a tilt. You should speak to your GP who will be able to refer you to have it investigated. I think this is a reasonably common issue and they will be used to dealing with it . Don't worry.

    Your penis is completely normal. Penises come in all different shapes and sizes and a slight tilt is perfectly fine.

    Hi, I sometimes would have pain during sex, usually if I wasn't aroused enough. I had three kids, all vaginally, no problems. My uterus was tilted backwards, during pregnancy it would correct itself and then sometime after the birth it would tilt backward again.

    since losing weight slowly my breast have got smaller and saggier and lose skni has formed so when i lay to the side or tilt forward it looks disgusting. i am 37 years old. i used to be a 34dd then 32e now a 32f is there any solution without having surgery???





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    I have a small pea sized lump in my upper neck just below my chin it's been there for a while now maybe a few years, I can't feel it when my head is upright I have to tilt my head back to feel it. It's not painful and m doctor thinks its cyst but has referred me to the hospital to get a scan. I put it off because I was pregnant at the time and now I'm too scared to go incase it's bad news.





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    hi well im only 15 and sometimes i find it a little strange, when i focus on something such as the tv with my head held up straight i get a irratating buzzing noise in both of my ears, i have to tilt my head to stop the noise.I also find it very hard to get to sleep some nights.some nights often worse than others,so i was just wondering if it could actually be tinnitus.





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    Hi, have your riding seat checked out, you may in fact be tilting your pelvis too far foward. If you sit on your seat bones you may find you do not rub. I have very generous labia, but horse riding with a correct seat does not cause any rubbing. However riding my push bike where you tilt slightly forward does cause rubbing.

    Try inserting it aiming towards the back of your vagina, instead of straight up. The vagina is usually slightly tilted, so pushing a tampon straight up can cause it to become a bit squashed. Also, applicator tampons are usually easier to get in the right place as you the cardboard tube keeps the tampon the right shape. Once you get to know the tilt of your own vagina, it will become much easier. Good luck!

    That's normal. Don't worry about it. Your body is normal. There are a wide range of vulvas, and every vulva is normal. I would only worry if there was intense abnormal pain. Having low hanging labia minora is just like having boobs that may tilt outward- just a type. Shaving is a personal choice. Whether you feel comfortable shaving, like or dislike the look of shaving, or do not want to shave, it is all up to you. Do not feel like you need to spend time on something that is an aesthetic choice.

    Hi, i have neen fainting on and off for 16 yrs. Amd when comes back at leasy once a day for a yr. Ive been in and out of hospital. All i kbo is that ive got low blood pressure, have been given mididrone( unliscenced in uk) also my heart rate has been irregular but mainly bradycardic and drops when b.p drops. Ive jad q tilt test. My consultant still hasnt found a diagnosis. Theyve questiobed P.O.T.S but still come back wirh syncope. I sick of this coming and going, there's got 2 b an answear. Please help me. Im married wirh 2 children and am too scared tp do qning adventourious with them. It is also v embarassing when get sumptpms or faint in public. Please help. I dont mind beibg on show, but if can help either way i'd b very grateful. Thanks in abticipation. X





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    Hi everyone, I'm 19 years old and I've had mono about 7 months ago and it was from sharing drinks. My throat got so bad and my tontils were the worst I've ever seen them. They we enlarged to the max and were filled with white patches all over. I couldn't eat or drink and I went to the hospital twice until they Finally diagnosed me with mono. My doctor told my I have tonsillitis and strep throat but she was wrong. After a month or so, my tonsils got better but now on one side I have a big patch and the other one has a smaller hole. Food gets stuck in them all the time and I've been having tonsil stones ever since. When I tilt my head back just a bit or try to sleep I choke on my tonsils and start to cough. Sometimes it's really bad. I don't know what to do. I've been getting sore throats and colds but I just don't go to my doctor anymore. My doctor said nothing is wrong with me but they are enlarged and I cough up mucus all the time. I'm going to see her again once more if she doesn't refer me to get my tonsils out I don't know what to do with myself. Can anyone relate to my symptoms? I don't know what to do :(





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    Hello there "14 year old girl." I had to respond to your comment because something was brought to my attention again yesterday (as to why am doing online research)... Story: I remember being around your age when my Adam's apple was brought to my attention. I was confused and didn't understand why(?). There may have been a time or two several years later that it was brought to my attention but brushed it off (although hurt!)... Last night I was talking to a guy I met online and he was like "I think you look familiar." And I am like "no. And he was like "are you the one with an Adam's apple?!" Crushing, I nearly cried but didn't. I am 35 and for a guy my age to say somethin so intrusive, has real self-esteem issues. Needless to say I put him in his place... Any how, I am an extremely attractive woman.And am asked to this day, "are you a model?" Adam's apple and all,lol... I know at your age it can be devastating but as your older you will see that you forget it. Maybe even embrace it because it is unique. At least it can give someone something to talk about! Love it girl!! Proudly display your Apple... Even tilt your head up so it shows more... Make your fellow students envy how much confidrnce you have in something that others think should be hidden...

    There's no reason to feel "freaked out" if you have a big adam's apple. The reason adam's apples are so prominent in teens is because of the lack of fat in a teens neck. As a result the adam's apple has a very assuming look. I was a late 13 year old when my voice began to change. I was tall for my age and quite skinny. As a result I had a pretty skinny neck with a bulging adam's apple aboard. The following year my voice fully matured and was unusually deep. Here I was this tall skinny kid with this giant adam's apple and a voice that boomed like a bass fiddle. Some of the kid's in my school thought my adam's apple was cool, and some jerks would poke fun at me. By the time I was 17 my body began to fill out and my humungous apple was masked by the extra body fat. Now I'm an old duck in my late 30's and overweight. That big, old adam's apple of mine is nowhere to be seen unless I tilt my head way back, and still it looks miniscule in comparision to when I was a young kid.





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    I have CD and have done so for the past 5/6 years although looking back the symptoms started way before I was told what it was. I also have the Botox treatment at 3 monthly intervals and have to admit it does help, but does not get rid of the symptoms completely, and some months are better than others. I find the condition very tiring and it can be quite painful at times, its as though you are constantly at war with your own body trying to control the involuntary movements. The one thing I will say is that it is possible to live with the condition and live a fairly normal life, I personally don't let it stop me doing anything, I use all the little personal ticks that work for me and I also made a point of telling work colleagues as it saves them asking awkward questions when I am having a bad day and put on a neck collar and in their eyes its just normal for me to tilt a bit more than the average person :) I am not sure if any other CD sufferers have tried a collar but I find it can help when my neck and shoulder muscles are tight and tired from battling against the involuntary movements. I have also found that when the weather is warm and dry this helps the condition and it eases, but damp wet weather exacerbates it, and I don't think having arthritis in the neck as well helps, as I am sure this was brought about by the constant movements, has anyone else found this to be the case?

    Ive the ET for 3 years now! Initially when it started it was due to stress when working at first job after graduation. My head used to shake and "loll" and was very noticeable. I went to doctors and was diagnosed straight away by a specialist in UK Edinburgh. I've been on beta-blockers for past 3 years and noticed that lack of sleep worsens symptoms even when on beta-blockers. Also tea seems to affect it negatively, so I try not to drink too much tea. Taking deep breaths when symptoms occur seems to help and regular exercise, just cardio so heart rate is increased. Running say 15 mins. I try not to think about it now as well, as sometimes when speaking to someone, I have to tilt head slightly to the side to strengthen that neck muscle and prevent it from shaking. Tilting head back seems to prevent it a lot.. Or leaning against an object whilst speaking. Also at interviews I cross legs and place interlocked hands over knee so neck muscle is tote! Thus preventing any shaking during interviews. Leaning back as well seems to lessen the shake. But exercise, enough sleep, and deep breaths seem to help without beta-blockers. I've been told that short leg syndrome can in turn affect or cause ET, but I'm not sure about this as it was a student that theorised it to me. Try to remain calm and get enough sleep!!





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    Hi all, I read all your comments with interests, I have been receiving treatment for Cervical Dystonia for the past 8 years every 3 months I have Botox Injections to help control it and in the main they do ease the symptoms although they never completely go away, but without them the pain can be unrelenting, not to mention how weary and tired the condition can make me feel it's a constant battle, Like others I find walking worsens the spasms as does driving but use ticks to control it. Like chin touching, and singing (Oh my poor neighbours :), also covering my right eye with my hand brings total relief but I can't walk about doing that all the time, but when I do that I am free of tremors and twisting, not sure why that works though. I was interested to read about cutting out certain foods and adjusting my diet, think ai might give that a try next, I didn't realise certain foods can make it worse and by cutting down on them the symptoms can improve. I will keep you updated on the results I refuse to give into this life changing and painful condition and live life to the full, colleagues at work know about it and are used to my head tilt and accept it as just being a part of who I am. It's a condition you either accept and live with on a daily basis educating others who don't understand or you hide away, I know which option I prefer. It does get me down of course it does, and at times frustrates me to the point of tears, but then I get angry at myself for letting it get to me, I'm stuck with it so I'll deal with it a day at a time 😀





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    Since the age of 4yrs I've been harshly aware that my breath smelt. My Grandmother would tilt my head back and look in my mouth to see if there was an obvious cause but couldn't find one. In adulthood I've had people atually back away from me in disgust and then avoid me thereafter. Yes, some of you may find this quite amusing but for me, it's been a living hell for 30yrs. Unable to talk to people, so afraid of rejection once they find out about my 'problem'; every type of social interaction imaginable is a nightmare for me because now I'm so paranoid. I take a toothbrush, paste and mouthwash with me everywhere I go if I'm going to be away from home more than an hour or two. I brush my teeth on average 3 times/day which includes flossing and non-alcohol mouth wash; I use separate brushes for my teeth & tongue. When I've had the courage,I've tried going to my GP; walk-in surgeries; breath clinic; NHS Direct helpline... NO HELP AT ALL... I've been in such despair bearly wanting to keep going... I was diagnosed with Systemic Lupus Erythematosus(SLE)which just added to my living nightmare because I was having to take varying types of strong medication which gave rise to symptoms of their own. The underlying issue with my breath has never been diagnosed and I don't if it can be. Why is it that the only advice given is about poor oral hygeine, smoking or garlic/onions?? I brush my teeth constantly;I've never smoked & my breath smells whether or not i eat garlic/onions or any other high-odour food stuffs! Is there anyone out there who can shed any light whatsoever on a possible diagnosis/treatment. Anyone who could give me some advice or has experienced similar long-term symptoms...Comments thankfully received... Dr Pixie - though highly unlikely, if it were at all possible to have a consultation with you I would be eternally grateful...[oh well, worth asking...] Apologies for long 'rant' but this is really the first time I've shared this much detail... THANKS FOR READING!!





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    have u ever had a faeces sample tested for a certain infection that can be the reason for bad breath and u can have this infection for years without symptoms except for really bad breath hope this helps

    Hi, like you I have suffered bad breath most of my life.The only thing that I have found to alleviate the smell is Dr.Harold Katz toothpaste and rinse, I first bought these after reading an article, normally I don't fall for the scams but was desperate. It really does work, please check this out, it can be bought from ebay or the website, no doctor ever tells you anything that help. I think that it is tonsil stones that give me bad breath, I cough up little yellow lumps that stink. I try to remove them with a cotton bud when I can see them stuck in my tonsils.My daughter is only 7 and suffers from bad breath also, she is only 7. Good luck for the future, it is a terribly anti social condition to have.

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