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  • Tourette’s Syndrome

    Someone with tourette’s will suffer from verbal and physical tics which generally take the shape of head jerks, blinking, teeth grinding, eye rolling, and neck twisting as well as grunts, squeaks, coughs, blowing and screaming. Read more →

  • Dystonia

    Dystonia

    Dystonia is a term that refers to a range of movement disorders that can affect the body, forcing it into awkward postures or positions. Read more →

    I've got several tics/twitches,from sharps nods of the head,twitching the eyebrows,grinding the teeth and curling the top lip. I'm very aware when I'm doing it and its very embarrassing. I've just became a dad and now the thing I fear most is embarrassing her when she's older. Is there anything I can do to control it?





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    Hi Darren. There are many things that can help you control your tics. You may find a combination of medication and talking/behavioral therapies will be helpful in controlling it. Also taking up a hobby such as playing an instrument/singing or a sport may be helpful. Personally I have full-blown tourettes and my first tics started when I was three. I'm now 21 and although I have no children my partner has a little sister. I've found that its best to just be yourself. If you tic, you tic. If they ask questions then answer them honestly whenever they ask. Children will always be inquisitive, its part of growing up but if you are open and honest with your child, and other children, when they ask questions you will find that they will grow up into accepting people with great moral values. Please just be yourself. Lastly: congratulations! (sorry it's a year late: only just found this!)

    hello,im a 49yr old woman that has pain on the top left side of the rib cage but shoots into the breast ive had this a very long time went for mammogram 4yrs ago that was ok they said its coming from your rib cage when im lying in bed on the left theres like twitches movement if you like just wondering if you could help





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    I am curious to how this progressed for you guys. My maternal grandfather always had shaky hands (tremors)that I recall. I just thought it was being older. My mother who is 62 now has pretty substantial tremors in her hands and probably has for the last 7 years or so. We lived out of state, so I wouldn't notice it so much, and my father had commented privately to me that it was my younger brother and sister that caused "her so much stress she would shake." Now we live in the same state, and I noticed she has it all the time. She is a very proud woman, and refuses to even visit doctors for physicals (don't get me started), I just don't feel right asking her about it, I think it may embarrass her. I am 36, and I've had little bouts of shakiness at different times in my life, usually either highly caffeinated, public speaking or nervousness, but lately I've noticed occasionally while at rest I feel what I would describe as an internal flutter of sorts in my hands. It doesn't last long, but it feels almost like when your eyelid twitches. My hands/fingers do shake a bit. Is this possibly the beginning stages of this? Does it get progressively worse? Or did you just wake up one day and it was full-blown? My aunt visited a few months ago and made an off-handed comment about the (her maiden name) family tremor. I didn't ask more, but perhaps this is just inherited. I also have chronically had cold hands and feet my whole life (to the point where I have to be very careful handling cold/frozen foods and cold temps outside). Wondering if any of you have suffered this as well- if it could be related in any way?





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    My husband is 27 and was just diagnosed with ET. His mom and grandma were always a little shaky and so was my husband but it wasn't a big deal. 2 weeks ago, he started getting significant severe tremors- within 4 hours they were full blown, both arms/ hands. They have began to subside after a week and he can function again. Neurologist said although this is rare, the ET can be dormant and all off a sudden flare up and be full blown. Neuro said sometimes a cold or flu can trigger it. Neuro also said for some the ET stays minor or never fully manifests, so it just depends on the person. See a neurologist if your tremors are concerning.

    Sasha, Thank you so much for taking the time to respond to my question! Your input was really useful to me! I will continue to monitor (been under a good amount of stress the past few months), and if I need to go to a neurologist I certainly will. I wish you and your hubby the best! Glad to hear he's doing better! Take care Bella Ps I did order the black seed oil another poster mentioned. I've done some research and that stuff seems pretty potent and good for several reasons. I may take for a while and see if I feel any more relaxed or better.

    Yes go to the doctors. Could be a trapped nerve, though that would normally hurt. If you have been bending down a lot and picking up a load without keeping your spine in line, you could be risking a slipped disc and your twitches could be trying to tell you that youve done something to your back. I get twitches a lot too but thats because I had a heavy weight horse fall on me and tread on my t5 vertebrae.. Id deffo get it checked out.

    not sure if i have dystonia but i do have terrible twitches and some days are worse than others ,if am relaxing i tend to twitch more and it seems to be getting worse ,by the end of the day my muscles are aching ....others are starting to notice these twitches and am so embarrassed i could cry i've had this for as long as i can remember does this sound like dystonia ?x





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    Claire, it sounds possible that the issues you are experiencing could be Dystonia, but none of us (I think?) here are GP's - anything like that you should get yourself straight to the doctor and explain your symptoms and fears Another note I didnt add - dont know if anyone saw this, but a few years back the chap that plays (played?) 'Charlie' in Casualty did a double page article in the Daily Mail about Dystonia - he has it himself - I found this very brave for an actor to admit to this and it was good for Dystonia to get some much need publicity as most people have never heard of it

    hello, i know that my question has nothing to do with vulva's, but i need to ask this because i have no where else to ask.. for a while now i've been having weird random twitches, it started firstly in my spinal cord, but now i'm getting them in my upper and lower legs, around my shoulders and also around my ribs. sometimes my spinal cord twitches are so bad that it makes my whole upper body jolt! so please someone reply asap because i want to know if i should go to the doctors or not.. i am a girl and i'm 15 years old. thanks :D





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    Yes go to the doctors. Could be a trapped nerve, though that would normally hurt. If you have been bending down a lot and picking up a load without keeping your spine in line, you could be risking a slipped disc and your twitches could be trying to tell you that youve done something to your back. I get twitches a lot too but thats because I had a heavy weight horse fall on me and tread on my t5 vertebrae.. Id deffo get it checked out.

    im really concerned and have been for over a year now, i have been having involuntary twitches in my neck, shoulders,back and legs... also my eyes seem to blink eccessively and i cant resist clearing my throat out even if theres no reason..it generally gets worse in class,for example when i have to read aloud or when the class is silent. i went to the doctors and they told me they would make an appointment for me to get checked out by a epilepsy expert and since then (two months ago) i've had no news. people at school think its funny and deliberately poke me in the neck and it sets the twitches off and my neck sticks still for about 5-10 minutes at a time...in some cases ive been taken out of class to calm down. ps.I'm thirteen.





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    I know the feeling - I've had people do things like shout abuse and do pigeon impressions right in my face, as I can't stop jerking my head and they mimic the noises I don't realise I'm making just for a laugh; which really affected my self-confidence after 9 years of it. Even teachers and 'friends' have given me dirty looks and smirked, but this is only because they don't understand what Tourette Syndrome is. Your problems in school will calm down as people start to mature! I'm 16 and have noticed this in school/ college. The best thing to do is see a doctor, relax and get straight to the point; tell them what symptoms are present, how long you've had them for, how it makes you feel and that you'd like to know how they can be controlled/ prevented. There are options which don't involve medication that some people have found to be effective; such as hypnotherapy, deep tissue massage to relax muscles and natural herbal remedies. As you're under 18, an adult would have to be with you for hypnotherapy. There are also support groups, such as Tourette's Action. I hope this rather lengthy response helps :)

    hi can you help me i am 23 and for the past 18 minths on and off my right testicle goes achey and twitches i have had scans that have apparenty showed that there is nothin ther and the doctor wont do anything because its not constent do you have any idea wha it could be many thanks





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    I suffer from a very similar set of symptoms, especially the heavy sweating and the twitches. Like you, I don't know what causes this, and my doctors are fairly dismissive. . . I am doing my best to investigate this, hoping to find an answer that will help us both, as I'm at my wits end.

    My eye twitches a lot its like a pulse sensation, doesnt hurt just annoying, also i get a lot of water blisters on the inside of my eyelid that itch all the time untill i manage to pop them, what are they and what courses them ?





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    By the way I am a 1st time blogger so... hope I don't sound like an idiot but I am 30 and in fantastic physical shape, I play football I am african american an I tend to blink excessively when I am mad or I feel akward and when I am hungry and I have missed a couple of meals also when I have not had water in a while. This is comforting to know I am not a side show because my friends and family wonder what's wrong with me and they ask me to stop blinking so much as if I can help it and they mock and tease me about it

    Hello there, my names simon and im 23 years old For the past 2/3 years ive been suffering from spazems/twitches which makes from small head movements to my whole body spazeming. i don't no what causes this or what i can do to stop it. any suggestions





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    I have has shaken hands , twitches in my face especially my nose and lip and my voice goes all funny. It tends to happen when I have to do a presentation or when I'm excitted ( as this is when the adrenaline starts pumping) I feel that at least I can see , talk and walk, and they are the main things. So, just try to forget about it.... All we need is love!!!





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    THATS AN AMAZING RESULT,I MYSEL SUFFER WITH FND ,MUSCLE SPASMS ,TWITCHES ,TICS,UNABLE TO WALK WITHOUT ASSISTANCE.I HAD CBT FOR A YEAR AND A HALF,HELPED MENTAL HEALTH BUT IT DIDNT HELP WITH MY PHYSICAL PROBLEMS.WHERE DID YOU GO FOR THIS TREATMENT?

    I had Scoliosis diagnosed when i was 3. I have had 2 major operations I had my growth stunted when i was 7 and had a metal rod inserted at the age of 11. I am only 4ft 11 now and im 30! I have learnt to live with a hunchbank on my right shoulder and forever getting pain and twitches. so you just get on with things and ignore it doing everyday normal things.

    hi the problem i have is i get very sweaty on my balls and there is a red rash they get very itchy i have tryed diffrent steriod creams but the problem is still here i also get twitches and cramps all around diffrent parts of my body and when i go to the toilet for a pee my pee is dark in coulor and has a oudour





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    I have just recently been told i have tourettes/a tic, which really upset me but i think i have had it since the age of about 5, again everybody thought it was just a habbit and that i would grow out of it but as i've got older its got worse, I get like twitches in my head, neck, body, fingers, and vocal tics too and many more. I haven't yet found anything that calms it down and its very embarrassing most times and i cannot stand to go shopping/out in public sometimes do walk out of the shops. I would really like to try something without using medication.





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    Same happens to me mate.

    same and wen im in school people look at me wird and some sometimes think they are talking about me behind my back i find it worse wen im nervus i realy dont no wot to do

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    hi im 20 ive had ezcema all my life the last couple years its got so much worse ive been on Neoral Ciclosporin for over a year and my skin is still pretty bad since its got bad tho ive noticed other problems such as being anemic imsomia hayfever asma twitches swelling joints poor viens eye depression my question is it normal to this many problems at my age





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    Have you been referred to a geneticist? Our 18 year old son has severe dyspraxia, had seizures early on, learning difficulties and hand tremors and twitches. He has recently been diagnosed with a genetic mutation called FoxG1 syndrome. There are lots of different genetic syndromes. It has helped to finally have a proper diagnosis.

    I am a 27 year old fit and healthy male working in a professional role. I've had a twitch in my right eye for nealy two years now and it is really getting me down to the point I just want to stay at home and avoid people as it is embarrassing. my right eye twitches all the time and gets worse when people are around me. I really need help and a cure as I'm becoming very sad. I find I'm always thinking about and it's a vicious circle and always on my mind. I'm a very confident person in all other aspects of my life but this is dragging me down. I've had episodes of this when 7 years ago and it disappeared in a week or two. Please help me.





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    Two pieces of advice. First try telling your GP that you have this twitch which don't think is primarily "nervous" and can they help. They will probably tell you this it IS nervous. Then you say that you think you have blepharospasm and you would like a referral to a dystonia specialist. Your GP may not like a patient diagnosing themselves, using words which the GP may not have come across and telling them what to do. That may take any negotiating skills you have learned, but try pushing it through. If necessary be prepared to see a specialist privately for a diagnosis. The second piece of advice is one I hate reading, hated receiving and don't feel comfortable giving, but feel I must. If this condition is seriously impacting on your social life and your professional performance, because you are self-confident about it then you have to consider a different sort of help. I suspect that your GP will suggest something that will turn out the CBT (Cognitive Behaviour Therapy). Whatever it's called it's a way to help you get your reaction to this thing under control. You may find that even if you get a sensible diagnosis and the help of a physician that it will not go away. Secondly, you are (by your own account) making things worse by the way you think about it. So, as well as seeking help for the root condition, you also need help for controlling the knock-on effects. But don't let anyone bully you into thinking that it's ALL psychological (especially as you had two previous attacks). It's just that now the psychology is making things worse than they need be. Good luck

    I also have been experiencing blepharospams, most recently when I was on a placement within a hospital for 6 weeks. I talked to an opthalmologist about it, this can be brought on by stress and tiredness. Because I was driving so far (3 hrs a day) and working so many hours I was drinking more coffee and energy drinks to try to stop the spasms and keep me awake. This in fact makes it worse, so if you are currently drinking strong coffee, I would suggest cutting this out. That would be a good place to start and it has helped me.

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    For the past 5 days my pinky finger twitches from side to side uncontrollably and its really worrying me, I suffer from chronic anxiety and panic attacks and as you can imagine I am frantic with worry, my Doctor said its nothing to worry about but its driving me crazy it wont stop shaking I have to tape it to the index finger to stop it. I am desperate for an answer please help.





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    Hi every since i was born ive was told i have shaken quiet bad, the doctors all said id grow out of it and that they had no idea of what it was so until i was 20 i just lived with it until over a few mounths my shaking got so bad i was finding it hard to do alot of task at home and during work with my hands being the most effected at the time, in which i had to go to my local gp to see if he had any clue on the subject bout my shaking. when i talked to him about my problems he said it could be something called benign tremours which explained alot, so he prescribed me beta blockers which have helped but my shaking is still dramatic and hassling at times but ive accepted that ill always shake and that it makes me who i am. hope ive helped :)

    My eye twitch started when my son moved in with me and gave me unnecessay stress and I noticed it went away when he moved out. He wanted to move back in this year and my eye started to twitch again so I said no. I'm thinking that eye twitches can be caused by stress. You can also talk yourself out of a twitch by trying to handle the stress.





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    I have a annoying twitch on my arm, mainly in the for-arm and upper arm but It only happens occasinaly, I would just like to now if it will just go away eventually

    Durene. I find that when the blinking spasms start if u just hold ur eyes shut and breathe in deeply, that in about 2 mins go get a drink of water and relax and gain composure, that the blinking will not start

    I'm 19 years old and was diagnosed with scoliosis, I have an S shaped spine and nerve twitches and problems with my shoulder, I'm on constant pain and feel miserable, waiting for the consultation and my spine is a 40 degree angle, I also have a tilted pelvis which is causing me and by boyfriend tonnes of problems yet the doctors and consultants don't want to know about, please can someone let me know if this is normal and what I should do because I'm miserable and in so much pain I'm cutting down work hours, thank you :)





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    Nikki you sound so like me! I also have probelms with my neck which is now extending down my arms and affecting the nerves. My left hand shakes more than the right hand which tends to have big "twitches". The higher to my mouth I lift my food the more it shakes and drinking from a cup in that hand is a no go! I also have fibromyalgia which causes pains all over the body, you are not alone with your embarassing shakes!! It's quite a relief to be writing this to someone who knows what it's like to be ruled by your body doing uncontrollable things ha ha. Be lovely to hear from you

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